idiosyncratic axonal neuropathy

Haven't been here in a while but I've been posting in the Sanders group lately and I thought I'd drop in.

but sorry it's on this subject. I've been in Martin O'Malley group.

Have you posted about this in 'Health?'

...Just here.

but who knows.

I will say it almost sounds like an auto-immune disorder of the nervous system, although it's apparently not classified as such.

...is theoretically being caused by some disease system, except I test negative for everything. It's great to know that I'm so healthy, except in the meantime, my nerves are dying.

I am overweight. I have sleep apnea, but I use CPAP. I did have a spinal injury, and multiple pelvic fractures and some other fractures in a car accident. That was 12 years ago, but I feel like all my health problems started then.

I haven't tried acupuncture yet. Nor have I gone to a chiropractor.

but I'd guess that your weight, sleep apnea, and other things have nothing to do with this nerve thing. I hope you can eventually find, if not a cure, something that slows or mitigates the progress.

I think it may have to do with the spinal injury. But the Wright doesn't help.

I'm trying.

But like any practitioner you need to find the right one. Word of mouth is the best for that, there are a lot of poorly trained ones out there now since it's become more accepted in the west.

And healing energy to you....that sounds perfectly dreadful...

Ask your holistic person about the possibility of vitamin B-12 and alpha lipoic acid, which are both important for the nerves. Also most people are tragically low in D3, which is necessary for hundreds of body processes, including nerves. And overwhelm your gut with good bacteria as well. (maybe you know all this already)

Anyway, best of luck and keep playing!

no experience with it, but have you been tested for lyme disease? neuropathies are very common with lymes.
also, did they test for diabetes via glucose tolerance or A1C? impaired glucose tolerance can be a better indicator of peripheral neuropathy.
how is your thyroid function? hypothyroidism impairs circulation, which can starve peripheral nerves.
did they test your vitamin B6 and 12 levels?

re: the car accident -- that certainly could be a cause. I had a bad car accident. Within 3 months, my normally extremely regular period became very irregular. I would periodically get a numb spot in my spine. Years later, I met with a sacro-cranial therapist to work on my horse and me. While we were standing there, she reached around behind me and pressed the sometimes numb vertebrae into place. While she was working on me, she asked if I'd been in a car accident and told me my car was hit on the front passenger side (I slid into a telephone pole, which ended up next to me in the passenger seat). She said my spine was torqued by the accident and that was interfering with circulation. Within 6 weeks of the session, my period returned to normal.
So it wouldn't hurt if you can find a sacro-cranial therapist. Similar work as chiropractic, but gentler ime.

Thanks for sharing your story. I see some parallels.

I don't have any expertise and am not a medical practitioner, but have been reading a lot lately about how all of us are deficient in magnesium because the soil that our food is grown in has been depleted of magnesium as well as other nutrients. Commercial fertilizers are not very effective in replacing all that has been lost from our soil. There are many recent articles about the importance of it in our diets and I'm sure if you google it, you'll find plenty. Dr. Oz has good information.

I hope you find something that will help. Sending positive energies~~~

...But as you say, the soil is depleted.

My son has Tourettes Syndrome which has been linked to magnesium deficiency as well.

and then sprayed on the skin after bathing/showering. It is supposed to be the best method for absorption, but it also causes itching in some people. I have started taking the brand "CALM" and have noticed that I do sleep better. It is from www.naturalvitality.com

For Headaches, A Lifestyle Change May Be Better Than A Doctor Visit
May 11, 2015 • Each year more than 12 million Americans go to the doctor because of severe, chronic headaches. Many are sent for expensive tests. Researchers say all this testing isn't doing people much good.

http://www.npr.org/sections/health/#

So sorry to hear about your illness. May be this story can help you.

Namaste.

I would try different types of toxin cleansing. Have you been tested for heavy metals?

I use coffee enemas occasionally just for the detox. I also bought one of those Ionic foot baths and use it occasionally. I know there are people who say it is a scam but my physician cousin bought one for my aunt when she had breast cancer and she is fine now. It is not a matter of making the water turn brown. It is a matter of absorbing negative ions, (I think) because they help in ridding of toxins.

There are also plenty of supplements and fasting that you could use.

I wish all the best for you in your recovery. You can and will do it.

It's so sad. You try to be healthy but everything is poison.