Dying patient, 30, 'was kicked out of hospital for being "uncooperative" and forced into a taxi wher

[deurbano]

82. Thank you!

Thank you so much for relating your son’s story! (Stories like his are very uplifting to my family right now.) And congratulations! I am so happy for his NED status (I hadn’t heard that acronym before, but it sure has a beautiful ring to it), and also so appreciative that you took the time to share his/your experience.

My daughter has a very good prognosis, but is also going through a lot of crap on her way there. She checked into the hospital (11th floor) for what she/we thought would be a week , and has now been there more than 5 weeks (thru two rounds of chemo… and Thanksgiving), and it looks like she will be there through Christmas and the third round of chemo (out of 6 total), too. The disabilities she brought with her have combined with her particular type of lymphoma and the chemo to create a rougher than average experience … but the good news (and the most important) is that the chemo has been very effective, and her tumor shrank more than 40% (better than expected) after just the first round. So… she has to (and we have to) keep the focus on that most important part… and keep going. Some days, that is harder to manage than others, but the wonderful support from the nurses, doctors and other staff have helped sustain her (and us) through this unexpected journey.

Thanks again for taking the time to relate your own experience… and to extend your kind words of support. This is a such a rough time, and as you said, I feel so helpless (while trying to act much stronger and more upbeat than I feel—for my daughter’s sake, and the sake of her younger brother and sister), but there are also some moments of pure beauty in this experience (if experience this she/we must), and your post is a perfect example.