General Discussion
In reply to the discussion: I bleed red. I support intervention in Syria. [View all]IdaBriggs
(10,559 posts)a) Never sold a dratted thing. We are a non-profit, and have zero financial interests in any of the products.
b) NO ONE at Preemie Growth Project receives *any* compensation of any kind what-so-ever. Period. The people involved (including myself) are strictly volunteers. You can discuss your contempt for them on Facebook at the "Preemie Growth Project Parent Group" where they will share their opinions on the Project with you. (Please come - it should be fun to watch!)
c) "Cure" is a strong word, and my early ignorance of its appropriate use was and has been corrected. We are politely using "cause, prevention, and treatment" to describe the effects on *some* forms of cerebral palsy. We are also extremely clear that is is "early stages" of investigation, and we are still figuring a lot of this stuff out. (The effects on sensory processing, for example, were completely unexpected.)
The information we have is actually based on extremely well documented medical textbooks/papers, and appears to be a major breakthrough in the understanding of neuromuscular issues. We can turn sensory issues on-and-off like a water faucet, have good statistical data on the types of issues that are seeing benefit (and those that aren't), a regular pattern of identifiable improvement, and are working with medical professionals all over the world (literally - 38 states, 6 countries, and folks everywhere from the NIH to World Health paying attention). They will investigate, and write the papers. We will support their research and investigation.
In the meantime, I've got 121 children seeing "dramatic improvement" and another 40 who saw no improvement. 74% of my "failure to thrive" children are no longer in that category within 90 days. Children who were confined to wheelchairs are walking. (My favorite story in this vein is of a child who was using a walker, got frustrated because of a snowfall situation, and just picked it up and started carrying it - woo hoo! Mom about fell over.)
So, while I appreciate your passion for defending vulnerable populations from attempted fraud, I can politely assure you that there is nothing to worry about here. I would also advise you to "self-delete" the comment because as this gets more wide-spread attention (the compounds are available over-the-counter under many different labels, and we have good reports on almost all of them), you *will* end up looking ... foolish.
But I am good either way, because one of the mom's in our parent group posted this:
"We have just started the minerals 5 days ago and I was wondering if anyone has seen a reduction in tone? We have been going to myofascial release twice a week for more than 3 years and today his therapist commented that his hamstrings weren't too bad. Normally she has to give him a good stretching all over. I just thought the comment was worth noting."
Nope, she wasn't the first, and the other moms have been chiming in - tee hee! (The breakdown for speed of response is 1/5 sees *very fast* response, 2/5 see "good" within 8 weeks, 1/5 see "slow" within 16 weeks, and 1/5 see nothing. )
Life is good.