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Solly Mack

(90,762 posts)
1. Got any pain medicine?
Sun Mar 27, 2016, 11:43 AM
Mar 2016

If not, ask!

I gather the rinses aren't helping any. Have you tried a milkshake? Something cool might help ease the pain.

Do you have anesthetic lozenges or sprays? Those help to numb the throat.

I'm so sorry!

alfredo

(60,071 posts)
3. I will talk to my radiologist tomorrow. I took some Ibuprofen, that helped a bit.
Sun Mar 27, 2016, 01:45 PM
Mar 2016

Ice Cream! A protein powder shake with ice cream and peanut butter might be a plan.

alfredo

(60,071 posts)
5. I got a bottle of it today.
Mon Apr 4, 2016, 07:45 PM
Apr 2016

Btw how wide will the red skin spread from the radiation? I noticed a mild rash on my body. It could be from the Cisplatin, the radiation, or from the heated easy chair.

sinkingfeeling

(51,445 posts)
6. The rash is probably from the chemo. Radiation redness and even burns occur whereever
Tue Apr 5, 2016, 09:04 AM
Apr 2016

the radiation hits or goes through. Some people actually get blisters on their upper back as the rays pass through the neck. Aquaphor is good for the skin, but my radiologist gave me Fougera Bacitracin Zinc Ointment cream for burns.

alfredo

(60,071 posts)
7. Eucerin is good, but could be better. I have Ondansetron and Dexamethasone for nausea.
Tue Apr 5, 2016, 09:10 AM
Apr 2016

so far my breakfast in staying down, but is knocking on the door.

Marthe48

(16,935 posts)
8. Just joined this group recipes for rinses
Sun Jul 17, 2016, 10:03 PM
Jul 2016

My husband has esophageal cancer, diagnosed in March 2016. He has a feeding tube. He has had mouth sores for over a month. He has the miracle mud, which eases the pain, but isn't really healing. He got a chemo break a month ago, which really helped. He is on another break until Wed. but so far his side effects haven't slowed down. I have found a recipe for another mouth rinse to ease the pain:
1/2 tsp of Maalox or Milk of Magnesia (I'm using Maalox)
1/2 tsp children's cherry flavored Benedryl
1/2 tsp Chloraseptic cherry flavored sore throat spray

Mix them together and rinse and spit out. Try to keep it in your mouth for at lest 15 seconds. This makes enough for one rinse.

I made it last night and today and my husband is using it between the doses of miracle mud. I also made him a healing soothing rinse of manuka honey and freshly brewed green tea, or just manuka honey and filtered water. Or honey, L glutamine and water. L glutamine is supposed to help the cells heal. Also use baking soda rinses. The only one he swallows is the miracle mud. He still has mouth sores, but I'm hoping the rinses give him a few minutes of comfort. Our daughters told us about the honey, or I wouldn't have known.

I really hope by now that your throat is better




alfredo

(60,071 posts)
9. It's better, but still hurts. I use baking soda and salt mouthwash.
Sun Jul 17, 2016, 11:03 PM
Jul 2016

I also use the miracle mouthwash.

I can't take any pain killers because they have me on Prednisone.

How much longer will your husband be in therapy?

I've been out of Chemo and Radiation for 10 weeks. It gets better.

Marthe48

(16,935 posts)
10. Thanks forasking
Mon Jul 18, 2016, 12:10 AM
Jul 2016

He has chemo until Oct.gets a couple weeks off and then probably radiation. My vet calls prednisone his 'bring em back from the dead' shot. He's sure pulled many of my pets back from the brink
Hope you are getting better and better every day Have a good sleep and a better day!

alfredo

(60,071 posts)
11. Thanks. I have my Chemo during Radiation, each at a different hospital.
Mon Jul 18, 2016, 01:27 PM
Jul 2016

My wife pushed me in a wheelchair between them. I could walk, but very slowly and somewhat shaky.

Marthe48

(16,935 posts)
12. You do what you can
Mon Jul 18, 2016, 04:40 PM
Jul 2016

I tell my husband that his big job is taking it easy so he gets better. He hasn't needed a wheelchair so far. I would have found one for him last week, but our daughter met us at the door and she gave him an arm while I parked. I would only walk until some part of my body said 'enough!' and then do something else. But I've never been into moving, haha

I found a site called inspire.com It has different support groups for really specific health problems. I was on there today to learn more about jpeg tubes. Lots of posts from people who are living through the illnesses and the treaments. You sign up for free and then you join the groups/communities you are interested in.

alfredo

(60,071 posts)
13. So far Here, the VA, and Markey Cancer Center has been a great support system.
Mon Jul 18, 2016, 10:08 PM
Jul 2016

After the second week of radiation, the bottom falls out. He will be tired, weak, and unsteady.

I've been out 10 weeks, and my energy is returning. I'm starting to experiment with food. I waste a lot, but it is for a good cause.

BTW Stash Lemon Ginger tea tasted fine. Or is it Ginger Lemon, I can't remember. I have a feeling that I will probably be a vegetarian after this. I will wait and see what I can eat.

Remind him to gauge improvement by week, not by the day.

Stay strong

Marthe48

(16,935 posts)
14. The chemo has sapped him
Tue Jul 19, 2016, 11:12 AM
Jul 2016

but he finds reserves and keeps fighting. Nothing tastes good to him. He gets 99.5% of his calories from the feeding tube. I'll pass that along to him, but this week, it is hour to hour, not even day to day. We are going outside to get some fresh air and watch the birds and squirrels. Always refreshing You have a wonderful day. Thanks for staying in touch. Never feel you have to reply. I know that between time and energy, posting should be lower on the priority list!

Marthe48

(16,935 posts)
16. Right now under control
Tue Jul 19, 2016, 01:21 PM
Jul 2016

thanks for asking. Hard to think 2 weeks ago, that was the one we were trying to get rid of Your comments that it gets better helps a lot

alfredo

(60,071 posts)
17. Remember, patience. After all treatments it will take months to recover
Tue Jul 19, 2016, 03:46 PM
Jul 2016

That's why I urge patience.

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