Waiting for Cancer Treatment

[bmichaelh]

I have follicular lymphoma.

The first time after treatment, I had remission for about 12 years.
The second time after treatment, I had remission for about 15 years.

Over the last two years, I have been less successful.
In all three separate treatments, treatment did not remove all of the lymphoma.
I made a decision on 08/04 on course of treatment.

However, I am at a standstill with my healthcare provider.
Some board needs to make a decision and they only meet on Mondays.
They did not make a decision on 08/09.
They are not scheduled to make a decision on 08/16.

I am fed up with their decision process.
I want treatment to start as soon as possible.

I am very seriously considering switching healthcare providers.

Thank you,
Michael

[MLAA]

1. I am so sorry to hear this!

I am posting this article as FYI in case you are interested. I am not giving medical advice just pointing you to some proven health benefits of what you eat. I have met the woman featured in the article twice. I have been to the TrueNorth clinic twice for a week each time. I’ve learned the effect nutrition can have on disease and some cancers.

If you have any questions or interest you can direct message me.

Wishing you the best.

https://www.healthpromoting.com/case-studies/testimonials/ivonne-changing-course-lymphoma

[moonscape]

2. Waiting is so hard, and I am

so sorry.

When I had a tumor break out of my tibia, the pain was quite intense. It had been building until the cause was discovered on MRI. There are 2 teaching hospitals near me. One of them the specialist said he could not see me for 6 weeks! The other could on an emergency basis but not for 10 days. The pain was worse every day and I had no idea how I’d make it but I chose him and them over an independent oncology surgeon who could see me in a few days.

When I got there for my appt, they did more x-rays and put me in a brace immediately, saying it was amazing my leg hadn’t shattered. He admitted me to the hosp and did surgery that night at 10 PM. Best decision I made waiting an extra week because the medical care I got was exemplary.

This is so off the mark from your situation, but I’ve learned through my 5-year cancer journey (still on chemo maintenance for blood cancer) that while waiting is tough, what is most important is the quality of care once we get seen. In your shoes, if I liked and trusted my docs from both an art and science perspective, then I’d wait for the stupid board. But if there’s nothing remarkable about your care team, and this is just one more point of dissatisfaction, then I’d definitely be exploring my options.