General Discussion
In reply to the discussion: Thank God Facebook is down [View all]Ms. Toad
(34,006 posts)Do you suggest that they figure out how to transport themselves to those other alternatives, find the extra time in the day it takes to ride the bus (often hours) to get to a healthier, more economical alternative? Or that they build new stores in their neighborhoods because convenience stores are calorie-filled nutritional wastelands.
If you haven't seen it before, educate yourself about the impact of living with a limited supply of spoons.
https://butyoudontlooksick.com/articles/written-by-christine/the-spoon-theory/
So while it is theoretically possible to find an alternatve, it takes more spoons than we have to spare. And frankly we have a lot better things to spend our limited supply of spoons on than tossing a functional tool that provides a home for the supportive community and finding/creating a replacementmerel because someone who is clueless about living on a limited supply of spoons, and the need for the communities that exist on facebook, can't figure out how to restrain their impulses to use th tool for evil.
Facebook is the primary location for most medical support groups. Until that changes, it is where communities for people with rare disease need to be. Finding support and information when you are newly diagnosed with a disease that only a few thousand, or even a few hundred thousand, have is nearly impossible. Prior to facebook there were other listservs where people knew to go for medical support (or which came up on search engines). Those have largely all vanished or migrated to facebook. Providing a safe landing space for those newly diagnosed is critical, and making it harder to find that safe landing space is unacceptable.