Reply #115: Wrong. Lyme Disease is grossly under diagnosed

[preciousdove]

You know who has revitalized the Lyme support groups here after the campaign by insurance companies and pharmaceutical companies to control the disease are? Doctors and nurses who realized they had been bamboozled by a false PR campaign. Insurance companies were not going to let patients control access to care so they founded the American Lyme Disease Foundation to spread disinformation and have experts to testify against patients in court.

Specialized labs sprang up because the CDC approved about 100 tests that they knew only found 39% of the disease in positive samples they sent to the testing companies. This is documented.
Twice we stopped the FDA from closing down IGENEX and we used documented facts not propaganda that had been published against them. The CDC sent degraded samples to IGENEX and ordered them to test them and send results and then got someone to published that those tests failed in Europe so IGENEX had to fight both here and the EU. They did and they won but the smear tactics still work on folks like you. We were the model for the control of health care by this cabal. There are books about it if you care to learn.

The politics have caused huge suffering and cost to thousands of Americans and point out how badly our medical system is broken.

BTW the low level brain and nerve inflammation often causes crawling sensations and in rare cases hallucinations. These people are not coming to you to torture you they are coming for symptom relief. There are currently 2 doctors actively treating Lyme beyond 6 weeks in this state. Mayo sends all people with Lyme Diagnosis straight to the psych department. Even Mayo is getting it wrong but then they got the contract to develop the tests post LymeRix so they are caught up in the economics of it. If they admit their test is useless they are in trouble so instead they say that hundreds of people are delusional about Lyme. Wellstones aide told ne that for some things Mayo is just plain wrong. They almost had to sue them to get them to use the fecal occult blood tests after everyone else was using them to try to diagnose GI cancer.

Before I lost so much to this disease, undiagnosed from 1974-1991 I had great respect for the medical community. Now I ask a lot of questions before I let anybody treat me and one of them is what do you really know about Lyme Disease?