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LiberalLoner

LiberalLoner's Journal
LiberalLoner's Journal
September 18, 2013

I read your profile and journal, and I wanted to say I am sorry

For our defensiveness. We get a lot of trolls around here, right wingers who want to disrupt our conversations, and so we tend to be suspicious of any with a low post count, especially if there is any indication that person might not be a true blue liberal. I believe you are who you say you are.

Everyone has given excellent answers here. The only thing I would like to add is that I personally think it comes down to how one views women.

Are women brood cows, an asset to be used by society for reproduction, relegated to slave status, with no choices of when to bear children, no choices of how to spend our lives outside of raising children and running a household?

Or are women people with the same rights as men, to determine if and when to bear children, to pursue whatever lives they wish to pursue? Even if those choices lead to a rising or declining birth rate?

What I see happening in right wing world is a great deal of race based fear. A fear the white race is rapidly diminishing compared to other races, because women have reproductive choices now, and some feel it is mostly white women choosing to have fewer babies. There is a consensus among right wingers that if we take birth control and abortion away from white women, we will no longer lose the demographic race. Inherent in this world view is the idea that white people are superior to brown people, and women are nothing but objects to be owned by men and serve men.

We liberals do not have that race based fear. We believe no race is superior to any other race, so the shrinking percentage of white people is not threatening to us.

We also feel there are lots of people on earth right now and we see no reason women can't be allowed to make their own reproductive choices.

That is the way I see it, anyway. I could be wrong. I often am. I do my best. I have some cognitive impairment due to MS, please forgive any mistakes I made in this post.

September 16, 2013

Happy Dance!

Only one new lesion in my thoracic spine and a couple of very tiny new ones in my brain, since my last MRI six months ago! I think the Copaxone is working for me!

I am so grateful for the medical care I receive! Just wanted to share the good news.

September 10, 2013

Remember the Patriots Guild on facebook we all laughed about?

They were planning an armed takeover of DC on 9/11?

Please go take a look to get a good laugh at the massive failure, LOL.

Schadenfreude at their collapsed plan to destroy America.

Hope this link will work...

https://www.facebook.com/pages/The-Patriots-Guild/488621364525179?ref=ts&fref=ts

May 17, 2013

Just gave myself my first Copaxone shot! It was no big deal at all!

Woo hoo, I'm an MS warrior now, fighting my disease!

May 8, 2013

Then there is the other side of the fence - me and every other female MSer I've met....

Trying and trying to get help for years from doctors for all kinds of weird symptoms like having to void the bladder 20 times a night, blurry vision with eye pain that comes and goes, aching legs at night, overwhelming fatigue, etc. and being told its all in our heads, it's because we never had children, etc.

Funny how all the other female MSers I've met online have had the same experience as me...but none of the male MSers have. Maybe there is some bias there.

The average time to diagnosis is six years from the start of symptoms in MS. We need to do better than that because early treatment is crucial. In my case it took 12 years to get a diagnosis and along the way "functional somatic syndrome" was slapped on me because my bladder problems did not respond to the IC meds. The meds didn't work for me because I had MS, not IC.

We need and deserve better than that from the healthcare professionals.

Granted, I was using the Army system and I believe it inferior to the civilian system, but still....

PS I guess what I am saying is, some of us try to become our own doctors out of frustration in situations like mine....

April 18, 2013

I have decided to follow the low fat Swank diet for my MS.

It's going to be so hard but if it helps me slow down the MS, it's worth it. Getting monthly relapses now and acquiring some disability. The data looks promising for this helping MS a whole bunch.

April 16, 2013

I'm sorry you have this too.

I hope you are doing okay!

I do seem to be RR, still in middle of diagnosis. The neuros say I have for sure a CNS demylenating illness with one large, bad spinal lesion stretching over several vertabrae and two small lesions in the brain and some signs of mild ON. But they were not sure which disease, which is why they did the NMO test and a bunch of other tests. I do have oligoclonal bands in spinal tap. So at least to me it sure looks like a bad form of MS.

I want to take DMDs pronto because I have had 3 attacks now in 3 months and want to slow this stuff down. Bought a walker, if I get any worse will need to use it. Getting by for now, just very stiff and limpy and have clumsy hands, weak legs, headaches, bad bad fatigue, twitching, jerking like seizures, muscle cramps, seem to be overly emotional lately, cry too easily.


April 16, 2013

I want an orange tshirt that says that!

Treatment will have to wait until doc comes back, she is away right now. I am leaning towards Copaxone.

NMO is like MS only more severe and usually fatal within a decade.

April 16, 2013

Only MS, NMO came back negative!

I know there is a 30% false negative on that test but I'm still so very relieved! MS isn't the greatest disease to have but it's better than NMO so today I am very relieved.

April 11, 2013

Thank you. I will try to be patient! This last relapse (last week) was just excruciatingly

Painful. The only way I got through it was by taking dilaudid I had left over from a previous surgery. And now I have no more dilaudid left so if the pain comes back I will have to go to the ER. And since they do not give out painkillers other than Tylenol or Motrin at military ERs, the only way Id get pain control is to be admitted to the hospital.

And I already went through that two years ago when I had my first bad bout with this crap. Because I had an implanted device at that time (which I have since had removed, long story) they could not do an MRI. So they misdiagnosed me with GBS instead and stuck me in neuro ICU for ten days. Fun fun fun. But they did at least give me painkillers for the excruciating back pain.

I'm just tired of being blown off, misdiagnosed, tested, tested, tested, with no idea of when I will finally get some help. But I will try to be patient for just a fewmoreweeks at least....

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Member since: Fri Nov 20, 2009, 02:17 PM
Number of posts: 9,761
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