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I'm pretty upset right now, and I need an explanation [View All]

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WilliamPitt Donating Member (1000+ posts) Send PM | Profile | Ignore Tue May-17-05 12:02 PM
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I'm pretty upset right now, and I need an explanation
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Edited on Tue May-17-05 12:09 PM by WilliamPitt
As you all know, I was one of the people who took point on raising money for Andy. I wrote about it for truthout two or three times, and convinced the crew at Progressive Democrats of America as well that we needed to raise a call for help.

This is what I wrote for truthout on May 3rd:

"A few weeks ago, Andy was diagnosed with pancreatic cancer, one of the more dangerous varieties of the disease. His doctors told him he needed a Whipple procedure to get at the tumor, and only a few hospitals in America can perform this complicated procedure with the required competence. To compound the problem, Andy shares the plight of millions of others in our disgusting for-profit health care system and does not have health insurance."

This is what I wrote on the PDA blog, in our call for help, on April 29th:

"Several weeks ago, Andy was diagnosed with pancreatic cancer. He was recently told that he must undergo what is called a Whipple Procedure. This is a very serious surgery that few hospitals in America are skilled enough to perform well, and requires significant time for recovery. Fortunately, some friends managed to get Andy a slot at Johns Hopkins Medical Center, one of the premier hospitals for this type of procedure. He is slated for the procedure in the second week of May. Unfortunately, the hospital requires a $25,000 down-payment before they assent to doing the Whipple, and requires another $25,000 once the procedure is done. They are expecting the down-payment immediately."

The basis for this started way back in February. On the 29th, I posted this truthout blog entry, which I reposted here on the first and fifteenth of every month to help raise money:

"For the last several weeks, Andy has been suffering through a bout of Hepatitis. The word came down yesterday, however, that his situation is far more serious. 'I apparently have a tumor growing around the bile duct where it passes through my pancreas," he wrote. "The tissue sample was consistent with malignancy; it could be benign but I am planning for the worst.'"

Note that here it says 'tumor.' In subsequent weeks I was told that it was pancreatic cancer requiring a Whipple. Note also that the fundraising for Andy did not start a week or so ago, but started three months ago.

I woke up today to this DU thread, in which it was reported:

"fyi: it is a tumour on the duct, not the pancreas themselves. it looks to not have spread at all. it is not pancreatic cancer as others have posted, but if it was not caught early enough, it would have certainly spread there."

"...as others have posted..."

I am one of those "others" who posted it was pancreatic cancer, requiring a Whipple. I posted it here, on truthout, and on PDA. I did so because that is what I was told was the diagnosis, repeatedly, by both Andy and others.

Now that it turns out not to be the case, I have some questions:

1. If it was not the very serious pancreatic cancer, why did the surgery need to be done at Johns Hopkins?

2. If a Whipple was not required, why was $25,000 and then $50,000 needed for this surgery? Andy could have gotten this far-less-serious procedure done back in Seattle for a hell of a lot less money.

3. Why was I personally told this was pancreatic cancer? Why was I allowed to repeat this now-inaccurate diagnosis many times without anyone correcting me?

Understand: I believe Andy has a tumor of some kind, and this requires medical attention. I do not think this entire situation was fabricated from nothing.

But the 400 people who will come into this thread with "Andy doesn't need this stress" can hold your water. Andy is apparently a hell of a lot less ill than I and others were led to believe, and I need some answers. I put my reputation, the reputation of truthout, the reputation of PDA, and the reputations of all the people who work for those organizations on the line not once, not twice, but every day for weeks on this. I have a huge, huge responsibility here, and I am not going to just let that drop.

I have a personal reason for asking these questions over and above everything else. A great and good friend of PDA, activist Damu Smith, was recently diagnosed with advanced colon cancer. There is no ambiguity about this diagnosis. But because I was told Andy had pancreatic cancer requiring a $50,000 Whipple in the best hospital on the Eastern seaboard, I talked PDA into diverting time and resources towards Andy. This wound up diverting time and resources away from Damu.

I would like some answers. No wait and see. I have spent time with Andy, worked with him, thought I knew him well enough to vouch for him in a time of crisis. I am feeling personally betrayed right now, and furthermore I have put far more than my own feelings and standing on the line here.

If you think I'm a bastard for asking, I will live with that. But if this is not explained to a degree I find satisfactory, there is going to be hell to pay.
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