# General Discussion

Related: Editorials & Other Articles, Issue Forums, Alliance Forums, Region Forums# In December of 2013 I was told I have FTD and probably had 2 years of quality life left

For a short time it was thought I had ALS too. Turned out I don't have ALS. As you can tell, I still have some quality left in me.

Here is the link to the story I used to explain FTD: https://www.nytimes.com/2012/05/06/health/a-rare-form-of-dementia-tests-a-vow-of-for-better-for-worse.html?_r=1&pagewanted=all

Each patient advances at their own rate. For me, so far so good.

I'm on Trazadone to slow the advance of FTD. Studies in Great Britain show that Trazadone for some reason does help with that.

I'm still able to get around and communicate. I need to lose a few pounds since I'm pre-diabetic.

I have helped raised over 1.5 million dollars for Biden-Harris: https://www.democraticunderground.com/100214084917

Anyway I get asked from time to time how I'm doing. For now I'm doing fine.

Regards,

OS

**89 replies**= new reply since forum marked as read

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#### niyad

(118,458 posts)#### elleng

(135,093 posts)#### LiberalLoner

(9,924 posts)#### maryallen

(2,172 posts)It takes guts to keep fighting.

#### blaze

(6,741 posts)I was pretty upset when you shared your diagnosis and have worried, along with many other DUers I'm sure, about how everything was progressing.

I'm so glad you're still being you!!

#### marybourg

(13,002 posts)#### Sherman A1

(38,958 posts)#### monmouth4

(10,036 posts)#### AnotherMother4Peace

(4,588 posts)keeping us focused on the importance of financial support of our candidates and keeping things positive and your kindness. I was wondering how you were doing. I remember when you first posted about your condition way back when. Thank you for the update. I appreciate you.

#### Demsrule86

(70,707 posts)you are doing well.

#### PatSeg

(49,574 posts)#### matt819

(10,749 posts)It's wonderful to see someone beat the odds.

BTW, your fund-raising efforts go beyond the money raised via DU links. Due in part to your efforts here, I periodically respond to Biden e-mails directly and donate there. Not a lot of money, but I guess every dollar helps. Or, in your case, every million or so dollars help.

Whatever the prognosis, I hope you continue to do well.

#### catrose

(5,211 posts)#### crickets

(26,146 posts)Stay strong.

And bravo on your Act Blue campaign for Joe, Kamala, and DUer duhneece. It's amazing how much money you've helped raise.

#### Omaha Steve

(102,762 posts)Response to crickets (Reply #12)

Omaha Steve This message was self-deleted by its author.

#### denbot

(9,908 posts)Thank you for using your time left to the greater good.

#### nolabear

(42,803 posts)When I lose hope for better days or some relief from gloom, I remember you and others who just don’t give up. I don’t doubt it’s hard as hell but I’m delighted you’ve been around here and man, we’ve sent a TON of money to Biden and Harris! Thank you more than I can say for that!

DU is given a gift in our OS

#### UpInArms

(51,644 posts)#### cayugafalls

(5,739 posts)So glad you are beating the odds and doing OK.

#### Bradshaw3

(7,916 posts)Our preferred candidate didn't win the primary but you have continued your efforts, doing more for Biden than anyone here. A shining example of a true blue Democrat. Wish you continued success in your battle.

#### duhneece

(4,216 posts)OS inspired me, inspired so many DUer over the years.... and is beating the odds.

I think his activism is extending his life... and the quality of mine.

The rest of DU has no idea how much Omaha Steve has been helping me besides fundraising. His technical know-how and political instincts mean I sometimes contact him multiple times in just one day.

I can’t adequately express my gratitude.

#### Bradshaw3

(7,916 posts)Good luck. I lived in the Four Corners for awhile, a ways from you, but I know your area. Don't know OS but I believe what you say is true.

#### duhneece

(4,216 posts)Some folks hear New Mexico and think Santa Fe.

#### Bradshaw3

(7,916 posts)Don't know about your area. I have a friend who covered the statehouse in NM. No offense to the Enchanted State, but she said it was kind of a joke. Hopefully it's not that way now or maybe you and others can change the culture.

#### duhneece

(4,216 posts)Even I have to confess I grew up in El Paso Texas....

#### peacebuzzard

(5,222 posts)you are doing such a great job! Thank goodness OS has this going for you.

every little bit helps I know.

#### duhneece

(4,216 posts)We’re doing all we can here. For ALL of us.

#### duhneece

(4,216 posts)We’re doing all we can here. For ALL of us.

#### turbinetree

(25,145 posts)Response to Bradshaw3 (Reply #19)

DoBotherMe This message was self-deleted by its author.

#### iluvtennis

(20,569 posts)#### chia

(2,329 posts)I'm so glad you're here.

#### CaliforniaPeggy

(151,506 posts)And I was so afraid that we would soon lose you!
*I have never been so glad to be wrong.*

Keep on keepin' on!

#### duhneece

(4,216 posts)Your message echos.

#### rurallib

(63,030 posts)It made me very sad to see such a bad thing happen to such a great guy.

As the years have gone on (has it really been 7 years??) and the followup dreaded announcement never came, my sense of hoping for the best has changed to a big cheer that you are still around and not just surviving but leading.

I have learned so much from you over the years. Here's to your continued health

#### Dem2theMax

(10,147 posts)I really do. Keep doing what you are doing, Omaha Steve.

Doctors don't know everything, and you have certainly proved that! DU is lucky to have you!

#### lillypaddle

(9,605 posts)reading what you have written. So happy for you that you are doing well. Keep it up.

Best to you, OS.

#### duhneece

(4,216 posts)That’s what my doctor calls my MS. Indolent, lazy conditions proceed more slowly. Steve is beating the odds.

#### ms liberty

(9,672 posts)#### BlancheSplanchnik

(20,219 posts)I’m so happy, I remember your previous post which made me terribly sad.

This is great to hear you’ve been doing well all this time!

Keep at it!!

#### Karadeniz

(23,169 posts)#### marieo1

(1,402 posts)Sending Blessings and hugs your way..........thanks for sharing!! I didn't even know what FTD was until I read your post. Stay safe and keep posting!!

#### Lucky Luciano

(11,382 posts)#### saljr1

(282 posts)and for being a caring American. God Bless🙂

#### LymphocyteLover

(6,363 posts)#### LAS14

(14,322 posts)#### bigtree

(89,175 posts)...

#### Roy Rolling

(7,140 posts)Your posts are my first news read every day.

#### gademocrat7

(11,036 posts)Appreciate you! Take care.

#### AllaN01Bear

(22,592 posts)#### Omaha Steve

(102,762 posts)https://www.theaftd.org/what-is-ftd/disease-overview/

FTD is the most common form of dementia for people under age 60.

It represents a group of brain disorders caused by degeneration of the frontal and/or temporal lobes of the brain. FTD is also frequently referred to as frontotemporal dementia, frontotemporal lobar degeneration (FTLD), or Pick’s disease.

I'll be 64 next January.

#### AllaN01Bear

(22,592 posts)#### AllaN01Bear

(22,592 posts)i turned on 15 th of this month.

#### kcr

(15,494 posts)So glad to see you're still posting on DU and going strong

#### malaise

(276,242 posts)#### tblue37

(66,035 posts)#### Guy Whitey Corngood

(26,744 posts)noticed you still seemed like your old self. So, I'd hoped they got the diagnosis wrong.

#### tazkcmo

(7,419 posts)The frosting on the cake, the cherry atop the sundae.

Salute, OS.

#### Stuart G

(38,726 posts)I'm very thankful you are here and share your wisdom and experiences with us.Thank You Again

#### stuffmatters

(2,575 posts)#### cwydro

(51,308 posts)You've outlived their estimates by many years.

These stories give us all hope.

Keep on keeping on!

#### backtoblue

(11,627 posts)Thanks for all the work you have done!

#### littlemissmartypants

(24,232 posts)#### N_E_1 for Tennis

(10,529 posts)Everything will get better!

#### pansypoo53219

(21,558 posts)#### KT2000

(20,755 posts)were doing. Your posts have been good and no sign of trouble so thanks for the update. And congrats on the fund raising - Wow!

#### a kennedy

(31,599 posts)and you’re our $$$$$ life of the campaign. Stay strong, and thank you for ALL you do.

#### joanbarnes

(1,850 posts)I always look for your posts. I am going to Omaha for the first time soon for Mr. Barnes' medical testing.....always thinking of you...

#### Maraya1969

(22,934 posts)#### warmfeet

(3,321 posts)Based on your content here, at DU, you are doing very well indeed.

#### lostnfound

(16,492 posts)Peace.

#### Gore1FL

(21,665 posts)I have a genetic predisposition for pretty severe dementia. I haven't fulfilled that destiny as of yet.

You rock, Omaha Steve. You prove there is life beyond diagnosis. You prove there is life.

Thank you-- from someone who expects to follow a similar path.

#### Niagara

(9,056 posts)I always try to kick your ActBlue support updates on the daily. I might miss a few here and there, but you are much appreciated and I'm glad that you're with us.

#### peacebuzzard

(5,222 posts)I hoped maybe it was resolving and you were back to business as usual.

I wish you the very best. You are such a treasure to get the DU political contributions going with such success.

Thanks for all you do. I wish you many years of health. I hope the disease process halts and stays controlled.

stay well, Steve.

best,

#### we can do it

(12,711 posts)#### applegrove

(122,073 posts)#### sprinkleeninow

(20,477 posts)#### DFW

(56,112 posts)As we say here in Germany, "weiter so!" ("keep it up!" )

#### blogslut

(38,508 posts)#### appalachiablue

(42,533 posts)us steady for a long time! Positive vibes & love to you and yours.

#### smirkymonkey

(63,221 posts)You are so appreciated here and we hope you will be around for a very long time! You are a true asset to our community! Please take care!

#### JudyM

(29,491 posts)#### WhoWoodaKnew

(847 posts)#### Fortinbras Armstrong

(4,473 posts)She died two years later.

#### highplainsdem

(51,666 posts)#### CaptainTruth

(7,113 posts)#### NancyDrew

(6 posts)I am a long time lurker (since early George W. years) but I stay quiet. But for such good news as this I just have to speak up and tell you how very happy I am that you're doing so well. I'm also glad to hear that you've found a medication that is working well for you. I know this med as my hubby takes it. Been around forever so it's well studied (safe) and, even better, super cheap!

I recall 7 years ago when you shared your diagnosis and the prognosis. It was mighty grim but you have proved that there's always a patient somewhere who doesn't follow the typical path. That 5%, 10%, or whatever % of all the ones diagnosed that can maintain their health. I'm sure that your experience is what gives hope to others with the disease.

And as someone who loves old movies and TV shows, I have to take this opportunity to tell you how much I enjoyed your wonderful posts about meeting celebrities and your great photos too. Thank you so much for for sharing them.

May the disease slow to a snail's crawl and you have many more years to enjoy life!