In need of prayers, good feelings any thing that might help. I have written about my severely

[jwirr]

disabled daughter her often. She has seizures, developmental disability and digestive problems. Does not talk, can no longer walk, needs full care. I cared for her for the first 45 years of her life and she is now in a foster home at the age of 56.

For the last year she has gone from 8-10 seizures a month to 2 a month. Several days ago she had a terrible seizure. It lasted 12 minutes and she was rigid during the whole thing scraping the inside of her arms and other damage. We have no idea what is happening to her or why. Have a full physical scheduled in two days.

Please pray for her or whatever form of thoughts you use in emergencies. Her name is Terri. Thank you.

[KT2000]

1. Will do -

sending good thoughts and best wishes to Terri. To you too!

[a kennedy]

2. Positive thoughts and hugs....

[Lifelong Protester]

3. I will send positive thoughts

and prayers your way.

I'm not sure if this helps, but as I read this a lovely ruby-throated hummingbird came up to my feeder-so I am sending the good feeling from seeing that your way (I'm sorry if that seems a little 'out there' but I see nature as healing).

[Wait Wut]

4. I will send all the positive thoughts I can...

...to Terri, and to you. I can't imagine.

[elleng]

5. WITH you and Terri, jwirr.

[alsame]

6. Sending positive

vibes and hugs for Terri - and for you too

[Squinch]

7. Absolutely.

Hang in there jwirr. I wish you and Terri health and peace, and quick relief from this terrible worry

45 years is amazing. There is nothing harder, and you did it for 45 years.

You are in my thought.

[Coventina]

8. Holding both of you in my heart.

[frylock]

9. positive thoughts coming your way

[newfie11]

10. Done. Nt

[louslobbs]

11. Keeping you in our thoughts here in CA. May you find peace in this difficult struggle and we wish

all the best for Terri. I can't even Imagine how painful this is for everyone involved.
With heartfelt thoughts and love,
Lou and family

[WinkyDink]

12. {{{Terri and you, jwirr}}}

[msanthrope]

13. Positive thoughts!!!! nt

[shenmue]

14. Lord have mercy

[freshwest]

15. ((((HUGS Terri and jwirr))))

[sheshe2]

16. For you jwirr and Terri.

{{{{ }}}}}

[JI7]

17. .

[kairos12]

18. Strength and peace to you.

[In_The_Wind]

19. My positive thoughts are with you and your daughter.

[StarryNite]

20. Positive thoughts...

to Terri and you.

[calimary]

21. Damn. I'm so sorry to hear this.

All I can say is - I certainly will keep you in my prayers. I know we all will. I just wish we could do more.

[HangOnKids]

22. For Terri

[winter is coming]

23. Prayers for both of you.

[rurallib]

24. My most sincere hopes for your daughter

and of course for you.

[onecaliberal]

25. Definitely will

[Sassysdad]

26. Thoughts

and prayers.

[brer cat]

27. Will do, jwirr.

Praying for both of you.

[pnwmom]

28. Thoughts and prayers for Terri, and for you, jwirr.

[malaise]

29. Sending good vibes for Terri

[DUgosh]

30. Yes

Yes I will.

[historylovr]

31. Will do.

[NYC_SKP]

32. Good vibes to Terri, what a beautiful child.

[secondwind]

33. Awwww... my heart goes out to you! I will surely send out a prayer to the powers that be, to be

vigilant over Terri...

[HockeyMom]

34. My good vibes go out to BOTH of you

Your daughter is so, so fortunate to have a parent like you. From your post, I will assume you must be a Senior yourself. Having worked with adults with these special needs, I know how difficult it is, especially for someone who is older themselves.

Your love for your daughter has gotten her this far in her life. You are a wonderful parent. Good vibes to BOTH of you.

[FailureToCommunicate]

35. Prayers... and more prayers for your strength!

[WillowTree]

36. Consider it done. Also, consider it ongoing........for both of you.

[magical thyme]

37. more healing vibes headed your way, for Terri and for you...

[lovemydog]

38. Sending good thoughts

to you and your daughter jwirr!

[hopemountain]

39. good thoughts to you and your loved ones

[democrank]

40. Bless you, jwirr.

And bless Terri.

[cilla4progress]

41. Blessings.

...

[Mnemosyne]

42. ...

[mcar]

43. Positive thoughts to your dear daughter

And to you jwirr for your love, support and strength.

[fadedrose]

44. I hurt for you...

and will ask Whatever it is that listens...to help Terri, you and your family...

[Marshall III]

45. Prayers, certainly.

For comfort and strength.

[KoKo]

46. Sending you good thoughts wishes and (((vibes))) for Terri..

[TBF]

47. Sending you both positive vibes

and lots of virtual hugs ((Judy and Terri))

[meti57b]

48. May she be healed.

[LiberalEsto]

49. so sorry ... good vibes to you and your daughter

[Peacetrain]

50. We will keep Terri and all her family in our thoughts and prayers

[Mz Pip]

51. ...

⭐️

[Lint Head]

52. Peace to her. I know it has to be frustrating.

[locks]

53. Thinking of you and your daughter

Over 100 families from around the world have moved to Colorado so that their children who have uncontrolled seizures could be given a strain of cannabis high in CBD and low in TCH. It is called Charlotte's Web after 7 yr old Charlotte Figi from Colorado Springs whose parents had tried every possible medicine and whose life literally has been saved by taking this strain of cannabis in oil form. It has helped so many that it is getting amazing publicity. Please refer to Realm of Caring and CNN for more information.

[jwirr]

58. Yes, MN Senate has voted to legalize medical mj for that very reason. I have been lobbying our

reps. That may be one of the hopes we have.

[nomorenomore08]

69. Have you considered making an OP about this subject? It's certainly important enough. n/t

[gademocrat7]

54. Sending healing thoughts and prayers.

[Starry Messenger]

55. (((Hugs)))

[DeSwiss]

56. K&R

Cannabis and seizures

[Iwillnevergiveup]

57. Jwirr, the care, love and devotion

you have shown your daughter for so many years qualifies you for sainthood. I'm sending positive, healing thoughts your way for Terri. And for you, peace and comfort in the knowledge of your incredible good deeds as her mother. Please report back to us on the outcome of Terri's physical. We care about you both.

(((((Terri))))) (((((jwirr)))))

[Auntie Bush]

59. Sending healing prayers and good thoughts to Terri.

Bless you too jwirr...get some sleep tonight and good luck with her physical.

[grasswire]

60. check your PM, jwirr nt

[pacalo]

61. That must be a mountain of worries for you, jwirr.

I'll pray for both Terri & you. I hope the physical will reveal to the doctor how to help Terri.

I'm so sorry for your pain.

[lunasun]

62. Be well Teri !

hope it was a one time experience
For the last year she has gone from 8-10 seizures a month to 2 a month. that is a good thing

[Boomerproud]

63. Sending prayers for healing to your daughter

and prayers for strength to you.

[840high]

64. Prayers for you and Terri.

[PADemD]

65. Sending Reiki energy to Terri

[Demo_Chris]

66. Good vibes. nt

[libodem]

67. Love and light

Sent your way.

[cherokeeprogressive]

68. Prayers and good vibes for you and Terri.

[nomorenomore08]

70. Good thoughts to your family. Whatever happens, I hope her suffering is minimized

as much as possible.

[RainDog]

71. You are yours are in my thoughts

Are you aware of the reports among parents with children with epilepsy and autism about the positive results of medical marijuana for those with these issues?

also - marijuana causes remission of symptoms in Crohn's disease and is also used for people with IBS.

For someone in such a situation, simply eating a small amount of marijuana butter before sleep would be enough to see if your daughter would benefit.

http://www.epilepsycolorado.org/index.php?s=10784&item=5985

http://www.cghjournal.org/article/S1542-3565(13)00604-6/abstract

[demigoddess]

104. I second this

I have a 42 year old severely handicapped daughter with many of the same problems you describe. Marijuana butter has been a real help. Adding to the prescription drugs that did not complete the job, she has been happier, not hitting herself nearly as much and eating better.

[sueh]

72. (((hugs))) and prayers for you and Terri.

[spanone]

73. .....

[Ilsa]

74. I'll pray for Terri.

I'll keep it up, too.

[PumpkinAle]

75. Sending you and Teri

Love, Light, Positive thoughts and hugs.

[stevil]

76. Prayers for Terri

Love

[Tuesday Afternoon]

77. sending positive vibes, healing energy and peacful prayers to Terri and you.

[alittlelark]

78. ......

[Jenoch]

79. You are indeed a special mom

who has taken care of of a special child for so many years.

My family and I will this Sunday will be praying for peace for your daughter.

[Unknown Beatle]

80. Prayers and positive thoughts

to you and Terri.

[Hekate]

81. Best wishes for you both in this hard situation

[unionthug777]

82. best wishes to both of you !!

[mia]

83. Best wishes for you both.

You'll be in my thoughts and prayers today.

[myrna minx]

84. My heart is with you both.

[appacom]

85. Blessings to you and your family.

[MannyGoldstein]

86. God bless you and Terri

So much love for your daughter. To have a child with disabilities is such heartbreak, so difficult.

[sorefeet]

87. At least try a CBD adjunct

call Colorado and have someone send you an extract of cannabis cbd or drive there and get some. You are a wonderful caring and amazing person and you owe it to your daughter, yourself and the many others with the same problem. If it works, great, spread the news. After 56 years I would have to know the answer It has worked for hundreds, just maybe it will work for Terri.

[Gothmog]

88. Your daughter will be in my prayers

[irisblue]

89. (((vibes)))

for both of you.

[cntrygrl]

90. This is so sad. Prayers sent. n/t

[Jefferson23]

91. I am so sorry to hear your loved one can't live with you with all the assistance she and you deserve

I hope for her and you the results of her physical finds her some relief.

For Terri, may you receive all the help you need and to you jwirr, the strength to endure
such a painful time as you stand by her.

[jwirr]

93. We actually had a lot of assistance and I am very grateful for those years. What ended with her

going into a foster home was that I cannot lift and move her anymore. One blessing I was able to totally train her foster family into taking care of her my way. We have also had very good doctors and health care. There are benefits to being poor when there is an illness in the family.

[Jefferson23]

94. I am glad to hear you had relief, you both deserve it, very much so.

Peace and all the best to your daughter and you.

[jwirr]

92. Many thanks for the love. So far she has not had another seizure. And this time her foster parents

are ready to help her with the damage that was done to her arms, etc. We had never seen a seizure like this before. She has always had 5 different kinds of seizures - mostly under control except the one kind. This came as a complete surprise especially when she had seemed to actually getting better.

When we go to the physical we will get Dilantin levels and that will help us understand some of it. I hope.

[merrily]

95. Wishing and praying for blessings.

I cannot imagine how worried you must be.

[jwirr]

99. Yes, when she was small the doctors told me her life expectancy would be 30 years old. Medicine

has improved since then but that is what I fear that it is her time and we will not be able to do anything about it. I also thought I was prepared. Ha.

[merrily]

100. I doubt anyone can ever be prepared, even for the passing of a beloved parent,

let alone one's child.

[warrior1]

96. .

[Amaril]

97. {{{Terri}}} {{{jwirr}}}

[rhett o rick]

98. My best wishes for you daughter and family. nm

[MynameisBlarney]

101. Sending positive vibes your way!

[DesertDiamond]

102. Sending Nam Myoho Renge Kyo to Terri right now! Please post updates.

[LoisB]

103. Positive thoughts coming your way.

[peace13]

105. I send both of you love and energy!

I am so sorry to hear this news.

[jwirr]

106. So far she has not had another seizure like that one. I am going to be out of touch for the weekend

and will get back to all of you wonderful people on Sunday evening. Thank you for all of your concern.

[AlaneGrayGoddess]

107. Seizures

Please research "Ketonic Diet". Look up 'The Charlie Foundation" Good luck.

[jwirr]

110. Thank you.

[ladyVet]

108. Terri and I are the same age...

Sending energy and strength to you both, that you may be able to handle whatever comes.

My ex-husband has a cousin who was born profoundly mentally disabled, and was not expected to live more than a couple of years. She is in her sixties, and sometimes I think she will outlive me. Until recently, she lived at home (her mother has passed now), with some help from caretakers for several years now, and is loved and cherished by her family, and those who know her.

[jwirr]

109. Thank you for your wishes.

[liberal_at_heart]

111. Are you in a state where medical marijuana is legal?

The strain Charlotte's Web has been shown to dramatically decrease seizures. I hope Terri gets better.

[jwirr]

114. No, our senate voted yes but the house has not yet addressed it.

[lunatica]

112. You got it!

Positive vibes going Terri's way!

[jwirr]

113. No more seizures like that one and I think she is safe for now. The physical did not show any other

problems so we are just assuming that she had a fever or something like that. For now it is going to just be wait and see.

Thank you DU. This is truly our home away from home. We care about each other. This is a good place to be.

[McCamy Taylor]

115. Prayers for Terri.

[deek]

116. Sending positive thoughts your way

I also have a daughter who has severe disabilities. She is 30 yrs old and has had prolonged seizures. Perhaps hormonal changes? I often overlooked non-disability related causes for various changes, but learned it's just sometimes due to a "normal" stuff.

[jwirr]

117. Yes, that is what we are looking at now also.

[jwirr]

118. Went to Terri's staffing yesterday. She looks great except older. Each time I see her I notice that.

She was alert and happy . No more of the really bad type of seizure and blood levels for Dilantin seem to be stable. We are starting to track a new behavior that will be used to lobby for persons who are not deaf or blind but rely on signing to communicate. We have begun recognizing many more actions she uses to communicate her needs and as we talked about it we realized she uses them in both of the locations she spends her days. One interesting thing is that her primary physician says he envies Terri's labs as they are better than most of his patients. This despite the seizures.

She recognizes me by my voice since I often call and talk to her over the speaker phone.