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usedtobedemgurl

(1,135 posts)
Wed Jun 1, 2016, 01:36 PM Jun 2016

People Are Being Hurt By Opioid Abuse (one of them is me)

I was in a bad car wreck over twenty years ago. At the time I went to the E.R.. They referred me to a physical therapist. Then I went to a chiropractor and, finally, to a neurologist. No one could do anything for me. I lost faith in the medical community. I could not find anyone who could grant me a pain free day or night.

I had a problem with the Vicodin. It was much too strong for me and so I wound up only being able to take half. That was enough to take the edge off the pain but I would stay up all night until I collapsed from exhaustion. There was simply no other way to get rest that the pain interfered with.

Over the years my pain has ebbed and flowed but it has never gone completely away. The low points are very low for me. I remember when I bent over to take my young child out of the car seat and I froze that way. My husband had to help me into the house. It was everything I could do to make it to the bed. I stayed there for almost a week. I would put off going to the bathroom until the last possible second because it hurt so much to move. Even rolling over in bed left me in tears. I finally decided it was too hard to keep getting in and out of bed and my husband moved a chair from the living room. I sat sleeping up for another four to five days. It was better than the pain I felt rolling over or trying to get in and out of bed.

The last few months I find my pain getting escalating. I am not sure I would say it is back to where it was, originally, but it is certainly bad. I find my quality of life is diminishing. I have canceled plans and my son has even missed a couple of days of school because I felt unable to get out of bed. My life now revolves around my back pain. I have a drawer on top of my dresser so that I do not have to bend down and get my underwear in the morning. I drive a car that has heated seats and even a rear view camera because I never know if I will be able to look over my shoulder. I buy foods already cooked so on really bad days (which is most of them lately, for three weeks I cried, from pain, almost every single day) I can just eat food and not have to worry about going hungry because I am unable to cook. I have disposable plates so I will not hurt my back doing dishes. I just bought outrageously expensive shoelace substitutes to turn my sneakers into slip-ons because sometimes I am in too much pain to undo my sneakers.

I have a problem. I lost faith in the medical system but I also did not have insurance. This means there is no trail showing a doctor that this is a chronic problem. All they have is my word and a lot of drug seekers make up stories. Some, I am sure, would bring tears to people's eyes.

My problems have gotten worse. The things that have been added to my problems are sciatica and facet joint pain. I now have insurance and this diagnosis is what the doctors have said I have after taking an x-ray. I am sure there are more problems and I do have an orthopedic appointment a month from now. The big problem? I am in pain now. There are times this pain is unmanageable. I wonder how I will get my son to school and back. I wonder how I will sleep, eat, cook, etc....

The first doctor I saw gave me Flexeril which made me loopy for over 12 hours. I could not function. She also recommended a chronic pain psychologist. I went to their financial office to see how much those visits would be. They are over $500 a visit. That is not a typo. But after I spent $5,000 my deductible would be met and I would get the rest of the treatments for free. I am a single mom, I can't afford that kind of money but if I ever go into business for myself, I think I now have a career path to follow!!! She also prescribed aquatic therapy. I did not even check to see what their therapy rates were after the psychologist fiasco.

The next doctor took me more seriously. He was the one who said sciatica. (this was after I wrote the first doctor to say how horrible I think the visit went and I was sure I had sciatica at the very least) The orthopedic doctor, who saw my x-rays, said I had facet joint disease. I already knew that as well. That is what kept locking up my back all these years. The only thing I have found to help it is Soma. The first doctor refused and said they were warned about it in medical school. I am not sure what she was warned about but I cannot imagine it could be any worse than your back possibly locking up and you being stuck in bed for a week or two in constant pain.

Full disclosure; I got the Soma on the black market. My friend saw the pain I was in and she let me try one of her Soma. It worked and my back stopped unlocking. She gave me more. This does not mean I am a drug seeker, it means I did not have insurance at the time and could not see a doctor. It means someone looked at me sitting across from them in tears from the pain. They had compassion and wanted to help.

I asked the first doctor for a needle. I am quite phobic of needles. When I was ten I ran into a hospital parking lot, in a gown, to avoid getting blood taken. Red Cross told me not to donate any more because I would sit there and cry during the entire process. I HATE needles! I explained this to the doctor and said I must be in a lot of pain if I am basically begging for one. She said she did not think it would do me any good. I walked away in pain. (taking five or six rest stops because my back and hip were killing me)

The second doctor gave me Soma (thank goodness because my back started locking up last night) and tramadol. I only use the Soma when my back locks up, not for pain. I tried the tramadol and it did nothing. I wrote to the doctor begging and pleading for anything that effects me stronger than an aspirin. He wrote back saying he was not allowed to prescribe strong narcotics. I never even mentioned narcotics. I wrote back asking was there anything, possibly in between an aspirin and strong narcotics? I am awaiting his reply.

I understand why doctors are cautious. I really do get it. I know there is an epidemic. And I know the picture most people have in their heads about a drug addled person trying to get one over on the doctor. The thing is, I lost faith in the system once. The doctors did nothing for me. And then I did not have insurance. I got insurance and now I had hope. They have to be careful but hope, for me, is fading. I am sinking into more and more pain and with that, now, is the onset of depression.

I know the drug addicted folks are being hurt by their addiction but there are people out here who feel like they are hanging onto a cliff with their fingertips and it gets harder and harder. I know because I am one of them.

30 replies = new reply since forum marked as read
Highlight: NoneDon't highlight anything 5 newestHighlight 5 most recent replies
People Are Being Hurt By Opioid Abuse (one of them is me) (Original Post) usedtobedemgurl Jun 2016 OP
I don't have any answers but will give this a kick eom Arazi Jun 2016 #1
At first you mention 'your husband' madokie Jun 2016 #2
Perhaps at the time of the accident she was married. redwitch Jun 2016 #3
He was my husband at the time.... usedtobedemgurl Jun 2016 #6
Wow... ScreamingMeemie Jun 2016 #16
i'm so sorry you're hurting Viva_La_Revolution Jun 2016 #4
I recently started looking into CBD oils. usedtobedemgurl Jun 2016 #7
A list of the states with legal medical cannabis. HuckleB Jun 2016 #12
Thank you. usedtobedemgurl Jun 2016 #18
NC still working on it Viva_La_Revolution Jun 2016 #14
Just my luck. usedtobedemgurl Jun 2016 #19
Somethings wrong when the black market is easier than the "system". marble falls Jun 2016 #5
Yes, it is. usedtobedemgurl Jun 2016 #9
Prohibition does that and is never effective. Downwinder Jun 2016 #11
I am not street wise but I assume things like this..... usedtobedemgurl Jun 2016 #20
Thank you for sharing your story. HuckleB Jun 2016 #8
it's so much worse for women. mopinko Jun 2016 #10
I asked the first doctor for a shot.... usedtobedemgurl Jun 2016 #21
what kind of doc are you seeing? mopinko Jun 2016 #22
The first doctor... usedtobedemgurl Jun 2016 #23
flexeril is often taken at night. mopinko Jun 2016 #25
I am hoping the orthopedic doctor will do an MRI. usedtobedemgurl Jun 2016 #27
It is ridiculous what you and other people in pain have to go through. Mariana Jun 2016 #13
Thank you. usedtobedemgurl Jun 2016 #24
My heart goes out to you. Sorry to hear of your struggles Dems to Win Jun 2016 #15
Thank you so much for this post. usedtobedemgurl Jun 2016 #17
This message was self-deleted by its author LiberalArkie Jun 2016 #26
I may try this although I have not been prescribed valium. usedtobedemgurl Jun 2016 #28
This message was self-deleted by its author LiberalArkie Jun 2016 #29
I have been prescribed Soma.... usedtobedemgurl Jun 2016 #30

usedtobedemgurl

(1,135 posts)
6. He was my husband at the time....
Wed Jun 1, 2016, 01:56 PM
Jun 2016

I felt it would make people feel my ex came to my rescue if I had used that term. Perhaps I should have said 'my now ex'? In fact, if you follow my posts, back, you will find that I complained about my husband and his abuse on one of the minor boards (I think it was the divorce board?) and I talk about our separation.

Viva_La_Revolution

(28,791 posts)
4. i'm so sorry you're hurting
Wed Jun 1, 2016, 01:53 PM
Jun 2016

Chronic pain sucks

Have you tried cannabis? Your conditions would get you a medical card here in oregon, where are you?
Edit: in most states, CBD oils are not illegal, and they do help some conditions.

usedtobedemgurl

(1,135 posts)
7. I recently started looking into CBD oils.
Wed Jun 1, 2016, 01:58 PM
Jun 2016

It is so expensive that I will have to wait for another alimony check or two before getting it. I am in NC. The doctors did not mention anything about medical marijuana. I am not even sure if it is available here but I will ask. I think I could afford that with insurance. Thank you.

usedtobedemgurl

(1,135 posts)
18. Thank you.
Thu Jun 2, 2016, 09:00 AM
Jun 2016

So, DC is good? It is wedged between 5 and 6 so it is hard to tell but that seems the closest state to me. And can I just buy it or do I need a prescription? Because I guess a prescription then entails me making a doctor's appointment up there? I am sorry for not knowing more. Again, thank you.

usedtobedemgurl

(1,135 posts)
9. Yes, it is.
Wed Jun 1, 2016, 02:00 PM
Jun 2016

And I truly know there is an epidemic but pain is pain and a lot of people, including me, are miserable. I am pretty sure I could order something online or find some sort of local drug dealer but my funds are tight and I am really trying to go through the system and get everything documented. After twenty plus years, this really is chronic.

usedtobedemgurl

(1,135 posts)
20. I am not street wise but I assume things like this.....
Thu Jun 2, 2016, 09:02 AM
Jun 2016

hurt people like me and I supposed drug seekers can get it on the street or there are doctors well known to bend the rules.

mopinko

(70,076 posts)
10. it's so much worse for women.
Wed Jun 1, 2016, 02:22 PM
Jun 2016

my daughter has pain problems, and is often taken as a drug seeker.
went through that particular hell myself, too.
they just dont take women seriously.

i hate doctors for the most part, but luckily have a good pcp and a rheumie who is a saint.

hope you can find some relief soon. you should be getting epidural shots for your back, and lyrica might help your sciatica.

usedtobedemgurl

(1,135 posts)
21. I asked the first doctor for a shot....
Thu Jun 2, 2016, 09:03 AM
Jun 2016

she said she did not think it would help. But she did not even diagnose my facet joint pain nor my sciatica so there is that. I canceled my follow up appointment with her. I would have given anything to get a shot. I will ask my doctor about lyrica. Thank you.

mopinko

(70,076 posts)
22. what kind of doc are you seeing?
Thu Jun 2, 2016, 09:16 AM
Jun 2016

a rheumatologist or a pain specialist is what you need.
and you need an mri of that lower back. if there are bad discs there, you need that fixed.

usedtobedemgurl

(1,135 posts)
23. The first doctor...
Thu Jun 2, 2016, 03:05 PM
Jun 2016

was a doctor at a Cancer and Spine Center. I figured they were specialists and knew what they were doing. She is the one that said she did not think I even needed a shot. Then I went to my GP. Now he is referring me to an orthopedic doctor.

With the first doctor I specifically asked for an MRI. She, instead, gave me three things - flexeril which I cannot take because the effects stay with me for a whole day and I cannot function. (I did not know this at the time) She advised me to do chronic pain therapy which I cannot afford at over $500 a pop. And she said aquatic therapy. I told her I felt helpless and like I was no further ahead. I had taken pills before (Aleve) and now I was still going to be taking pills. The other two things seemed more like management and the pills were not going to cure me and it felt like she was training me to just deal with it rather than trying to tackle it head-on.

My second doctor did an x-ray and said we will see what that reveals. That showed facet joint disease. He diagnosed sciatica without any tests. When I go to the orthopedic doctor I am going to ask about an MRI. That will be in a couple of weeks. An x-ray does not reveal everything that is going on. That is why they have MRI's.

I wrote to my doctor on Saturday and told him how his tramadol does nothing and asked for something stronger. He wrote back on Monday stating he cannot prescribe strong narcotics. I did not even mention them. I asked, on Monday, does he not know of anything that is between an aspirin and a strong narcotic. It is Thursday and he must have thought that was a rhetorical question because I have still not heard back. This is a doctor that I begged (literally) for anything to relieve my pain and he has taken this many days without responding. There is a reason I lost faith in the system in the past.

mopinko

(70,076 posts)
25. flexeril is often taken at night.
Thu Jun 2, 2016, 04:23 PM
Jun 2016

might help you sleep. i take a small dose at bedtime to relieve cramping in my legs.

ortho doc should be better. i would bet there will be an mri.

are you in a small town? is there a big city nearby? university hospitals do a lot better imho.

usedtobedemgurl

(1,135 posts)
27. I am hoping the orthopedic doctor will do an MRI.
Fri Jun 3, 2016, 04:20 PM
Jun 2016

I took Flexeril at night and the next day I was still feeling the effects until around five in the afternoon. I was dizzy and so sleepy. I am in a small town/city but the first doctor was actually at a University hospital. I went there expecting more. I didn't get it.

Mariana

(14,854 posts)
13. It is ridiculous what you and other people in pain have to go through.
Wed Jun 1, 2016, 03:41 PM
Jun 2016

Yes, some people abuse narcotics and it's a bad thing when they do. So fucking what? Lots of people are alcoholics too. Alcoholics are drug addicts just the same as any other, and they do a huge amount of harm to themselves, to their families, and to society. Still, anyone over 21 can buy alcohol off the shelf, as much as they want, in various concentrations, and no one asks them any questions. Painkillers should be no different.

usedtobedemgurl

(1,135 posts)
24. Thank you.
Thu Jun 2, 2016, 03:13 PM
Jun 2016

I understand some people are in a lot more pain than even I am in but not prescribing opioids to anyone is not the answer. There are people who need these. This whole thing is unfair to people who are affected by pain.

 

Dems to Win

(2,161 posts)
15. My heart goes out to you. Sorry to hear of your struggles
Wed Jun 1, 2016, 04:53 PM
Jun 2016

I will tell you of my brief experience.

A few years ago, I broke my collarbone and dislocated my second rib. Doctors prescribed Vicodin for the pain, but I couldn't perceive that it helped at all.

So, I tried alcohol. I normally don't drink much at all, maybe one glass of wine per week, so I have no tolerance. I drank two glasses of wine, quickly, and lo and behold, it really took the edge off the pain. Downside is, I was then tipsy and more likely to walk into doorways, bumping my shoulder, ouch! So, I learned I had to drink 2 glasses of water, then two glasses of wine, and then straight to bed. The water keeps you from getting dehydrated from the alcohol (dehydration is the main reason for the hangover the next day). It did ease the pain enough that I could get to sleep.

I'm a little bit skeptical of the painkillers from doctors. I'm not sure what they have to offer is all that much better than alcohol and /or pot, frankly. I share this experience with you, if it can be of help.

I wish you good luck in finding relief.

usedtobedemgurl

(1,135 posts)
17. Thank you so much for this post.
Wed Jun 1, 2016, 06:23 PM
Jun 2016

When I was first in my car accident I took a full Vicodin. It felt like I had downed a fifth of tequila in five minutes. I was crawling on the floor. I was so dizzy I was leaning over the toilet sure I was going to get sick and then I was hot so I crawled to the front door and struggled to reach up to open it. I lay in the doorway getting cold air. That was the only time I ever took a full Vicodin. I took half from there on out but it dealt with the pain but did not completely clear it. I finally ended up drinking and you are right, it helps. But I took alcohol with the Vicodin. I was not supposed to but at that point the pain was so great that I did not care if I overdosed or it had bad side effects. It was so nice to be out of pain even for a few hours.

I understand you turning to alcohol. I do not drink much, like you, but it was all I could do to find some modicum of relief.

I hate feeling out of control and that is what drugs do to me, and alcohol. These days it takes a lot for me to really do a good dose of either. I do not like feeling out of control, I just want to feel better. I want them to give me an injection with a pain blocker until they can decide what is going on. Is that really so wrong of me? Pain blockers, to my knowledge are not addictive. I want a good night's sleep. I want to drive the car without turning on the seat warmer. I want to enjoy life.

Response to usedtobedemgurl (Original post)

usedtobedemgurl

(1,135 posts)
28. I may try this although I have not been prescribed valium.
Fri Jun 3, 2016, 04:23 PM
Jun 2016

I am not sure why it would work versus larger/more prolonged doses but I am happy to give almost anything a try. I am always happy to hear when someone has found relief from pain.l (((hugs)))

Response to usedtobedemgurl (Reply #28)

usedtobedemgurl

(1,135 posts)
30. I have been prescribed Soma....
Sat Jun 4, 2016, 09:24 AM
Jun 2016

But the only time it seems to really help, and the reason I asked for it, is when my facet joint pain acts up. That is when my back starts locking up and it is the ONLY thing that seems to help. I have had my back lock up for weeks at a time and it is not a pleasant experience. It is something I try to avoid at all costs.

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