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Related: Editorials & Other Articles, Issue Forums, Alliance Forums, Region ForumsWe need to admit there are some problems to be worked out, my situation is similar to Will's
My son is HIV positive. He has been under one program receiving his meds since last July. He was told not to worry, that the program would automatically and seamlessly convert to ACA in January. When he went to pick up his meds in January, it hadn't converted and he was asked for $2000 for his medication. He's been jumping through hoops without meds since January. Going off meds with HIV is dangerously complicated. He may no longer be able to take the same med that had no side effects because the virus can become immune to the drug during the lapse. This finally has been resolved and he goes back to begin treatment next week.
Almost 4 months without meds. Can you understand the panic and anger associated with that?
I only found out about this earlier this week. My son did not want to worry me.
MADem
(135,425 posts)Contact the doctor and ask for help resolving this issue and see if he or she has samples to tide your son over.
Find the nearest AIDS OUTREACH CENTER and see if they can offer help/advice.
Don't know where you live, but go on the Healthcare.gov site and get a phone number to call locally to have someone help your son transition his plan.
Tell your son he did you and himself no favors by "not worrying" you and he is not to do that ever again--you could have helped him solve his problem; instead, he has compromised his health.
Skidmore
(37,364 posts)address the issue of pharmaceutical pricing and distribution.
iwillalwayswonderwhy
(2,601 posts)And we did have a long talk about not worrying me.
Heidi
(58,237 posts)associated with a loved one's survival being jeopardized.
I'm very, very glad that your son can soon resume treatment, iwillalwayswonderwhy.
iwillalwayswonderwhy
(2,601 posts)Was that if he went back in a robbed the pharmacy that he'd get put in jail--and get his meds.
Heidi
(58,237 posts)I believe that timely access to medical care is a human right.
iwillalwayswonderwhy
(2,601 posts)jeff47
(26,549 posts)And in fact, lashing out makes it harder to fix.
If I'd been on the jury for Will's post instead of a "leave it" person, his post gets hidden - it's a baseless attack on the wrong person.
The advice in that thread got Will's wife her medication in a day.
Post gets hidden, he doesn't get advice. His wife doesn't get her medication.
Rage is fine. Just don't throw it about wildly.
RetroLounge
(37,250 posts)Then tell me, what EXACTLY was the result of someone here telling a politician to fuck off?
Give me a measurable actual metric of the result.
What EXACTLY happened outside of the little DU bubble?
Please, proceed...
RL
jeff47
(26,549 posts)Because my post included other words besides "rage". They might actually have meaning. I'd suggest looking in the vicinity of the word "baseless".
Cha
(297,029 posts)Yes, I can understand the panic and anger.. but, not raging ugly vile vindictives on someone who had nothing to do with it.. that didn't help.
iwillalwayswonderwhy
(2,601 posts)Who do you get mad at when life saving meds are cut off cruelly under the name of affordable? The medication should be continued while the hoops are being jumped, not cut off until afterwards. In my opinion, of course.
Cha
(297,029 posts)gladly have tried to help if he knew about it.
Skinner (59,110 posts) Thu Mar 20, 2014, 05:56 AM
1. My opinion is that the ACA is the single most important piece of social legislation of my lifetime.
No, wait. That isn't my opinion -- It is a fact.
I've read posts by DUers trying to tear it down for the last six years, and frankly I've found their arguments to be unconvincing. No, wait, that's not quite right. The truth is that I've found their anti-ACA crusade to be wrong-headed and maybe even a little offensive. I get that many of them are motivated by a desire for single-payer. I am also myself a supporter of single-payer. But I think wishing for the Affordable Care Act to fail is about the worst possible way to fight for single-payer. In fact, I think they are playing into the hands of Republicans who want the whole thing repealed. We sure as hell aren't going to get single-payer if the ACA is killed. More than likely we'd end up back with the shitty system we had before -- or something even worse.
http://www.democraticunderground.com/12595334
iwillalwayswonderwhy
(2,601 posts)Is stating a problem hate?
Cha
(297,029 posts)cut off cruelly under the name of affordable?" Get mad but don't go off like this guy.. as I said in my previous post.. "Yes, I can understand the panic and anger.. but, not raging ugly vile vindictives on someone who had nothing to do with it.. that didn't help."
http://www.democraticunderground.com/?com=view_post&forum=1002&pid=4686372
I said that didn't help and it doesn't. There's a big difference between being "mad" and going off like a ..
iwillalwayswonderwhy
(2,601 posts)Other than to post some beatific pic of the president and some opinion of how wonderful the Affordable Health Care Act is.
There is stuff to work on and cracks wide enough that real people are falling through. You want people who fall through those cracks to go unnoticed.
Under the circumstances, you shouldn't expect that me to get out the pom poms.
Cha
(297,029 posts)really sorry the pic of the President and Skinner's post offends you.
I didn't expect you to do anything but respond to what I was saying which was there's no reason to go off on Obama like a rabid dog.. But, I can see you'd rather go around in circles.
Still glad your son is getting the help he needs and I hope he has no future problems.
iwillalwayswonderwhy
(2,601 posts)Fine. I didn't and will not go off on the president like a rabid dog, because I agree, it's not helpful. But neither is saying that Obama would help my boy if he knew, because that isn't reality either nor does it help.
Look, this has been a very worrying situation and I have lost sleep over it. It feels to me that you are suggesting I sit down, shut up, and praise the president.
ScreamingMeemie
(68,918 posts)on a thread where you were sharing your story. I again state that I wish we cared more about our fellow DUers than we do about a politician. You and your son are in my thoughts.
Rex
(65,616 posts)You do have to wonder about people that don't actually listen to what you say in a thread, they just keep saying the same platitudes about the POTUS and never address you personally.
Thankfully it is only a handful of people here. Most of us listen and have empathy. Hope your son will be okay, going without meds is really really dangerous...happened to me at the beginning of this year. Had to make an emergency call to my GP on his personal phone, his 'office' was giving me the run around and not solving my problem.
It was very scary to think I was going without the meds I needed daily.
Bluenorthwest
(45,319 posts)I am so sorry you had to face that calloused attitude here on DU.
City Lights
(25,171 posts)Despite their claims otherwise. For some, everything is always about the POTUS. He is at the center of their universe.
WorseBeforeBetter
(11,441 posts)THAT is "Obama Derangement Syndrome."
I wish all the best for you and your son.
iwillalwayswonderwhy
(2,601 posts)Glitterati
(3,182 posts)iwillalwayswonderwhy
(2,601 posts)I thought it might be "utter f *ing b.s."
Which kind of fits, too.
Glitterati
(3,182 posts)that does fit as well!
Both are correct.
WorseBeforeBetter
(11,441 posts)Glad someone else answered your question, I'm just logging on from last night. Think I need to bookmark this thread and use it anytime a BOGer hurls the ODS accusation. This is it, in its purist form. Ah, "purity" -- another of their many issues...
http://www.democraticunderground.com/?com=view_post&forum=1002&pid=4701830
iwillalwayswonderwhy
(2,601 posts)Lecturing a mom worried about her son with some weird iconic shrine complete with little cartoon worshippers.
WorseBeforeBetter
(11,441 posts)I just finished Gone Girl (very late to that party!), so "vindictiveness" is fresh on my mind. The BOG's crowning achievement is getting BBI banned, and many of them are going after Pitt with a VENGEANCE. They're not going to let up until he's gone.
And there's definitely a pattern with some replies: accuse the target of being offended, assign emotions to the target. Comparisons to a rabid dog going 'round in circles? Classy. Tossing out "nonsense" and "absurd" are other favorites.
I almost want January 2017 to get here just because I'm so sick of Cheer Squad. But be careful what you wish for.
SwampG8r
(10,287 posts)to this same outcome for mr pitt exposes a cancer infecting du
it sickens me but at the same time I am glad because this is a rick warren moment on du
in 2007 I was one of those people,making excuses and changing the subject
rewriting the narrative as it was
then came the warren announcement and a lot of the people I was at that time in agreement with exposed an ugly homophobic face.
I rebuked the potus for the choice and was treated to the early version of the diversionary tactics you see today
ignore them its what they deserve and I don't mean put them on ignore because then you cant see the cancer eating the body up.
don't give them the attention they are begging for. don't engage them since all they want is to manipulate you into saying something,anything they can alert on
just don't even respond since doing so just lets them start a game of "I said the last thing"
WorseBeforeBetter
(11,441 posts)It's interesting to hear your experience re: Rick Warren. Cancer, indeed.
Response to iwillalwayswonderwhy (Reply #20)
Post removed
Douglas Carpenter
(20,226 posts)then allowing themselves to experience a little bit of empathy for what those less fortunate than themselves are experiencing
Glitterati
(3,182 posts)The last few days have been very illuminating, have they not?
WorseBeforeBetter
(11,441 posts)I can picture some of them in a rubber room after Obama's out of office. At least then maybe DU will get a break. Can't imagine this much lunacy over Hillary or any other Democratic POLITICIAN.
Glitterati
(3,182 posts)will go away.
But, yeah, the rubber room analogy is great. I can picture it as well.
Auntie Bush
(17,528 posts)You ain't seen nuttin yet. In 08 many had to go to a different site just to discuss Hillary or they were bombarded with contempt. I have my fingers crossed that it won't happen this time...especially if she is our nominee.
WorseBeforeBetter
(11,441 posts)because I view them both as cut from the same CorporateDem cloth. We have no idea how 2016 will play out, but if Hillary runs and wins, I'm not seeing the same slavish devotion to her as I see with Obama. And now that I've typed that, I realize how ridiculous it sounds. LOL I guess it's just wishful thinking on my part.
lostincalifornia
(3,639 posts)sabrina 1
(62,325 posts)situation with no mention of the President or Skinner. I would think that if either of those two people knew about the OP's situation they would not respond to it by 'pointing over there' with the intention of diverting from the very real human problems facing many, many people. I would expect them to offer some human empathy first, then see if there was something that might prevent others from ending up in such a life threatening situation.
Number #1 concern should not be to go into defensive mode.
The OP states they resolved the isssue. A more kind and helpful response might have been to ask them 'how' so that others facing the same situation could speed up the process.
And I'm not sure what posting Skinner's opinion of the ACA is supposed to do. Everyone, including Skinner is entitled to their opinion, they may even be right.
IF you are going to do that, then explain to those who perhaps don't agree where they wrong, give them HOPE.
One DUer eg, wrote a very civil post this week explaining in a logical manner that the ACA, while not perfect, can be the stepping stone to Single Payer in the future. That CAUGHT MY ATTENTION far more than 'look, Skinner is on our side'.
There are no sides in this. Lives depend on the HC system of any nation.
I LISTENED to that poster. Why? His attitude was not 'stfu' you're hurting our feelings and see, look who's supporting MY side.
It was 'I don't think you understand so let me explain how the ACA can lead to getting us what we want for everyone'.
That will give people more hope than slamming them with negative responses without even bothering to address their very real concerns.
Frankly what you are doing is going to have the opposite effect of what is intended. When someone has a sick loved one to worry about the very last thing on their minds is who agrees with them politically and who does not. Trust mr, we've been there and politics goes out the window when you are facing a life and death situation.
nadinbrzezinski
(154,021 posts)There are wide holes. No matter how many Pom Poms you bring out. In fact, this is sick at this point.
Union Scribe
(7,099 posts)The feelings of the person you're accosting in this thread are one million times more important than defending Obama, who doesn't know that you or this thread exist by the way, from some perceived slight that didn't even happen. Your replies in this subthread are some of the shittiest and out-of-proportion reactions I've ever seen on this site.
By the way, waving that quote from Skinner around like it's some holy writ allowing you to attack people here is shameful and I hope he sees it.
pnwmom
(108,973 posts)"Fuck you, Mr. President, you piece of shit used-car salesman."
"From my heart and soul, fuck you."
iwillalwayswonderwhy
(2,601 posts)No I haven't. I don't condone what he said, but I do understand it. I was not offended by a picture of Obama either, I just didn't feel a "rah rah ACA" post was appropriate in this thread.
My son was denied life saving medication due to a clerical error. Fix the error by all means. But his meds should not have been denied during the as it turns out, very lengthy correction process which has put him in danger.
And some folks should consider that they are lecturing a mother worried about her kid, instead of freaking out over a slur to someone who will never even see the slur.
lostincalifornia
(3,639 posts)I would be talking to the doctors, insurance company drug company, and even looking for plan B options like perhaps getting it through Canada.
Everyone deals with issues differently however, and some need an outlet to express their frustrations.
If I am looking for options on a forum, which usually isn't my first course of action, I post something describing the problem, and then solicit suggestions. I do not go out on a political rant, because I realize then I would need to filter through the helpful suggestions verses the political verbiage, and the objective at this point is getting the medications
Not everyone deals with things the same way though
iwillalwayswonderwhy
(2,601 posts)That it has been resolved, and that I only found out about it after it had been resolved.
But thanks for your input. You must be ever so much better than me!
lostincalifornia
(3,639 posts)the MEDS
Not the politics
and at the time the original post was made, his wife didn't have the ned.
appreciate you snakiness, you took my post in exactly the wrong way
typical
iwillalwayswonderwhy
(2,601 posts)I guess I don't get your point.
lostincalifornia
(3,639 posts)trying to say is that even though most of us can understand the frustrations Will experienced, at least some of us would approach it in the most direct way with the least distractions, (politics that is). That could come latter.
Also, people approach problems differently that is our different personalities
For example, you come home Friday night, check your mail, and you get a letter from a bill collector saying "you have an unpaid bill that you knew you paid, and are overdue, and they will get creditors after you". Its Friday night, their office is closed, you have received a threatening letter that you know is false. There are a few way to approach that problem. Of course most people would be frustrated with an unwarranted letter like that, and would naturally swear, rage whatever. After the rage dissipates however, one would realize that nothing could be resolved until the following Monday. In the meantime, rationality would take over you would probably gather your receipt, cancelled check whatever, and then set it aside to deal with on Monday.
I know it is a contrived example, and nothing as critical as needed medications, but I do understand the necessary emotional outlet that may be needed to get through the situation, it is just that too much emotion may get into the way of solving the issue.
As in your son's case no one should have to go through that frustration/helplessness of having to fight for lifesaving medication. That is unethical, immoral, and not what our society should be
I do not think we are on opposite sides of this, in fact I cannot see if anyone gave it serious thought how they could not empathize with the situation
iwillalwayswonderwhy
(2,601 posts)I didn't see that you were talking about Will.
However, in his case, his rant to me looked angry and hasty, and probably came after slamming the phone down. I don't believe he wrote a political rant INSTEAD of doing whatever he needed to do, but maybe BECAUSE of. I could be completely wrong, but that's how I took it.
lostincalifornia
(3,639 posts)We can empathize but no one can feel for anyone else pain or anxiety
I am sure he did everything he thought possible before his post, but the main problem is assuming what one person told him that there was nothing he could do about it was incorrect information
I guess as a programmer when I have a problem I don't solicit one consult, I analyze several sounding boards, and maybe that is what he did too but just reached his wits end
iwillalwayswonderwhy
(2,601 posts)You have lumped my comments and Will's comments together. Okay.
Bluenorthwest
(45,319 posts)by her son of his perilous situation until he had resolved it. This makes your comments inapplicable.
progressoid
(49,962 posts)ACA is about more about health insurance than heath care.
As for the "affordable" part, for some it might be. For me, not so much.
noiretextatique
(27,275 posts)but i am glad that ACA is helping some people.
Fred Sanders
(23,946 posts)people would not have had their "programs" "converted"?
Why the reluctance on detail?
Smells fishy.
iwillalwayswonderwhy
(2,601 posts)It is the truth.
pnwmom
(108,973 posts)I'm sure, as a parent, you would wanted to help, even if that meant burning the phone lines up every day.
treestar
(82,383 posts)So I'm thinking the same.
Maybe it's a state thing. Red states are going to make it as hard as possible.
iwillalwayswonderwhy
(2,601 posts)It was a clerical error. I posted in the other guy's HIV thread and he was very gracious and concerned and had some helpful suggestions.
I just do not think my son should have been denied the meds until the error was fixed.
Sancho
(9,067 posts)my wife is covered by a union contract and employee insurance. She's a school teacher. She is diabetic. When the school district changed insurance companies, it took about 3 months to get the meds straightened out. That happens every time you change insurance coverage. It's stupid and frustrating, but it happens even when ACA is not involved.
Of course, I'd rather have a single payer system. My experience traveling in other countries is that simple: I like those systems better - easier, cheaper, and the excellent quality.
I'm sure everyone can find a case of a foul up in single payer systems, but the current for profit mess in the US is simply nuts.
iwillalwayswonderwhy
(2,601 posts)To get him by for several months. You and I are saying the same thing. ACA is no different and people will fall through the cracks. What should the response to this be? Too bad so sad?
Sancho
(9,067 posts)and be proactive about complaining.
We found out that fussing with the drugstore or insurance company didn't seem to help much. The big players are the drug companies, employers (if they are involved), politicians, and even media.
When there's a foul up now, we make one call to the insurance company (usually doesn't help) and immediately call the company who produces the drug or medical device. Sometimes they will step in with the missing meds and even contact the insurance company. They spend millions on marketing and don't like system foul ups that keep them from selling the product!
My wife's internal meter ($5000+) was an example. The new insurance company didn't know if they covered it, etc. She called the medical company that supplied the meter and they were great. The manufacturer called her doc and overnighted the meter at no cost until the insurance company covered it! Then they called the insurance company and helped get it covered, and then called us to confirm we were settled.
Sometimes a doctor can be helpful, and some politicians will jump in.
Young people aren't always good at taking on the system, and I know it's frustrating.
Glitterati
(3,182 posts)dealt with this kind of bureaucracy in their lives.
Please try to consider that many previously uninsured people are now dealing with the intricacies of insurance companies and formularies for the first time in their lives.
It will take some time for some folks to learn the hoop jumping and fighting for their medical care.
crazylikafox
(2,753 posts)Never occurred to me in the past to just go directly to the manufacturer.
Glitterati
(3,182 posts)And, I know about it only because we couldn't afford my husband's meds many years ago.
I went to a charity organization for help paying my electric bill, and when we went over our bills, she got us on a program to get his meds for pennies on the dollar. Of course, we had to have the participation of our doctor and it was a every six month review, but we did get the meds inexpensively until we got back on our feet.
However, we would never have known about the program if we hadn't encountered a very knowledgeable charity coordinator.
Lots of hoop jumping and lots of fighting to stay on the program, but we managed.
jeff47
(26,549 posts)Donald Ian Rankin
(13,598 posts)And the AHA, in turn, is a small but definite improvement on what came before.
But it's only a sticking plaster on a gaping wound; what a first-world country needs is free-at-point-of-use healthcare.
Skittles
(153,138 posts)ignore it
jeff47
(26,549 posts)IMO, we're going to have to fight for two giant "healthcare" battles this century.
(This operates from the assumption that "single-payer" is done, and single-payer won as the better system. It's just not implemented everywhere yet)
First is going to be dental. We need better dental coverage in a hell of a lot of places. Way too often dental is an afterthought in medical coverage.
The second is the "drug war". With the pharmaceutical companies. Single-payer hasn't solved that, and it leads to enormous problems. Such as the topic at hand.
Donald Ian Rankin
(13,598 posts)I am not holding my breath for single payer in the USA.
jeff47
(26,549 posts)My point is knowing what works best and actually implementing that are two different steps. The latter does not automatically occur after the former.
randome
(34,845 posts)It's a condition I picked up at a brothel in Amsterdam.
Anger and panic? Yeah, that's easy to see from the way you explained it. Sounds like screwed up bureaucracy and paperwork, which is something else no one should have to put up with from any insurance provider. This is the 21st century, for Christ's sake! No one should have to wait for essential medication!
[hr][font color="blue"][center]I'm always right. When I'm wrong I admit it.
So then I'm right about being wrong.[/center][/font][hr]
gollygee
(22,336 posts)but it really is only a first step. It continues to have the faults that come with insurance companies. I don't think it creates new problems, but it didn't solve as many problems as a single payer system would have solved.
My hope is that it will get people used to the idea that healthcare doesn't have to be linked to employment, and that the government can be involved. And that people will want more to fix the problems that it didn't fix, and that will lead us another step ahead.
I'm so glad your son has his meds now. How terrifying that he didn't have them so long. I wish the ACA would have anticipated the problems people would encounter switching and would have had a back-up plan in place. Hugs to you and your son!
mercuryblues
(14,526 posts)stated it was a clerical error. So not really a problem with the ACA, IMO.
Autumn
(45,026 posts)Yes, there are problems to be worked out, and people will fall through the cracks. It's insurance policies they have always had "hidden" details.
theboss
(10,491 posts)I can't really make heads or tails of what exactly happened here. I'm guessing he was on some kind of state Medicaid type program, though I'm not sure why that would have been impacted by ACA.
The panic and anger is natural.
What I don't like is misdirected panic and anger.
MisterP
(23,730 posts)the election" in this current political climate
bvar22
(39,909 posts)...was the EASY part.
Getting these for Profit Vultures to actually deliver Health CARE will be the hard part.
jtuck004
(15,882 posts)insured their health did very good job. Maybe they had friends...
Zorra
(27,670 posts)They can engage in all manner of devious, evil practices, and people are forced by necessity to buy their products.
And they're all basically the same, some maybe slightly better than others.
uppityperson
(115,677 posts)Insurance companies suck. They are greedy money hungry mongers who exist to make as much money as they can. Insurance reform, health care reform is so needed because people should not have to make the choice between having a place to live and food to eat and their needed medicine.
It is so wrong. I was there with my infant child and the fear and panic and anger are very easily recalled. Years later and people are still dealing with this crap.
Best wishes for yours, hoping it works out. Sounds like a really good kid.
treestar
(82,383 posts)Especially upon start up.
No doubt this was true of Medicare, etc. But in the present time, computers, etc. make for even more possible problems.
Taking your word this is due solely to the ACA and no other causes, there could still be solutions which I am sure DUers will help with.
MineralMan
(146,282 posts)to problems. It's inherent in large systems. I'm very glad your son has found a way around this problem. I hope there are no long-term problems caused by his issue.
iwillalwayswonderwhy
(2,601 posts)My son is very laid back and tends to do as he's told and not make waves. He hates worrying anyone. I wish he had called me when it first happened. I would have moved heaven and earth.
nadinbrzezinski
(154,021 posts)Please consider a several tract route
1.- breath deeply, I told the same to will...it is to deal with the anger
2.- Contact the drug company directly, that worked for him
3.- contact constituent services for your son's reps at federal level.
4.- Insurance commissioner.
5.- hug your son tightly, you should not have to do this. At all.
6.- Companies hate bad press, local press.
Oh and like I offered Will, let me know if I can help in any way. I will try my best to help.
And after reading more, glad it was solved. What we need is a collection of actions that work, because a lot of people will be in that boat, especially at the beginning.
itsrobert
(14,157 posts)Nobody here has the said there are no problems.
I think you are off-base in your assertion.
Sorry about the delay for your son's meds, but you don't need to be demanding, "we need to admit there are problems to be worked out...'
Do you admit, "Fuck Obama, Fuck Obama to Hell, fuck you, you used car salesman" is not a proper way address problems with the ACA?
LuvNewcastle
(16,843 posts)Another one died less than a year ago. AIDS isn't talked about as much as it used to be, but people are still contracting HIV and people are still dying of AIDS. It's unconscionable that anyone nowadays should be denied AIDS medication, regardless of the situation. I also have friends that have had AIDS for 20+ years, but they are getting along fine, and it's all because they take their meds as they should and they take care of themselves. People can live with AIDS for a very long time these days, thanks to all the new treatments for it. I hope this never happens to him again, and I hope people work for a solution to this problem so that no one else is deprived of their right to a happy and productive life.