Welcome to DU! The truly grassroots left-of-center political community where regular people, not algorithms, drive the discussions and set the standards. Join the community: Create a free account Support DU (and get rid of ads!): Become a Star Member Latest Breaking News General Discussion The DU Lounge All Forums Issue Forums Culture Forums Alliance Forums Region Forums Support Forums Help & Search

peggysue2

(10,823 posts)
Thu Feb 8, 2018, 04:39 PM Feb 2018

Not Healing Fast Enough? Coverage Denied.

Anyone acquainted with traumatic brain injury (TBI) knows how slow the path is to healing. The brain is a remarkable organ and will do its best to self-heal, rerouting neural pathways that have been broken during a head injury. But that repair requires patience, care and outside facilitation/rehab for best results.

Which is why the story of Caleb Freeman from Oklahoma caught my eye. Caleb was brain injured in a car accident on December 19, 2017. Blue Cross/Blue Shield have decided he hasn’t progressed fast enough in his treatment and will be cutting coverage as of 12 February. That’s less than 2 months coverage. For a brain injury!

This is personal for me because my younger son suffered a TBI a number of years ago, He spent 2 weeks in intensive care, 1 week in a step down unit, 3 months in an in-house rehab and nearly 3 months as an outpatient, It took him a good 18 months beyond that to walk without a limp, for the range of motion in his shoulder to fully return and for his vocalization to return to normal.

Two months? My son had barely regained control of his bladder and bowels in that time, let alone regain mobility,

I don’t know what these insurance companies are up to but they should be publicly shamed. We had a recent OP on an ALS patient denied basic services (respirator) and a new medications on the market.

I think we need to start a Wall of Shame for these insurance companies, those reverting back to their old ways, where denial=death=profit.

Disgusting!

https://www.carbonated.tv/news/blue-crossblue-shield-wants-teen-with-brain-injury-to-leave-rehab

31 replies = new reply since forum marked as read
Highlight: NoneDon't highlight anything 5 newestHighlight 5 most recent replies
Not Healing Fast Enough? Coverage Denied. (Original Post) peggysue2 Feb 2018 OP
All too common. MineralMan Feb 2018 #1
True, MM peggysue2 Feb 2018 #3
The brutal, greed driven health ins. system in the US has been appalachiablue Feb 2018 #25
They have no shame so it wouldn't work on them. BigmanPigman Feb 2018 #2
Shkreli is a disgusting human being peggysue2 Feb 2018 #4
Apparently he is a small fry Egnever Feb 2018 #18
My company self insures sarah FAILIN Feb 2018 #5
Oh God peggysue2 Feb 2018 #8
Early 2000's I worked for a company that fully self insured. Crash2Parties Feb 2018 #21
Used to work for a hospital Freddie Feb 2018 #27
I have a TBI, had seizures shortly after and spent over a year in ST and rehab ... uponit7771 Feb 2018 #6
Thanks for that! peggysue2 Feb 2018 #10
Thank you !! I have similar issues with working memory, focus and general weakness ... uponit7771 Feb 2018 #13
Big insurance is emboldened. They know nothing will happen to them under Trump. Vinca Feb 2018 #7
+1 Just getting ready to type this. LuckyCharms Feb 2018 #9
I think you're right peggysue2 Feb 2018 #12
Blue Cross. People here didn't want to believe my report on Blue Cross... Honeycombe8 Feb 2018 #11
The true death panels are the for-profit insurance companies. . . . nt Bernardo de La Paz Feb 2018 #14
The Blue Cross Blue Shield company mentioned in the OP is a not-for-profit company. WillowTree Feb 2018 #29
Oh, sharp eye. Thanks for the correction. . . . nt Bernardo de La Paz Feb 2018 #30
medicare too with rehab dembotoz Feb 2018 #15
They tried to pull that on my mother a few years ago, saying no rehab after 20 days pnwmom Feb 2018 #19
That's the truly horrible part . . . peggysue2 Feb 2018 #20
Thanks for sharing this. It's hard to see how this follows the law on Essential Benefits. n/t pnwmom Feb 2018 #16
It doesn't but there is no one who'll enforce the law. That's the problem . elehhhhna Feb 2018 #24
This is why we need universal healthcare. HopeAgain Feb 2018 #17
To be exact, we need single payer insurance. Sophia4 Feb 2018 #23
Damn Straight! area51 Feb 2018 #31
bcbs ok also just cut rural ok hospital reimbursement rates by 30%. Yep. elehhhhna Feb 2018 #22
Americans must continue to fight for single payer, universal appalachiablue Feb 2018 #26
BCBS of Oklahoma is one of the not-for-profit Blues. WillowTree Feb 2018 #28

peggysue2

(10,823 posts)
3. True, MM
Thu Feb 8, 2018, 05:02 PM
Feb 2018

But they seem to be getting worse. I had to fight Blue Cross/Blue Shield to get our bills paid when my son was injured. But he was never threatened with getting kicked out of rehab after two measly months. Or denying a respirator to an ALS patient?

It's beyond the frigging pale.

appalachiablue

(41,103 posts)
25. The brutal, greed driven health ins. system in the US has been
Thu Feb 8, 2018, 07:38 PM
Feb 2018

moving steadily worse in the last 15-20 years. It wasn't quite so bad with mom's care, 1998-2001.

Yes, insurers and Big Pharma are even more emboldened under this administration.

This barbaric, backward and profit-based US health system must be replaced with Medicare for all!

All the best to you and your brave son.

> ADY BARKAN, ALS patient just denied a respirator- wonderful courageous fighter and health care activist who's been speaking out in the media and working with groups to call out people's needs and reform. What a true hero and inspiration he is.

http://www.msnbc.com/msnbc/watch/health-care-activist-ady-barkan-slams-gop-after-house-approves-tax-bill-1119998531538

BigmanPigman

(51,567 posts)
2. They have no shame so it wouldn't work on them.
Thu Feb 8, 2018, 05:00 PM
Feb 2018

The GOP is as bad as the insur companies. They are greedy sociopaths. They lack feeling for any human and only care about themselves and how they gain and be benefit regardless of what they have to do to others to maintain their own, selfish agenda.

Remember that smug, smirky, little Pharm Bro Martin Shkreli? That is the face of the Big Pharm, Health lobbyists, and GOP money grabbing enablers. THEY DO NOT CARE!

You won't find any philanthropists like Carnegie and Rockefeller among them. At the end of their lives they had a contest about who could give away the most money after years of ripping the poor and weak off.

peggysue2

(10,823 posts)
4. Shkreli is a disgusting human being
Thu Feb 8, 2018, 05:07 PM
Feb 2018

I agree the GOP is nurturing this inhumane attitude, not to mention the level of cruelty the Trumpster and his crew are willing to dish out.

It continues to floor me. I do not understand how people can be so utterly heartless.

 

Egnever

(21,506 posts)
18. Apparently he is a small fry
Thu Feb 8, 2018, 07:05 PM
Feb 2018

There's a series on Netflix called dirty money. Episode three is all about the drug business and more specifically a company called Valeant. They were doing are still doing? the same thing on a much grander scale.

sarah FAILIN

(2,857 posts)
5. My company self insures
Thu Feb 8, 2018, 05:29 PM
Feb 2018

A friend's husband became paralyzed in a surgery that didn't go as hoped. While still in the hospital, the nurses didn't roll him and he developed bed sores on his heels and leg, then staph on his heels. Doctor wanted him on a suction pump and it helped but not fast enough. The insurance company took it away and he slowly had both legs amputated just below his groin trying to get ahead of the staph. It eventually got in his pelvis. I think he lived 3 years after the surgery. All for want of a suction machine.

peggysue2

(10,823 posts)
8. Oh God
Thu Feb 8, 2018, 06:22 PM
Feb 2018

How horrible. And how shameful for an insurance company to cause such needless suffering, all in the name of the bottom line. For the want of a suction machine.

I remember being scorched at Blue Cross/Blue Shield for denying bills that were clearly within our coverage program and complaining to my husband about the number of hours I spent on the phone arguing the case, point by point, sending reams of documentation. Made me realize that patients without an advocate to fight for them are really at the mercy of companies that have no mercy. Only spreadsheets.

Crash2Parties

(6,017 posts)
21. Early 2000's I worked for a company that fully self insured.
Thu Feb 8, 2018, 07:17 PM
Feb 2018

Because they were our insurers, managers had access to (some? many of? certain parts of?) our medical records. Anyone who was too expensive, well...let's just say they used to brag about how healthy their workforce was.

Freddie

(9,256 posts)
27. Used to work for a hospital
Thu Feb 8, 2018, 08:00 PM
Feb 2018

That was self-insured. One of my co-worker's husband was on the list for a liver transplant. Blue Cross, the plan administrators (actually the hospital administration), kept denying the transplant and related procedures. She knew what was going on; the hospital (oh so compassionate! We care about our patients!) was trying to run out the clock hoping he'd die before he could get the transplant. He didn't and eventually got the transplant, I believe attorneys were involved.

uponit7771

(90,301 posts)
6. I have a TBI, had seizures shortly after and spent over a year in ST and rehab ...
Thu Feb 8, 2018, 06:10 PM
Feb 2018

... is less traumatic than your son.

I pray his recover is full

peggysue2

(10,823 posts)
10. Thanks for that!
Thu Feb 8, 2018, 06:34 PM
Feb 2018

My son did recover after a long haul. But as you know, you do not get away clean after a TBI; there are always after effects and collateral issues. He's functional but still has issues with concentration and memory. Also a sleeping disorder and a general weakness on his left side due to a post-injury stroke.

That being said, considering where he started after the accident, stroke and multiple infections he's done pretty damn well. In fact, he had a small 'Lucky" tatooed on his chest a couple of years ago. It's a chilling reminder.

As for me? I don't need a tattoo. That period is forever burned into my gray matter.

Good luck with your own recovery.

uponit7771

(90,301 posts)
13. Thank you !! I have similar issues with working memory, focus and general weakness ...
Thu Feb 8, 2018, 06:45 PM
Feb 2018

... from hormone imbalance.

I too am thankful for having an understanding support system and people around who knew exactly what was happening.

I know in my heart your son one day will be giving the care he received, that's burned in my soul now.

LuckyCharms

(17,413 posts)
9. +1 Just getting ready to type this.
Thu Feb 8, 2018, 06:30 PM
Feb 2018

"Emboldened" describes it perfectly. I have been bombarded with letters of denial over the past month. Some for relatively big things, and some for them wanting me to try a cheaper drug.

They have always done this, but the pace lately has gotten ridiculous.

peggysue2

(10,823 posts)
12. I think you're right
Thu Feb 8, 2018, 06:38 PM
Feb 2018

I had my battles with the insurance companies but this atmosphere seems much worse than before. The Trumpster wallows in the cruelty he creates for others. Hardly a role model for businesses who profit from suffering.

Dispicable really

Honeycombe8

(37,648 posts)
11. Blue Cross. People here didn't want to believe my report on Blue Cross...
Thu Feb 8, 2018, 06:37 PM
Feb 2018

when I tried to find doctors who would take the lousy HMO insurance (that cost about $1k a month, but I got the subsidy).

Blue Cross is scamming the system, IMO.

My latest with BC is that for the FREE PREVENTIVE exam we are all supposed to get once a year, BC refused to pay $63 of it. Which meant I had to pay it. So much for a FREE PREVENTIVE EXAM.

Blue Cross's position is: what are YOU going to do about it? WE are the ones in control. And they are. The insurance companies run the entire health care system.

pnwmom

(108,955 posts)
19. They tried to pull that on my mother a few years ago, saying no rehab after 20 days
Thu Feb 8, 2018, 07:05 PM
Feb 2018

because she wasn't improving. But that wasn't actually the law. The current law says that there are full benefits for 20 days and benefits with a co-pay for up to 100 days as long as the rehab is necessary to MAINTAIN or improve the patient's condition.

So I had a fax war with the nursing home in my mother's state, sending them copies of the actual law, till they broke down and acknowledged I was right.

It was to THEIR benefit to change their policy and FOLLOW THE DAMN LAW because Medicare pays a higher amount than Medicaid, so they should want patients to stay on Medicare as long as possible.

When my mother walked out of that nursing home, 80 days after entering, staff stood there and clapped for her.

(Unfortunately, the co-pay is quite a bit higher now than it was then. Everyone on Medicare should have a Medigap policy, which would take care of the copay.)

peggysue2

(10,823 posts)
20. That's the truly horrible part . . .
Thu Feb 8, 2018, 07:14 PM
Feb 2018

because you cannot use a one-size-fits-all attitude for TBI. Or really any other injury. Every TBI is different and every patient is different. Younger patients generally heal more quickly but depending on the extent and location of the brain injury and the general health before injury, the time required for rehab rocks in all directions.

Early, aggressive rehab can make all the difference for brain-injured patients. The rule of thumb when my son was injured was whatever you get back in the first 6-9 months is what you'll be living with. You can make small, incremental progress after that but the really big leaps are made early on. Which makes early and steady physical therapy, occupational therapy, cognitive therapies, etc. so crucial.

To cut people off from that aid is to cut them off from a functional recovery. Which is cruel and heartless to the extreme.

 

elehhhhna

(32,076 posts)
24. It doesn't but there is no one who'll enforce the law. That's the problem .
Thu Feb 8, 2018, 07:28 PM
Feb 2018

Laws and regs are meaningless if not enforced.

HopeAgain

(4,407 posts)
17. This is why we need universal healthcare.
Thu Feb 8, 2018, 07:00 PM
Feb 2018

The Insurance companies have a conflict of interest with the health of the insureds.

 

Sophia4

(3,515 posts)
23. To be exact, we need single payer insurance.
Thu Feb 8, 2018, 07:27 PM
Feb 2018

Let's take care of ourselves as a society. Why have greedy for-profit insurance companies doling out money for our healthcare. Let's be our own boss. Let us hire the managers of our health insurance companies. They should answer to us, not the other way around.

 

elehhhhna

(32,076 posts)
22. bcbs ok also just cut rural ok hospital reimbursement rates by 30%. Yep.
Thu Feb 8, 2018, 07:26 PM
Feb 2018


Impossible to absorb. Literally impossible.

appalachiablue

(41,103 posts)
26. Americans must continue to fight for single payer, universal
Thu Feb 8, 2018, 07:56 PM
Feb 2018

Medicare for All like CANADA and other advanced nations have had for decades!

TOMMY DOUGLAS, greatest Canadian and social democrat politician who established 'Medicare for All' in the early 1960s.

Latest Discussions»General Discussion»Not Healing Fast Enough? ...