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Member since: Fri Nov 20, 2009, 02:17 PM
Number of posts: 9,572

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Just gave myself my first Copaxone shot! It was no big deal at all!

Woo hoo, I'm an MS warrior now, fighting my disease!

Then there is the other side of the fence - me and every other female MSer I've met....

Trying and trying to get help for years from doctors for all kinds of weird symptoms like having to void the bladder 20 times a night, blurry vision with eye pain that comes and goes, aching legs at night, overwhelming fatigue, etc. and being told its all in our heads, it's because we never had children, etc.

Funny how all the other female MSers I've met online have had the same experience as me...but none of the male MSers have. Maybe there is some bias there.

The average time to diagnosis is six years from the start of symptoms in MS. We need to do better than that because early treatment is crucial. In my case it took 12 years to get a diagnosis and along the way "functional somatic syndrome" was slapped on me because my bladder problems did not respond to the IC meds. The meds didn't work for me because I had MS, not IC.

We need and deserve better than that from the healthcare professionals.

Granted, I was using the Army system and I believe it inferior to the civilian system, but still....

PS I guess what I am saying is, some of us try to become our own doctors out of frustration in situations like mine....
Posted by LiberalLoner | Wed May 8, 2013, 12:20 PM (1 replies)
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