General Discussion
Related: Editorials & Other Articles, Issue Forums, Alliance Forums, Region Forumsnow I am really scared. New tests to be ordered-test for leukemia and pancreatic cancer
Jesus it just gets worse
maybe they should not make doctor notes and plans available before discussion takes place.
I am more scared now than I was before
https://www.gofundme.com/pamelas-crohns-disease-relief
alittlelark
(18,890 posts)This kind of stuff can get really scary.... Just remember that they are ruling out problems 90% of the time...
Take a few really deep breaths.....
sueh
(1,824 posts)dixiegrrrrl
(60,010 posts)1. A lot of tests are to "rule out" any possibility of something...they are "just in case" type tests. I recently have had several, they all came back negative.
2. You can save enormous amounts of money on prescribed drugs, esp. if you can get generic, using this site: goodrx.com.
I have gotten a year's worth of very expensive meds for mere pennies on the dollar. And in fact we filled 70.00 worth of other prescriptions today for 28.00
3. Do check out the cancer group here, lots of strength, wisdom, and tricks to cope with a serious illlness.
I hope the days get brighter for you soon.
Hekate
(90,565 posts)barbtries
(28,774 posts)all the best for a successful conference and curable diagnosis!
demtenjeep
(31,997 posts)I do know that Leukemia is a risk with the infusions I have been getting for 8 + years
noamnety
(20,234 posts)Q. Can leukemia be acquired through a blood transfusion?
A. Because there is no known cause of leukemia, the only way it could be acquired through a blood transfusion would be the the direct introduction of leukemic cells in the recipient. However, because the cells of a random donor would be seen as foreign, they would be immediately destroyed by the recipient. There is no evidence that leukemia has ever been acquired from a blood transfusion.
source: http://www.nationalcmlsociety.org/faq/general-leukemia-questions
demtenjeep
(31,997 posts)and when I first started them there was a lot of talk because my father died from leukemia
noamnety
(20,234 posts)(obviously)
LeftishBrit
(41,203 posts)sometimes people just want to give every possible test to cover themselves.
Skittles
(153,122 posts)talk to us
spanone
(135,795 posts)hunter
(38,304 posts)I've experienced that a few times; my own, and my wife's.
I've lost some skin and my left testicle. Big deal. My beloved has lost more bits, by weight and biological importance, by much more invasive surgeries.
Or, you could be like my little brother... after some horrifying major surgeries and chemo therapies, lost body parts, and some truly awesome scars that make him look like the victim of a shark attack (his fellow surfers are always impressed!), he decided to quit having tests, decided to quit seeing doctors. My mom's hair turned gray. My hair fell out. My brother's hair grew back. Mine didn't.
I'm not like my brother. He lives enthusiastically for the day, for decades now, but I've suspicion maybe his survival is the luck of fools. Or God's Will, as our religiously insane relatives and in-laws believe. Even though my brother is not religious and occasionally anti-religious, more than I am.
Given choice, I usually choose to know what is going on.
renate
(13,776 posts)I'd be scared too--it's human nature to hate uncertainty, and when the thoughts going through your head are so dire, it's existentially awful.
I've been in your shoes (everything turned out fine--good test results really do happen) but I remember the terror and feeling of unreality. I wish I could give you a hug.