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(10,442 posts)
Sat Feb 25, 2023, 10:51 AM Feb 2023

Children and Cancer

Our family received devastating news this week. My grand-daughter Cassandra, not quite 3 years old, has been diagnosed with liver cancer. She's had a very bumpy road since her 26-week preemie birth, has defied all manner of grim prognoses, and developed into a happy, giggly, dancing (loves all things musical) little girl.

Now this.

We've been notified she'll start chemo next week to shrink the liver tumor and, since the entire organ appears compromised, she could very well require a transplant. We're all holding our breath that the spot on her lung is scarring due to all the early lung interventions and 18-month ventilator usage.

Anyone here have experience with these childhood cancers or words of wisdom for fretting relatives? Prayers and good vibes would help, too.

My son and daughter-in-law are, of course, in total shock. It's a stunning reversal. Words fail moments like these, other than: it's so unfair. But even that sounds lame.

Would welcome any advice. Thanks in advance!

Children and Cancer (Original Post) peggysue2 Feb 2023 OP
I got no advice, I am holding Cassandra, her parents and family in my thoughts irisblue Feb 2023 #1
Thank you Irisblue peggysue2 Feb 2023 #3
I have no experience with childhood cancer. murielm99 Feb 2023 #2
Appreciate it, murieim peggysue2 Feb 2023 #4
Holding your family close, cilla4progress Feb 2023 #5
Thank you, cilla peggysue2 Feb 2023 #6
A year ago my hisband broke his neck cilla4progress Feb 2023 #7
Sorry to her about your husband. peggysue2 Feb 2023 #8
For sure. cilla4progress Feb 2023 #9
A suitable living match can donate a part of their liver, because this organ... 3catwoman3 Feb 2023 #10
My son is already looking into serving as a living donor peggysue2 Feb 2023 #11


(30,460 posts)
2. I have no experience with childhood cancer.
Sat Feb 25, 2023, 11:14 AM
Feb 2023

But I wish your family the best, and pray for her recovery.


(10,442 posts)
4. Appreciate it, murieim
Sat Feb 25, 2023, 11:38 AM
Feb 2023

Prayers and good vibes will be gratefully accepted. I have a very good friend who has alerted her prayer group as well, even had Cassandra's name added to the daily Mass. I'm a lapsed Catholic but more than willing to take everything we can get.

Still having a hard time getting my head around the news.


(10,442 posts)
6. Thank you, cilla
Sat Feb 25, 2023, 12:50 PM
Feb 2023

Cassandra is very huggable, too.

Just got off the phone with my daughter-in-law. She was in the hospital chapel and my son was up on the floor with Cassandra. My son is literally falling part. My husband and I will be seeing them tonight for dinner. Hopefully, we'll come up with the right words of solace and encouragement, try to convince them that they can get through this, together.

My husband and I went through a similar event when our son suffered a near-fatal brain injury. The waiting and uncertainty are absolute killers. It's just hard and, of course, heartbreaking.

Appreciate the support.


(23,941 posts)
7. A year ago my hisband broke his neck
Sat Feb 25, 2023, 01:19 PM
Feb 2023

skiing into a tree. Thank goddess and an amazing skilled neurosurgeon he is 100% today. Long road, though.

Wishing your family similar success.

Medicine has so many tools to fight this hideous disease now!

Hopeful for your family.❤️❤️❤️


(10,442 posts)
8. Sorry to her about your husband.
Sat Feb 25, 2023, 01:56 PM
Feb 2023
Medicine has so many tools to fight this hideous disease now!

That's what we're counting on. You saw the surgical advances with your husband. I saw advanced treatments with my son who, like his daughter now, defied expectations and had a remarkable recovery.

Fingers crossed for all of us.


(23,258 posts)
10. A suitable living match can donate a part of their liver, because this organ...
Sat Feb 25, 2023, 03:40 PM
Feb 2023

…can regenerate. Surely the people managing your granddaughter’s care will know about this.

She must be a tough little thing to have triumphed over all the challenges she has already faced.

Has anyone suggested St. Jude’s? Treating childhood cancers if the reason they exist.


(10,442 posts)
11. My son is already looking into serving as a living donor
Sat Feb 25, 2023, 04:39 PM
Feb 2023

He'll have to find out if he's a suitable match but from what he's read a living donation increases success rates to 90%.

Right now they're at Nemours Pediatric in Wilmington, DE. It's the hospital that has treated Cassandra from Day 1 through heart surgery, lung infections, Covid-19, etc. My son and daughter-in-law trust the staff and feel comfortable in the surroundings. Things could change their minds, of course.

If that were the case, St. Jude's would certainly be worth looking into. Good suggestion.

Cassandra is tough, a pint-sized warrior. She's been fighting since her first breath. We thought she had finally turned the corner.

Until this.

Thanks for the outreach, catwoman. I'll put the St Jude's suggestion in my pocket for future reference.

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