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Member since: Mon Dec 5, 2016, 05:05 PM
Number of posts: 3,504

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One good thing

I had to have an echocardiogram before chemo (which will start next Tues), and the cardiologist told me my LDL (bad cholesterol) was really low. Told him I got no credit, it's all genetics, that I eat a lot of butter. He said, "Chemo isn't a time to diet--you should eat more butter!" So there's that.
Posted by cyclonefence | Fri Dec 7, 2018, 04:13 PM (6 replies)

My chemo

I've been waiting to have my chemo scheduled, and I got the call last night. They've been holding off until they could get hold of me to make sure I would pay the $1000-plus copay for each treatment. Jesus christ--over a thousand dollars copay. Each. My husband called the insurance company, and they told him not to pay until they review what was ordered, but what the hell am I supposed to do? I've had such an upbeat attitude, even after learning I have triple-negative cancer, one which is likely to recur and which has a lower survival rate than other cancers, and the fact is we can afford to pay this, but it has for some reason totally taken the wind out of my sails, and I just want to curl up and cry--not die, cry--I just want this over with.
Posted by cyclonefence | Fri Dec 7, 2018, 10:07 AM (7 replies)

Spongebob Squarepants creator dies of ALS

From the NY Times:

Stephen Hillenburg, a former marine biology teacher who created a children’s show that ballooned into an unlikely cultural phenomenon, “SpongeBob SquarePants,” died on Monday at his home in Southern California. He was 57.

Mr. Hillenburg announced last year that he had amyotrophic lateral sclerosis, the neurodegenerative condition known as Lou Gehrig’s disease. Nickelodeon, the channel that has been the show’s home since its premiere in May 1999, announced his death.
Posted by cyclonefence | Mon Dec 3, 2018, 06:14 AM (2 replies)

Go Fund Me Scam beneficiary may have been mastermind of plot

According to today's Philadelphia Inquirer, Johnny Bobbitt, the homeless vet who sprang to international fame as the man who gave his last $20 to a stranded young woman motorist, who then set up Go Fund Me page for him, described a similar story in 2012. On his facebook page in 2012 Bobbitt wrote about rescuing a young woman who was stuck in a Walmart parking lot, out of gas and with a spare tire. No one volunteered to help her (and her young children!), so he used the last of his money for gas, and he changed her tire.

Bobbitt has been portrayed of late as the victim of greedy yuppies who raised tons of money for him, then used that money to fund their own lifestyle, with expensive cars and gambling sprees. It seems that they did make free with money meant for him, but it turns out that the whole sleazy idea might have been his in the first place.

For some reason, this story which appeared in the print version of today's Inquirer isn't yet posted in their online edition, but here is it from People's website:


That Go Fund Me for the guy who gave the woman his last $20?

All a fake. Not just what happened to the money, the whole story of Johnny Bobbitt, homeless and drug-addicted, helping out a young woman who ran out of gas in a bad neighborhood by giving her his last $20.

From the Philadelphia Inquirer:

It began like a scene from an urban fairy tale, a perfect, intriguing blend of fear and reassurance. A pretty blond woman, alone late at night, stuck in a car that sputtered to a stop in an unfamiliar neighborhood, approached in the darkness by a haunted face in tattered clothes.

No, Johnny Bobbitt Jr. meant no harm, he would later say. The homeless veteran materialized — out of thin air, it seemed — and offered to use the last $20 in his pocket to buy gas for the stranded Kate McClure, to get her away from an I-95 exit ramp in Port Richmond and back to the arms of her square-jawed boyfriend, Mark D'Amico, in their Burlington County home.

So when McClure and D'Amico created a GoFundMe campaign with the intention of raising a modest $10,000 to help get Bobbitt off the streets, the response was immediate and overwhelming. Whether it was because people felt extra-generous around the holidays, or because they wanted to have a connection to a feel-good story, more than 14,000 donors contributed $402,706 to the account in just one month.

Bobbitt's selfless act, and McClure's and D'Amico's well-intentioned response, made them instant celebrities, the subjects of front-page headlines and sought-after guests for Good Morning America and The Ellen DeGeneres Show.

And it was all a lie.

Every word of it, from the very beginning.

More: http://www2.philly.com/philly/news/homeless-gofundme-scam-kate-mcclure-johnny-bobitt-jr-mark-damico-arrests-charges-20181115.html

Siegfried Sassoon 100 years ago

At dawn the ridge emerges massed and dun
In the wild purple of the glow'ring sun,
Smouldering through spouts of drifting smoke that shroud
The menacing scarred slope; and, one by one,
Tanks creep and topple forward to the wire.
The barrage roars and lifts. Then, clumsily bowed
With bombs and guns and shovels and battle-gear,
Men jostle and climb to, meet the bristling fire.
Lines of grey, muttering faces, masked with fear,
They leave their trenches, going over the top,
While time ticks blank and busy on their wrists,
And hope, with furtive eyes and grappling fists,
Flounders in mud. O Jesus, make it stop!

After surgery

I had a bilateral mastectomy with reconstruction a week ago and am doing fine. Pathology reports came back negative (despite what our *president believes, negative is good when you're checking for cancer) and margins of the tumor removed were clean, so all looks good. The drains are a nuisance, but pain is minimal, which surprises me. Honestly, I have taken a total of 7 pain pills, including during my overnight in the hospital. The pains I do get seem to be positional, and when I change position, the pain goes away, so I don't see the point of constipating myself for a pain that's going to go away anyhow.

I do have a chemo port, but I'm assuming that will be removed. I don't know why I'd be getting chemo if everything is clear and contained. But who knows? I did chemo the first time around, and it wasn't as horrible as I'd thought it would be. I can take it a second time. I've avoided getting a haircut because I assumed I'd have chemo and my hair would fall out again, but if I don't have chemo, I'll have the worst hairdo in town until I can get somebody to cut this.

Thanks again for all the good wishes from you here. Positive vibrations cannot but help.

Bad Times at the El Real *spoilers*

Wow. This movie blew me away.

I wonder if anyone who was not at least a teenager in the '60s will appreciate it. You need to know about J. Edgar Hoover and his hard-on for finding dirt on MLK, about the Manson Family, about dirty tricks in Nixon's administration, about Viet Nam and fragging--and oh, the glorious music!

Thank you all for your kind words

You can't know how much your support means to me. I'm sort of a loner, so I don't have many people other than my husband to vent to, and I really hate burdening him with what is essentially the same old shit day after day--to wit: Why can't we get moving on this? I'm going crazy waiting for things to happen!

I saw the plastic surgeon again today, and I made him promise not to make me look like a teenager. I go for my final pre-surgery visit with the surgeon on Wednesday and then to the hospital for pre-admission stuff on Thursday. Surgery is scheduled for the 23rd.

It can't come soon enough. This tumor is growing, it really is. My left breast, which was smaller than my right one, no longer hangs as low. And it sort of burns. I want this thing out of me.
Posted by cyclonefence | Mon Oct 8, 2018, 06:33 PM (9 replies)

I got the CAT scan and the bone scan

last week, and I saw a plastic surgeon. My original plan was to have a mastectomy with no reconstruction, mostly because I'm an old lady and didn't want one floppy original breast and one pert fake breast. But my oncologist suggested I think about a bilateral mastectomy with reconstruction, and out of love for my husband, I decided to do that, despite my dislike of the idea of implants. My husband fully supported my no reconstruction--he is truly on my side in this--but I know he will be uncomfortable with a flat, scarred chest on one side. We have a shamefully active sex life, and his comfort is important to me.

And I do like the idea of having both breasts removed, not worrying about another recurrence.

So that's where I am now. Surgery is scheduled for the 23rd. Next week I have final appointments with the surgeon, plastic surgeon and the hospital. I think I've had all the tests I can get, and I'm ready to get this over with.
Posted by cyclonefence | Sat Oct 6, 2018, 04:25 PM (6 replies)
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