Welcome to DU! The truly grassroots left-of-center political community where regular people, not algorithms, drive the discussions and set the standards. Join the community: Create a free account Support DU (and get rid of ads!): Become a Star Member Latest Breaking News General Discussion The DU Lounge All Forums Issue Forums Culture Forums Alliance Forums Region Forums Support Forums Help & Search

UglyGreed

(7,661 posts)
Sun Nov 9, 2014, 07:03 AM Nov 2014

My Battle Has Been Won (Update Photo Of My Car After Crash)

Last edited Sun Nov 9, 2014, 07:12 PM - Edit history (1)

I have weaned myself off of my pain medication after being on Oxycodone for six years. I feared that I was physically unable to do so since the Hydrocephalus has taken a great toll on my state of mind. Never mind the eleven discs in my spine which have been compromised.

My motivation for doing so was the treatment (really the lack of treatment) I received from my doctor. He used this against me and frankly I got pissed and he awaken the sleeping giant inside of me.

I was not a drug addict, just a person who's spine and brain has let me down. I kept the medication at a manageable level knowing I would never get better and slowly crumble as time went on.

My plan was to keep the pain medication at a low level while I was strong enough to handle my pain, but still be able to be a husband and father for my wife and family. That plan was in jeopardy since there is ongoing witch hunt on those who suffer from chronic pain and the medication they need to survive.

I wanted to stop on my on own accord, not be forced by those who would never know the pain I have had to endure for over twenty years. This was my choice and I would never tell anyone who suffers to not look for any option they can find to get some relief from their pain.

I did suffer some withdrawal. Mostly insomnia, sneezing and night sweats. Otherwise I came through it pretty well. I kept busy here on DU and looked at old photos of better days while listening to the music of my youth.

I still believe that people should never be allowed to just sit and suffer and doctors should not feel pressure from the government to stop treating those who need their help.

I feel very proud of myself even though my pain levels are much higher now. I will deal with it the best way I can for now. Who knows what the future will bring. I guess I am stronger than I thought I was.

Thank you "doctor" I can't wait for my follow up appointment and your next excuse as to why my Hydrocephalus is not under control.

This crash started my back problems many moons ago. I thought it should be included in this post.

http://imgur.com/mMZxFdN

So who got some cheeba for sale???

53 replies = new reply since forum marked as read
Highlight: NoneDon't highlight anything 5 newestHighlight 5 most recent replies
My Battle Has Been Won (Update Photo Of My Car After Crash) (Original Post) UglyGreed Nov 2014 OP
I have great admiration for you. Rhiannon12866 Nov 2014 #1
Thank you UglyGreed Nov 2014 #14
What you've done took courage and determination. Rhiannon12866 Nov 2014 #37
Good for you!!! UglyGreed Nov 2014 #42
Kudos to you! madamvlb Nov 2014 #2
If he is abusing his medication then step in right away UglyGreed Nov 2014 #15
I am so happy for you! peace13 Nov 2014 #3
I second this. No doctor should treat a patient like that. sybylla Nov 2014 #7
I tried to get UglyGreed Nov 2014 #16
Thanks peace UglyGreed Nov 2014 #31
I strongly suggest watoos Nov 2014 #4
Thank you so UglyGreed Nov 2014 #17
My wife makes Cheeba for me. bahrbearian Nov 2014 #5
Heheee UglyGreed Nov 2014 #18
Yes he does ,Doctors orders. bahrbearian Nov 2014 #19
Good for you! I have chronic pain from small fiber sensory neuropathy and a fractured spine. Dustlawyer Nov 2014 #6
I tried Tramodol UglyGreed Nov 2014 #20
Never stay.. sendero Nov 2014 #8
somebody can graduate #1 in their class magical thyme Nov 2014 #11
Fair enough.. sendero Nov 2014 #13
he had a lab to pay for magical thyme Nov 2014 #25
Many MDs - most in fact... Whiskeytide Nov 2014 #51
I'm am looking for UglyGreed Nov 2014 #21
Doctors should be so lucky tooeyeten Nov 2014 #9
Thank you UglyGreed Nov 2014 #22
Your body tooeyeten Nov 2014 #34
Your strength is admirable Sienna86 Nov 2014 #10
Thanks I UglyGreed Nov 2014 #23
Congratulations! magical thyme Nov 2014 #12
NYS is going to UglyGreed Nov 2014 #24
I've suffered with degenerative disk disease for over 20 years. In the last 5, it's become Flatulo Nov 2014 #26
Hello Flatulo UglyGreed Nov 2014 #29
Thanks for the tune, and I'm so glad you were able to wean yourself off the meds. Flatulo Nov 2014 #32
There is always UglyGreed Nov 2014 #40
Yup, I hear you about feeling like a loser, too. I was the chief bread winner in my family Flatulo Nov 2014 #41
I never UglyGreed Nov 2014 #45
Thanks, good reminder for those of us who need some inspiration to keep going. freshwest Nov 2014 #38
You're welcome UglyGreed Nov 2014 #46
that is huge!! KT2000 Nov 2014 #27
You are so strong! Kicking that addiction is fierce! riderinthestorm Nov 2014 #28
Thanks rider UglyGreed Nov 2014 #30
Yes, there is a difference between addiction and dependence. reflection Nov 2014 #43
I was on oxycodone UglyGreed Nov 2014 #44
Congratulations, you're very strong, I know it was not easy ! steve2470 Nov 2014 #33
Congratulations!!! Yo_Mama Nov 2014 #35
Yes sleeping is UglyGreed Nov 2014 #36
Good for you UglyGreed. That's awesome!!!! KMOD Nov 2014 #39
I'm feeling pretty UglyGreed Nov 2014 #47
Congrats mercuryblues Nov 2014 #48
What a wonderful and UglyGreed Nov 2014 #49
They all mercuryblues Nov 2014 #50
I'm in tears UglyGreed Nov 2014 #52
Thank you mercuryblues Nov 2014 #53

UglyGreed

(7,661 posts)
14. Thank you
Sun Nov 9, 2014, 10:58 AM
Nov 2014

for your kind words. It does mean a lot to me since many have called me names like wimp and such. I have been through a lot in my years on this earth and I feel I don't deserve such treatment.

Rhiannon12866

(205,363 posts)
37. What you've done took courage and determination.
Mon Nov 10, 2014, 12:01 AM
Nov 2014

I'm in recovery (six years in AA, 5 1/2 years sober) and I know it's not easy even for those of us who are otherwise healthy. You deserve all the credit in the world...

UglyGreed

(7,661 posts)
42. Good for you!!!
Mon Nov 10, 2014, 01:20 PM
Nov 2014

you have done yourself a great favor being smart enough to realize the problem, then strong enough to do something about!!!

My father stopped drink much too late and died a year after he retired. He was a good quiet man when he was sober but when he started sipping the schnapps watch out.

When I started taking the pain medication I always kept the memory of his struggle in my mind to be sure I stayed in control and not allowed the pills to control me.

madamvlb

(495 posts)
2. Kudos to you!
Sun Nov 9, 2014, 07:50 AM
Nov 2014

My hubby is post major back surgery and eating then like candy. I know I will have to help taper him off slowly.

UglyGreed

(7,661 posts)
15. If he is abusing his medication then step in right away
Sun Nov 9, 2014, 11:04 AM
Nov 2014

if needs them to survive please don't force him to suffer. Just try to be supportive and help him in any way possible. I have had two major surgeries on my lower back and had my neck fused just a couple of years ago it is not fun. I wish you both the best of luck and if you guys need any help I love to be of service.

 

peace13

(11,076 posts)
3. I am so happy for you!
Sun Nov 9, 2014, 08:25 AM
Nov 2014

Good luck at the doc's and if he is still a dick on your follow up...get a new one! You deserve to have your health issues dealt with! Great job!

sybylla

(8,510 posts)
7. I second this. No doctor should treat a patient like that.
Sun Nov 9, 2014, 09:34 AM
Nov 2014

If he/she continues to look for reasons to not treat you and your symptoms seriously, get a new doctor.

I know that is sometimes easier said tgan done, but you deserve respect as a patient and a doctor who actually feels obliged by their oath to treat you seriously.

Back problems are some of the worst. I wish you the best and congratulate you for taking control of a difficult situation. What a crazy-hard job without the help of a doctor. I hope you feel like a super hero now, because that is impressive.

UglyGreed

(7,661 posts)
31. Thanks peace
Sun Nov 9, 2014, 05:32 PM
Nov 2014

We all deserve to have the best care regarding our health!!! It should not be money driven, greed has no place in health care.

 

watoos

(7,142 posts)
4. I strongly suggest
Sun Nov 9, 2014, 08:32 AM
Nov 2014

that you read Mind over Medicine, written by Lissa Rankin. Rankin is a doctor, not a witch doctor, her book is amazing. I have cured my A-Fib by combining medical treatment with her added treatment of using my mind to heal. This is not a religious, pray for a cure, although, religion is quite compatible with her book. My doctor is a nocebo, not a quack, but a nocebo, he told me that my A-Fib was sure to return, his telling me that was part of the problem. Read the book, it works. If medicine agrees that the mind can make the body sick, it certainly can also cure the body.

There is another similar book that I think is called, Healing the body with the mind, I think by Hamilton. It is a very similar book.

Please give these books a read, you won't be disappointed, there is no malady that can't be cured.

UglyGreed

(7,661 posts)
17. Thank you so
Sun Nov 9, 2014, 11:08 AM
Nov 2014

Last edited Sun Nov 9, 2014, 05:32 PM - Edit history (1)

much!!!! I will look into it, I'm always open to try anything. I did acupuncture and saw a chiropractor the first ten years in the 90s before my kids were born. I could not continue since dragging the kids around with me was not doing me any good.

Dustlawyer

(10,495 posts)
6. Good for you! I have chronic pain from small fiber sensory neuropathy and a fractured spine.
Sun Nov 9, 2014, 09:30 AM
Nov 2014

I am allergic to most non-narcotic meds for my condition and must take Opana ER and Tramodal for the pain. I even let them put a neural stimulator in my spine to reduce the amount of meds I take, that reduction never happened. The constant pain just wears you down and the meds make you confused and sleepy. My state will never get medical marijuana!

UglyGreed

(7,661 posts)
20. I tried Tramodol
Sun Nov 9, 2014, 11:14 AM
Nov 2014

but that was when my head and neck exploded causing me to have Hydrocephalus and four herniation in my neck. I got scared and stopped it right away thinking it may have caused this to happen. I was also going to try the stimulator but they backed off since it is now my entire spine and of course my brain.

sendero

(28,552 posts)
8. Never stay..
Sun Nov 9, 2014, 09:39 AM
Nov 2014

.... with a doctor that you don't think is providing good care. Remember "what do they call the person that graduated in last place at medical school?" - "doctor".

There are plenty of incompetent doctors out there. Don't waste time with them.

 

magical thyme

(14,881 posts)
11. somebody can graduate #1 in their class
Sun Nov 9, 2014, 10:06 AM
Nov 2014

and still be an asshole.

Some people are superlative students and lousy practitioners.

Some people are crappy students and great practitioners.

Most fall somewhere between the extremes.

But if somebody is treating you badly, then they definitely need to be replaced.

sendero

(28,552 posts)
13. Fair enough..
Sun Nov 9, 2014, 10:38 AM
Nov 2014

.... I have run into a couple doctors that I would not consider useful, i.e. they would spend 30 seconds listening to you and jump to a (wrong) diagnosis.

And yes there is little doubt that some of those guys graduated with top grades.

One doctor in particular comes to mind, he had a clinic set up with about 8 rooms. He had his own lab and if you visited him, for ANY reason, you were going to get a uninalysis and CBC done on the spot. Everyone, every visit. Since he had 8 room and he was the only doctor there he did not spend much time with you. A couple of minutes max. I was glad when I realized I needed a new doctor after he gave me a ridiculous prescription that only made things worse.

 

magical thyme

(14,881 posts)
25. he had a lab to pay for
Sun Nov 9, 2014, 11:43 AM
Nov 2014

Hematology analyzers are not cheap instruments to buy, maintain or run, and urinalysis frankly can be done without an analyzer, so *could* be done on the cheap. Seriously, nobody going in for regular checkup or normal stuff should need on-the-spot urinalysis or CBC. Any lab work for that situ should be sent out.

Whiskeytide

(4,461 posts)
51. Many MDs - most in fact...
Tue Nov 11, 2014, 10:16 AM
Nov 2014

Receive substantial kickbacks from pharma mfrs and outside testing labs. Some of these payments are legal, but many of them are not. When an MD becomes more dependent on that money than the revenue generated by the practice, he's as addicted to the drugs as his patient, just in a diff way. That's why you get prescriptions for drugs you don't really need. Gotta make the payment on the Benz.

Edit to add. I'm being a little hyperbolic- and I certainly don't mean most MDs. Just those that have allowed the money to cloud their judgment.

UglyGreed

(7,661 posts)
21. I'm am looking for
Sun Nov 9, 2014, 11:22 AM
Nov 2014

another doctor. The doctor I am seeing is highly regarded but I feel he is not concerned about my condition. He is a pediatric NS who specializes in Hydrocephalus. I really believe because he was out of network and we own him a few thousand dollars that he does not want to go any further. But of course it's just a guess on my part, I could be just paranoid.

tooeyeten

(1,074 posts)
9. Doctors should be so lucky
Sun Nov 9, 2014, 09:46 AM
Nov 2014

To have a patient like you, taking charge, involved & active in your treatment. I like to remember Drs don't know all, and how could they, it's your body and how could they know what you're going through if you didn't tell them? Dr works for you by the way, not anyone else, they seem to forget its a partnership.

Congratulations for seeing and taking the next step.

UglyGreed

(7,661 posts)
22. Thank you
Sun Nov 9, 2014, 11:24 AM
Nov 2014

Last edited Sun Nov 9, 2014, 05:38 PM - Edit history (2)

for the reply. I sometime feel that doctors may feel offended if I talk too much, like who is this guy telling me what my job is. It does not stop me though.

Sienna86

(2,149 posts)
10. Your strength is admirable
Sun Nov 9, 2014, 09:56 AM
Nov 2014

Thank you for sharing it and good wishes for more fruitful help from your doctor in the future. Any chance for a second opinion?

UglyGreed

(7,661 posts)
23. Thanks I
Sun Nov 9, 2014, 11:26 AM
Nov 2014

did not think I could make it. Makes me feel real good mentally. I'm working on seeing another doctor but having trouble getting someone to take me on as a patient.

UglyGreed

(7,661 posts)
24. NYS is going to
Sun Nov 9, 2014, 11:30 AM
Nov 2014

allow certain conditions soon. I hope chronic neuropathic pain is one of them. The only down part is you will not be allowed to smoke it, which I don't think that's fair since that is the cheapest way of using it.

 

Flatulo

(5,005 posts)
26. I've suffered with degenerative disk disease for over 20 years. In the last 5, it's become
Sun Nov 9, 2014, 01:25 PM
Nov 2014

completely debilitating.

My primary care doctor had me taking 32 Advil per day, which did not even begin to touch the pain. He would not prescribe any narcotics, unless you has terminal cancer.

The reason? The bloody DEA crawls up their asses for every scrip they write. Our nanny state legislature in Massachusetts is trying to pass a law requiring each and every opiate prescription to be accompanied with a treatment plan and an estimated date when the opiates will no longer be needed. If this law passes, no doctor is going to go through such a fucking dance, and people will be blowing their brains out.

I was lucky enough to get into a good pain management program. The doctors there actually understand chronic pain, and they understand that opiates are sometimes the only effective treatment.

I've been on the same dosage for over 3 years, and I never take more, and often less, than I am prescribed.

My prognosis is: end of treatment. My lumbar discs are completely flattened and worn out, resulting in radiculopathy and stenosis in the whole lumbar region. Short of fusing 5 vertebrae (never gonna happen), there's nothing to be done.

Before I got into the pain management program, I was seriously starting to consider blowing my head off. If our state legislature gets their way, that may once again become the only treatment.

UglyGreed

(7,661 posts)
29. Hello Flatulo
Sun Nov 9, 2014, 04:09 PM
Nov 2014

Last edited Sun Nov 9, 2014, 05:37 PM - Edit history (1)

I can understand what you are going through. I myself suffer from the same type of pain and have stenosis in my neck and lower back plus what I wrote in the OP.

I feel we must speak up about how we who suffer from any chronic condition are treated by many people including doctors who are suppose to be on our side. We are not drug addicts or criminals, We are victims of our own bodies.

I felt I needed to be off the pain medication to be taken seriously since it would too easy to blow off what I write as a person who just trying to keep his fix. I don't like pain, but being treated like a criminal is worse at this moment in my life.

I hope everything works out for you and please don't do anything drastic. I've been there myself but always thought of how it would affect those who have stood by my side. You and I deserve much better things but we must fight for them.

Here's a tune I used during this time to cope with withdrawal and such. I'm a Long Islander and an 80s boy and Billy Joel has had some rough times himself. Kinda corny but the lyrics are so true. Hang in there buddy, your second wind will come around!!!





You're having a hard time and lately you don't feel so good
You're getting a bad reputation in your neighborhood
It's alright, it's alright
Sometimes that's what it takes
You're only human, you're allowed to make your share of mistakes

You better believe there will be times in your life
When you'll be feeling like a stumbling fool
So take it from me you'll learn more from you accidents
Than anything you could ever learn at school

Don't forget your second wind
Sooner or later you'll get your second wind
It's not always easy to be living in this world of pain
You're gonna be crashing into stone walls again and again
It's alright, it's alright

Though you feel your heart break
You're only human, your gonna have to deal with heartache
Just like a boxer in a title fight
You got to walk in that ring all alone
You're not the only one who's made mistakes
But they're the only things that you can truly call your own

Don't forget your second wind
Wait in your corner until that breeze blows in

You've been keeping to yourself these days
Cause you're thinking everything's gone wrong
Sometimes you just want to lay down and die
That emotion can be so strong
But hold on
Till that old second wind comes along

You probably don't want to hear advice from someone else
But I wouldn't be telling you if I hadn't been there myself
It's alright, it's alright
Sometimes that's all it takes
We're only human
We're supposed to make mistakes
But I survived all those long lonely days
When it seemed I did not have a friend
Cause all I needed was a little faith
So I could catch my breath and face the world again
Don't forget your second wind
Sooner or later you'll feel that momentum kick in
Don't forget your second wind
Sooner or later you'll feel that momentum kick in







 

Flatulo

(5,005 posts)
32. Thanks for the tune, and I'm so glad you were able to wean yourself off the meds.
Sun Nov 9, 2014, 05:42 PM
Nov 2014

As you know, they come with their own set of side-effects, most notably raging constipation.

Just last month a buddy of mine tried to end his life by taking 40 Oxy, but his wife found him and they saved him. He was pretty pissed, as he had reached the end of his rope, and no amount of meds could ease his pain. He has ankylosing spondylitis, another nasty degenerative condition. His entire spine is turning into a calcified pretzel.

Considering that you've got bad cervical AND lumbar problems, I can only imagine the suffering you've been through. Thankfully my cervical and thoracic spine are still relatively healthy, but then again, I'm only 58, and the disk degeneration can be expected to continue.

One treatment that I've found somewhat effective is Radio Frequency Neuroablation, where they cook the nerve roots using radio energy. It's a tough procedure, but it helped a lot. I get it repeated every year or so, as the nerves do grow back. Have you looked into that?

Also, there's a relatively new treatment in the horizon called blood packing, where they extract a protein from your blood and inject it into the disk, causing it to inflate somewhat. I'm not a good candidate for it, as there's just not enough disk material left, but you might look into it.

But yeah, there is a real gap in the treatment of chronic pain, and it sucks feeling like you have to do a little dance every month to get your scrips refilled. My own sister-in-law is a nurse, and she is a cold-blooded viper. She claims all her pain patients are malingerers, and I have no doubt she says the same thing about me when my back is turned. I wish she could feel what I feel for just 5 minutes.

On edit: I never got a high from my meds either. I take extended release morphine, and that has worked much better for me than a Percocet every 4 hours.

UglyGreed

(7,661 posts)
40. There is always
Mon Nov 10, 2014, 07:01 AM
Nov 2014

someone worse off than myself, like your poor friend, imagine what was going through his mind and of course his wife's when she found him. At least he has someone who has been by his side looking out for his best interest. Very rare these days.

I feel guilty that my wife has stayed with me and even pays for my treatment. I do still have some pride and it hurts me daily to be a "kept man" I tell her to go and find someone else because she deserves a better life than what I can offer.

Radio Frequency Neuroablation sound like a step I may try. I'm 49 and I don't think going back on the pain meds is a safe option anymore. I only took what they call breakthrough doses since Celebrex caused me to develop a hiatal hernia early on in my treatment.

The oxycodone was the one medication that caused me to have the least amount of side effects even though like you said constipation was a problem. I have tried eleven different medications over these twenty six years.

I was hanging pretty tough for awhile until the Hydrocephalus, which really knocked me down and sent me into another level of hell. Perhaps it was the final cut that my body could not deal with.

Thank you for your replies, it is nice to chat with someone who has some understanding of what it is all about. Sad, but like they say misery loves company.

 

Flatulo

(5,005 posts)
41. Yup, I hear you about feeling like a loser, too. I was the chief bread winner in my family
Mon Nov 10, 2014, 08:53 AM
Nov 2014

for 35 years. When I stopped working 3 years ago, I went from making over $100K to 1/5 of that (I was approved for SSDI on my first application), and for the first time in her life, my wife was the chief earner. She hadn't saved a single penny in 35 years, and spent her entire paycheck on lavish vacations, spas, clothes, etc., while I covered all our living expenses.

That all came to a screeching halt for her.

Thankfully, I was a good earner, so I get the maximum SSDI benefit, and with just a few sacrifices, money isn't too big a problem. But I had the advantage of being mortgage-free, and also had my son's college bills all paid up. I also had a very good pool of savings and a 401K to draw from. The only expense that really hurts is property taxes, which I pay from my savings. We have a modest home, but it's still the single biggest expense we have.

But still... It kills me to ask her to help pay for groceries and other bills. And...

I can't carry a gallon of milk upstairs.
I can't have sex. The morphine puts the kibosh on that.
I can't go anywhere more than an hour away (sitting in a car is too painful)
I can't go to a movie.
I can't lift a snow shovel.
I can't pick up my little nieces and nephews.
I can't even walk 2 blocks.

My wife has been a trooper through all of this, after an initial period of horror that she'd need to pitch in for expenses. Like you, I've told her to seek out a healthier man, but she seems committed to me, bless her.

My biggest fear is where I'll be in 10 or 15 years. I just can't imagine...

I do think it's important to give yourself little victories to maintain your self-esteem. You've obviously had a major win with kicking the meds, and you should be very proud of yourself.

I've found great joy in tutoring local kids in pre-calculus and physics. I don't even charge for it; it just makes me feel good to give something back to the community, and I thrive on that look of comprehension when a kid finally understands a difficult concept. I'm proud to say that I've steered a handful of kids into persuing an engineering education.

UglyGreed

(7,661 posts)
45. I never
Mon Nov 10, 2014, 06:42 PM
Nov 2014

was the bread winner and I do not collect any funds since I was injured at 26 and did not bother to try to collect SSD at that time since I thought like a fool that I would overcome my back problems. If it were not for my wife I would be homeless or dead. I do not post these things to reap sympathy, I just want people to understand that those who were not as lucky as me may have a good reason for their struggles in life. I have kept this in for a very long time and feel the need to let it all hang out. I became Mr. Mom because I wanted to repay my wife for sticking by me for all these years and even that has been used to disparage me. But in spite of that I'm raising my children to be caring and emphatic human beings. Perhaps they will grow up and help change this world of ours or at least remember I tried my best to prepare them for the future.

UglyGreed

(7,661 posts)
46. You're welcome
Mon Nov 10, 2014, 06:45 PM
Nov 2014

freshwest, I find great comfort in music and have a great deal of respect for those who write about life and it's struggles.

KT2000

(20,577 posts)
27. that is huge!!
Sun Nov 9, 2014, 02:16 PM
Nov 2014

You have done something amazing. There are lots of hurdles in that and you got over them.

I really hope you can find something that will ease your pain.

 

riderinthestorm

(23,272 posts)
28. You are so strong! Kicking that addiction is fierce!
Sun Nov 9, 2014, 03:20 PM
Nov 2014


Now you need a kick ass pain management program and a different doctor...

Good luck!



UglyGreed

(7,661 posts)
30. Thanks rider
Sun Nov 9, 2014, 05:27 PM
Nov 2014

It feels good to be seen as strong instead of being weak. That has not happened too often as of late.

I rather use the word dependent instead of addition. That addiction word just seems dirty to me and allows people to judge those who suffer from chronic pain. I feel that I was dependent on the pain medication like a heart patient would be to blood thinners or a diabetic to insulin.

I never gotten high or euphoric from taking the oxycodone, just pain relief. I often wonder why people would take it since it did nothing for me getting high wise. In the past I would get a buzz if I drink a beer, I would get stoned if I smoked pot, I never got a buzz from the pain medication at all. I understand why you wrote that, it is called Hillbilly Heroin after all. It just sucks to be labeled when you have done nothing wrong.

The nurse practitioner I see at my pain management is one of the very best people who has treated me in all these years. She is wonderful and compassionate person. My Neurosurgeon who did my shunt surgery is another story.

reflection

(6,286 posts)
43. Yes, there is a difference between addiction and dependence.
Mon Nov 10, 2014, 01:27 PM
Nov 2014

You can be dependent on a crutch but will not be addicted to it.

You can also be dependent on opiates and not addicted to them.

I took oxycodone for a jacked-up back for 8 years, every day, twice a day. Got off them a few months ago after a back surgery and it was easy peasy lemon squeezy. A little gabapentin to ramp down, and then none of those either. Was I addicted during those eight years? No. Was I dependent? Yes.

Like you, I realized no "high" that made them overly attractive, they just got me back to baseline.

UglyGreed

(7,661 posts)
44. I was on oxycodone
Mon Nov 10, 2014, 02:11 PM
Nov 2014

for six years, 5mg then 10mg and then had a second lower back operation dropped back down to 5mg. Then my head and neck exploded and I went from 10mg and then to 15mg and now I stopped because I did not want to go up any higher in dosage and was in a great deal of pain taking the 15mg anyhow. I am still in great deal of pain but made the choice to stop on my own. I have no cravings or do I long for a fix.

steve2470

(37,457 posts)
33. Congratulations, you're very strong, I know it was not easy !
Sun Nov 9, 2014, 05:47 PM
Nov 2014

I wish you many good fortunes in your treatment.

Yo_Mama

(8,303 posts)
35. Congratulations!!!
Sun Nov 9, 2014, 06:39 PM
Nov 2014

If your insomnia continues, you may have to do something for the pain.

Butrans (the patches) might give you some relief there. If you feel like you are in too much pain, try talking to your doctor about the Butrans 5 mcg/hr patches. They are are Schedule III now, I believe.

Best of luck. It's not easy, but clearly you are pretty tough.

UglyGreed

(7,661 posts)
36. Yes sleeping is
Sun Nov 9, 2014, 07:16 PM
Nov 2014

the biggest issue right now. Only can sleep in short bursts, thank God I'm a stay at home Dad and can rest when needed. I going to try and stick it out though, since I rather not exchange one crutch for another right now. Thank for the reply!

UglyGreed

(7,661 posts)
47. I'm feeling pretty
Mon Nov 10, 2014, 06:46 PM
Nov 2014

good as of late but I better be careful I might pop a few more discs while patting myself on the back

mercuryblues

(14,531 posts)
48. Congrats
Mon Nov 10, 2014, 08:41 PM
Nov 2014

on your accomplishment! Never, ever let someone diminish you for being a SAHD. You can't control what others say. You can control how you let it affects you.

UglyGreed

(7,661 posts)
49. What a wonderful and
Tue Nov 11, 2014, 01:21 AM
Nov 2014

fitting post. Thank you mercuryblues, I have learned a great deal from this video and now I even understand why I decided to post such personal things these last few weeks. Stress and Chronic pain walk hand in hand, depression and anger tags along. Thanks again

mercuryblues

(14,531 posts)
50. They all
Tue Nov 11, 2014, 09:48 AM
Nov 2014

contribute to each other, making the effect worse than need be. What I have learned from this video and group discussions I attend on stress is you can not avoid stress. You can change how you perceive it. It is easier said than done. We have years of dealing with stress in our own way. We have hardwired our brains to react a certain way. The trick is to recognize the trigger and consciously say to yourself, ok this happened I can let this bother me or I can do xyz.

As an example of one of my triggers. When I am driving somewhere and someone pulls out in front of me and goes way under the speed limit it sets off my learned response of swearing at them, my hands grip the steering wheel tighter, I generally tense up. Don't they know I am late? Why can't they at least go the speed limit? How I deal with it now (most of the time) I leave the house 5 minutes earlier. When it happens I tell myself, hey you have a nice car, relax and enjoy the drive. I have plenty of time to get there, there is no rush. I found now when that happens relaxing is becoming my automatic response.

When anger/stress was my learned response I would get to my destination and say the store was crowded, long lines, having to wait an hour to see the Dr., friends I am meeting up with are late would compound the stress. By the time I would get home I would be wound up tighter than a jack in the box waiting to explode. I did one day. I had a heart attack. Which is why I am learning about stress- Dr's orders. As a result I have less lower back and neck pain, stomach aches and hardly ever get migraines anymore.

I am not good at relaxation techniques-yet. Put on a relaxing CD (I like music of the Scottish Moors) The idea is to get in a comfortable position. Starting with your toes, alternately tighten, stretch and relax your muscles x2. Working your way up your body doing the best you can. Work your way up to your chin, mouth and eyebrows. Where you have the pain, I would suggest just relaxing the area. Imagine you are on a massage table on a deserted beach, with a gentle breeze and the sun warming the area. I am not saying this will take away your pain, but hoping it will take it down 1/2 a degree.

How these techniques have helped me. On a scale of 1 -10, ten being the worst. I now start my day between a 0 and 2. When my stressors occur, I have changed my thinking and I may rise to a 4 by the end of the day. Where I used to start my day at a 4 and be at or near a 10 by bedtime. Which made for a good night's sleep- not. So I would start the next morning with a high stress level. A never ending cycle that fed into each other. I can also distinguish better between real medical issues and pain brought on by stress.



This board shines when we rally around and support each other. You are more than welcome. I hope that this post comes off as I intended-helpful, not as a condescending holier than thou thing. Due to my experiences I have to learn how to handle stress, this is my process. I can not change my heart problems. Heck I can not change some of my risk factors. I can not change genetics, Thanks Mom. I already ate a healthy diet, so all I could do was some tweaking. Even though I am physically fit, I have added an exercise routine. I can change how I perceive and react to stress, my major contributor. I was so stressed out that it was my norm and never realized it. The great thing about advice is we can take what works for us and leave the rest.

I suspect you opened up for the same reason as me being drawn to reply to your post. Talking about our challenges and knowing that we are not alone is a stress reliever in and of itself.

Just 1 question. Other than red, what kind of car is that?

UglyGreed

(7,661 posts)
52. I'm in tears
Tue Nov 11, 2014, 10:21 AM
Nov 2014

I'm really glad you took the time to reach out to me. I've been struggling alone for a very long time and was nearing the end my rope. I think this was my last try to cope with my struggles and needed to get all out of my system before I popped. I will try to use all of what you have written to me and will seek out some more videos like the one you posted the other day. I wish I could afford counseling but that is not an option right now. Thank you so much your words have not fell on deaf ears.

To answer your question it was a 1975 Camaro with a 350 engine and 400 turbo transmission. I was t-boned by a limo. here's a google link of this car in much better shape

https://www.google.com/search?q=1975+camaro&biw=1280&bih=605&source=lnms&tbm=isch&sa=X&ei=uBhiVKTQHrXasASAzYKICg&ved=0CAYQ_AUoAQ#imgdii=_

Thank you once again, words can not express my gratitude.

mercuryblues

(14,531 posts)
53. Thank you
Tue Nov 11, 2014, 12:05 PM
Nov 2014

for your kind words. Just like our body's systems are all intertwined; I believe people are. When I get behind that slowpoke I sometimes say to myself, maybe they are preventing me from a speeding ticket. Perhaps the result of my medical problems is that I am here able to share what I have learned. I wish I could have learned this a decade ago.

Just by talking to you, I have realized how much my siblings took advantage of my stress level. When we would all get together and our kids would start getting a bit too rambunctious (as kids do) they would ask me to quiet them down, knowing that I would take no prisoners. This holiday season, I will just say- eh it ain't bothering me, you take care of it. I will keep saying it to myself so when it does happen, and it will, the noise/running really won't stress me as much and I have already rewired my response to it.

Check locally, perhaps there is a chronic pain support group. Even though things sound like great ideas, they may not work for you. Just like I am having a hard time relaxing my body and mind. I know I will get there and in the meantime what little bit I can accomplish is helpful. I think your goal is to have the least amount of pain as possible, using the least amount of pain meds as possible. Fortunate enough, that I have been learning about one aspect, stress that can manifest into physical pain and ailments. Others here have great ideas to look into. It isn't easy but with a steady effort you will notice changes. If you slide back into the old thinking don't sweat it, take a deep breath, acknowledge, apologize if need be and get back on track.

Instead of thinking of what a burden you might be. Realize you are assigning emotions to someone that may not be there. By doing so you are helping to create an environment where it can become a reality. Instead think, what a blessing you are to your wife and kids. You are able to kiss their scraped knees, help with homework and ease the stress your spouse may be feeling from work, just by listening and engaging. You can help them when need be and the true joy is to watch them take the lessons they have learned and soar on their own. Because you have created an environment where they feel secure to know they have a nest to come home to for guidance.

There were 2 main household chores that I dreaded. Vacuuming and doing laundry. Both because of the stairs. I didn't mind washing, folding or putting clothes away. What I minded was lugging it all up and down the stairs. Moving is not an option. Now I say, I am doing laundry in the morning. Can you (kids or spouse) bring it downstairs for me.. Then have them carry it up when it was done. The same with vacuuming. I didn't mind it, but I hated doing the stairs. Now I vacuum and my youngest's chore is to vacuum the stairs. Both were because of the stress I created for myself I was prone to pulling muscles in my back by carrying heavy stuff up and down the stairs. It has the bonus of the kids learning responsibility and the household happiness is a group effort, not what I can do for you.

Latest Discussions»General Discussion»My Battle Has Been Won (U...