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leighbythesea2

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Gender: Female
Hometown: midwest
Home country: usa
Current location: ohio
Member since: Thu Mar 5, 2020, 02:11 PM
Number of posts: 1,020

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Trigeminal Neuralgia/MS- Anyone w experience?

Hello all. My sister suffers from MS (43). But it's been decently manageable.
She now has developed Trigeminal Neuralgia.
A friend of mine had it 25+ years ago, and I was quite active in his treatment. (Eventual surgery). My aunt also had it, also ultimately had surgery.

The gap in time between these other people treating it, and the current agony my sister is experiencing--- is a lot of years.
I know surgery is still very common.
The drs have her on gabapentin. And then, today, tapered steroids--for the week.
Has anyone here had exposure to:
This condition.
These kinds of therapies?
Any 1st hand knowledge is very much appreciated! Im heartbroken for her. Such an awful disease.

Posted by leighbythesea2 | Tue Mar 15, 2022, 10:50 PM (10 replies)
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