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proverbialwisdom

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Member since: Wed Feb 10, 2010, 01:12 PM
Number of posts: 4,959

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http://www.ageofautism.com/2013/05/dachel-media-update-adults-facing-autism.html#comments

COMMENTS

I like the spirit of the article coming out of an interview with me in the Scotsman. I was misquoted about five times but not maliciously. For example, i did not say that calcium channels are the primary cause of autism. Instead, i used it as an example of a phenomenon that can be caused either genetically or environmentally, where the impact is due to the physiological dysfunction, and where that physiological impact is at least in some respects is indifferent to whether the calcium channels are misfunctioning due to genes or environment or both -- but that is a subtle point that is hard to convey in a press interview. I do think it is accurate that the CONTROVERSY about vaccines has interfered with the focus on the medical problems of autism, because people have been afraid to say anything that would make them even appear to be associated with a "politically incorrect" position about vaccines.


Posted by: Martha Herbert | May 28, 2013 at 10:25 PM
Posted by proverbialwisdom | Wed May 29, 2013, 02:23 PM (0 replies)

Great photo! Thank you for posting. nt

Posted by proverbialwisdom | Tue May 28, 2013, 09:16 PM (0 replies)

Check it out, please. Video features GR Executive Director Candace McDonald and her brother.

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Posted by proverbialwisdom | Tue May 28, 2013, 06:14 PM (1 replies)

Test. I am unable to spot this thread in GD.

...only when I'm logged in. If I were so inclined, I could take screenshots. Weird bug, I guess, momentarily unsettling.

Glad that's figured out.
Posted by proverbialwisdom | Sat May 25, 2013, 06:29 PM (0 replies)

INFO, Hekate and Sid. Take it or leave it, your choice.

RECOMMENDED: http://www.democraticunderground.com/10022587413

http://adventuresinautism.blogspot.com/2013/03/testimony-on-maine-ld-672-act-relating.html

By Ginger Taylor
March 11, 2013

...Vaccine policy should not be based merely on the reduction of communicable disease levels, but on overall health outcomes for children, including the true increased risk of autoimmune and neurological disorders that may be caused by an overaggressive and inappropriate vaccine schedule.




RECOMMENDED: http://www.democraticunderground.com/1017110012

Here's a press release about a study recently published in a peer-reviewed journal. I added the underline in critical note #3. (FYI, Professor/Dr. John Walker-Smith is regarded as the co-founder of the field of pediatric gastroenterology with Harvard Professor/Dr. Allan Walker).


http://www.jabs.org.uk/

CryShame Press Release - 9 March 2013

http://www.cryshame.co.uk

Important new research ( http://www.plosone.org/article/info:doi/10.1371/journal.pone.0058058 ) reports similar findings to the work of Dr Andrew Wakefield in the 1998 Lancet and in subsequent paper in the early 2000s

Groundbreaking new research examines the molecular structure of inflammatory material taken from the bowels of autistic children. It compares the structure of diseased biopsies in the autistic children with biopsies from three groups of non-autistic children with Crohn’s disease, ulcerative colitis, and histologically normal (the controls).

Previous research confirmed the pathological and immunological make-up of biopsies of autistic children, but had not to date identified its specific molecular structure. Children with the four different conditions have been found to have similar findings of inflammation. But it was not clear if this was the same condition shared by all four groups; or if a distinct condition was specific to autistic children alone; or if indeed there was no disease in the autistic group. A molecular analysis of the genetic structure found in the inflamed bowel tissue of children in each group would provide initial answers to these questions.

To date government and medical scientists continue to deny an association between autism and bowel disease. In the UK there is currently no research into the association between autism and chronic bowel disease. This has been the predicament since the government and medical profession waged a campaign to discredit research from the Royal Free Hospital led by Dr Andrew Wakefield in 1998 and the early 2000s that first identified the presence of bowel disease in autistic children.

Following years of denial from government and the medical profession, new research published in the leading online journal PLOS ONE confirms the presence of intestinal disease in autistic children and supports reports from many parents of ongoing painful gastric problems in their autistic children.

The research studied bowel samples from 25 autistic, 8 Crohn's, 5 ulcerative colitis and 15 normal control children and found that inflammatory material obtained from the biopsies of autistic children had a distinct molecular structure that was different from the other three groups.

This is an important finding of the distinct genetic expression that has now been identified in autistic children as distinct from non-autistic children with Crohns, ulcerative colitis and normal bowels. It paves the way for future research into the specific molecular structure of the inflammation affecting autistic children and hopefully will lead to new interventions and treatment.

Background Notes

1. The first paper to bring to public attention the presence of bowel disease in autistic children was Wakefield AJ, (1998) 'Ileal-lymphoid-nodular hyperplasia, non-specific colitis, and pervasive developmental disorder in children'.The Lancet published this paper in 1998 but subsequently retracted it in 2010 after the GMC found Dr Wakefield and Professor Walker-Smith guilty of serious professional misconduct.

2. Several former colleagues went on in the early 2000s to study the nature of the bowel disease in autistic children, focusing on the pathology of gut tissue and the presence of autoimmune features in the bowel (eg Furlano et al (2001) 'Colonic CD8 and γδ T-cell infiltration with epithelial damage in children with autism', Journal of Pediatrics, Vol. 138, 3).

3. The senior research leader of the Lancet and subsequent papers was Professor John Walker-Smith who in March 2012 had all the charges of professional misconduct made by the GMC quashed on appeal by Justice Mitting in the High Court.

4. Government Minister admits more needs to be done to research autism and bowel disease. Read letter here.



PLOS ONE Journal Information

PLOS ONE (eISSN-1932-6203) is an international, peer-reviewed, open-access, online publication. PLOS ONE welcomes reports on primary research from any scientific discipline. It provides:
•Open-access—freely accessible online, authors retain copyright
•Fast publication times
•Peer review by expert, practicing researchers
•Post-publication tools to indicate quality and impact
•Community-based dialogue on articles
•Worldwide media coverage


Again, conclude what you wish. The future looks promising for sorting all this out, I'd say.
Posted by proverbialwisdom | Sat May 25, 2013, 01:44 PM (2 replies)

KARE 11 TV Minneapolis: “1 in 8 kids in the local Somali community are affected” (VIDEO)

VIDEO: http://www.kare11.com/news/article/984700/391/Autism-program-expands-to-meet-growing-need-in-West-Metro


http://annedachel.com/2012/07/26/kare-11-tv-minneapolis-1-in-8-kids-in-the-local-somali-community-are-affected-video/

KARE 11 TV Minneapolis: “1 in 8 kids in the local Somali community are affected” (VIDEO)

Jul 26, 2012


WHAT IS HAPPENING HERE?????

Nov 24, 2008 David Kirby wrote about the pandemic of autism among the Somalis in Minneapolis. HERE

“On Saturday, November 15, I attended a daylong forum in Minneapolis on autism in the Somali immigrant community there, where the rate of autism among Somali children in the public schools had been reported at 1 in 28 kids.”

Now, four years later, this current story from KARE 11 gives us even more jaw-dropping numbers.

Autism program expands to meet growing need in West Metro
HERE: http://www.kare11.com/news/article/984700/391/Autism-program-expands-to-meet-growing-need-in-West-Metro

“The Centers for Disease Control says 1 in 88 children nationally now have autism, and St. David’s staff says more concerning, state research shows around 1 in 8 kids in the local Somali community are affected.”


These are numbing statistics. Even if the Somali tragedy weren’t a part of this piece, IT’S CLEAR THAT ASD KIDS KEEP ON COMING AND COMING.

“an incredible need in Minnesota”
“get their sensory needs met”
“currently kids age out of this program before they get to the top of the waiting list”


The news anchor asks why the rate is so high among the Somalis. The reporter tells him researchers are “mystified.” Too bad he isn’t interested in why ANY OF THESE KIDS HAVE AUTISM.

My comment:

Notice that when we talk about autism, we’re always talking about children with autism. No one has ever found a comparable rate among adults. That simple fact should be scaring us all. Something is dramatically affecting the health of our children everywhere and no official can tell us why. One in 88. One in 8. These numbers are proof of a health care disaster happening all around us.

Dr. Thomas Insel, head of the Interagency Autism Coordinating Committee set up by Congress to deal with autism warned us, speaking at NIH in 2010, “If you look at those numbers, the increase and recognize how many of those kids will become adults, we …also need to be thinking about how we prepare the nation for a million people who may need significant amounts of services as they are no longer cared for by their parents or as their parents are no longer around.”

This crisis will only continue to grow. It’s time we earnestly and honestly addressed what’s happening to our children.
Anne Dachel, Media editor: Age of Autism



I 'm so sorry.
Posted by proverbialwisdom | Sat May 25, 2013, 03:18 AM (0 replies)

Ok, here.

Journal of Child Neurology

Autism and Dietary Therapy : Case Report and Review of the Literature
Martha R. Herbert and Julie A. Buckley


J Child Neurol published online 10 May 2013 DOI: 10.1177/0883073813488668

The online version of this article can be found at: http://jcn.sagepub.com/content/early/2013/05/09/0883073813488668




Posted by proverbialwisdom | Fri May 24, 2013, 10:47 PM (0 replies)

New study by Dr. Martha Herbert & Dr. Julie Buckley in Journal of Child Neurology on autism and diet

http://www.ageofautism.com/2013/05/new-study-by-dr-martha-herbert-dr-julie-buckley-in-journal-of-child-neurology-on-autism-and-dietary-.html#comments

New Study by Dr. Martha Herbert & Dr. Julie Buckley in Journal of Child Neurology on Autism and Dietary Therapy

Managing Editor's Note: Thank you to Dr. Martha Herbert and Dr. Julie Buckley.

Of special significance is that we have an academic researcher working in conjunction/cooperation with a practicing physician in order to publish academically rigorous case studies that may have an immediate impact on patients. Sure beats another eye gaze study in Amazonian water rats, eh?


Journal of Child Neurology

Autism and Dietary Therapy
Case Report and Review of the Literature

Martha R. Herbert, PhD, MD -1
Julie A. Buckley, MD, FAAP -2


1Pediatric Neurology and TRANSCEND Research, Massachusetts General Hospital, Boston, MA, USA
2Pediatric Partners of Ponte Vedra, Ponte Vedra Beach, Florida; Nova Southeastern University, Fort Lauderdale, FL, USA

Martha R. Herbert, PhD, MD, Pediatric Neurology, TRANSCEND Research, Massachusetts General Hospital, Boston, MA 02129, USA. Email: marthaherbertmd@gmail.com

Author Contributions MRH and JAB contributed equally to this work.

ABSTRACT:

We report the history of a child with autism and epilepsy who, after limited response to other interventions following her regression into autism, was placed on a gluten-free, casein-free diet, after which she showed marked improvement in autistic and medical symptoms.

Subsequently, following pubertal onset of seizures and after failing to achieve full seizure control pharmacologically she was advanced to a ketogenic diet that was customized to continue the gluten-free, casein-free regimen. On this diet, while still continuing on anticonvulsants, she showed significant improvement in seizure activity. This gluten-free casein-free ketogenic diet used medium-chain triglycerides rather than butter and cream as its primary source of fat. Medium-chain triglycerides are known to be highly ketogenic, and this allowed the use of a lower ratio (1.5:1) leaving more calories available for consumption of vegetables with their associated health benefits. Secondary benefits included resolution of morbid obesity and improvement of cognitive and behavioral features.

Over the course of several years following her initial diagnosis, the child’s Childhood Autism Rating Scale score decreased from 49 to 17, representing a change from severe autism to nonautistic, and her intelligence quotient increased 70 points. The initial electroencephalogram after seizure onset showed lengthy 3 Hz spike-wave activity; 14 months after the initiation of the diet the child was essentially seizure free and the electroencephalogram showed only occasional 1-1.5 second spike-wave activity without clinical accompaniments. (see the pdf of the abtract HERE: http://www.rescuepost.com/files/j-child-neurol-2013-herbert-and-buckley-0883073813488668-1.pdf )


Posted by Age of Autism at May 24, 2013 at 5:46 AM in Science


On Wakefield, academic/clinical pediatric gastroenterologist, withdrawn/recalled mmr formulation (1990s in Canada, UK, Japan):
http://www.ageofautism.com/2009/09/mmr-overview-of-the-studies.html
http://www.mothering.com/community/t/1200340/mmr-banned-in-japan

Posted by proverbialwisdom | Fri May 24, 2013, 05:52 PM (3 replies)

K&R

Posted by proverbialwisdom | Thu May 23, 2013, 05:28 PM (0 replies)

Info.

RECOMMENDED: http://www.democraticunderground.com/10022587413

Posted by proverbialwisdom | Thu May 23, 2013, 05:01 PM (0 replies)
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