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My Alzheimer's stepdad now has very advanced prostate cancer; this is it

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liberalhistorian Donating Member (1000+ posts) Send PM | Profile | Ignore Mon Oct-15-07 09:39 PM
Original message
My Alzheimer's stepdad now has very advanced prostate cancer; this is it
My stepdad only just turned 64, but has suffered from Alzheimer's-related dementia for over six years now; he had to retire early from teaching. He's been acting very lethargic for the past year, but my mom and the doctors just assumed it was due to his advancing dementia. But a PSA test a couple months ago showed an elevated number. The doc put him on antibiotics for a month to see if it was an infection and if the number would go down; the number not only didn't go down, it went up. So, they finally got around to doing a biopsy last week (funny how slow docs seem to be when a patient has dementia or related disease, or is older-does it not matter as much to them?). He had complications from the biopsy, had to be rushed back to the ER, admitted to the hospital and they finally got the bleeding under control.

So, I just talked to my mom (I'm four states away), who talked to the doctor today. She didn't beat around the bush, just came right out and said not only was it prostate cancer, but it was advanced. She has an appointment Friday to go over all the options, but, at this point, and with his Alzheimer's, they're not sure if there even ARE any options, except for pain control (translation: it's all over, there's no point, go get his affairs in order and we'll pump him full of painkillers for you). She hadn't yet talked to my stepsister, his daughter, but was calling her next; she only lives a couple of hours away. My teenage son is beside himself; not only has he had to deal with my stepdad's condition, but my stepmother was just recently diagnosed with early-stage Alzheimer's as well (bizarre, isn't it, both my natural parents are sharp as tacks mentally and healthy physically, but not the stepparents).

This is not real right now. It was always other friends/co-workers/acquaintances, or distant relatives, who had to deal with this. I can feel the intense pain from under the shock, though, and it's coming. For 39 years, since I was three years old, this man has been in my life. He has an MA in English, was a great English teacher, poetry writer, friend. To watch his complete mental, and accompanying physical, decline these past several years has been just horrendous; especially when you know what he once was (and now I'm gonna have to watch my stepmom go through the same damn thing these next several years).

I knew he wouldn't be able to come to my November 23 wedding, the travel would just be too hard on him and my mom, his caretaker, and he wouldn't understand it or be able to handle it, anyway. But now it looks as though my mom won't be able to come, either, and, while I don't know for sure, my dad and stepmom likely won't be able to make it as well. I'm beginning to think maybe we should just scrap all wedding plans, get a few friends together, and just do it. What's the point if none of my parents can be there, and it's a small ceremony anyway?

And I'm feeling sick now, emotionally, mentally, physically. But my fiance is out of town for work during the week, staying at the house we'll be moving into in a month or so, where we don't yet have a phone and I can't get ahold of the friends I've tried to call. I just wish I could find a hole to crawl in and disappear.
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The Velveteen Ocelot Donating Member (1000+ posts) Send PM | Profile | Ignore Mon Oct-15-07 09:52 PM
Response to Original message
1. I'm so sorry!
:hug:
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JohnnyLib2 Donating Member (1000+ posts) Send PM | Profile | Ignore Mon Oct-15-07 10:08 PM
Response to Original message
2. That's such an awful burden to have.

We are too familiar with both diseases in this family. It helped me to hit a point of saying, "hell, it's happening and I have to and want to do what I can and I WILL." It really sounds like you are at that point (after you give up on finding that hole). The dread, the horror, the worrying ahead lose some intensity when you get into some kind of action, even if it is rallying support for the distant family. Reading, support group, talking to others who are going through it--all fit in somewhere.

I hope this doesn't seem unkind. My experience has been something like "no--no--NO--oh, hell, yes."

You have all the wishes for strength and peace of mind that I can send.

:hug:
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liberalhistorian Donating Member (1000+ posts) Send PM | Profile | Ignore Mon Oct-15-07 10:14 PM
Response to Reply #2
3. Thank you, and no, I understand exactly
what you're saying, really. The only real blessing is that he doesn't understand what's happening himself, so he doesn't even know about it. It's just a lot worse for the rest of us who DO know about it.

Damnit. He should have had many more years left, without dementia or cancer. And my mom is still mentally and physically sharp and in shape at 66, she should have been able to enjoy many good retirement years with him. Damn, damn, damnit.
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w8liftinglady Donating Member (1000+ posts) Send PM | Profile | Ignore Mon Oct-15-07 10:19 PM
Response to Original message
4. as a nurse,allow me a few secs..
I have seen people die a miserable death because their family members didn't understand the outcome.
Alzheimer's is a terrible disease.I have had family members tell me multiple times"I wish daddy would just die"My condolences.Please pm me if you have medical questions
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liberalhistorian Donating Member (1000+ posts) Send PM | Profile | Ignore Tue Oct-16-07 10:22 AM
Response to Reply #4
17. Yes, I know you're right, and it may actually be better
this way than the continued progression of Alzheimer's (he's at the stage where we're looking at nursing homes). But damn, that doesn't the end any less painful.

She had been looking at nursing homes, but we've decided that, at this point, she'll just use the money she would have used for the nursing home and hire some home-care help and keep him at home. He likely really doesn't have all that much time left at this point, so there's no point in having their money all sucked up by a nursing home.
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EFerrari Donating Member (1000+ posts) Send PM | Profile | Ignore Mon Oct-15-07 10:22 PM
Response to Original message
5. If that were me, I'd be in bed, not thinking at a keyboard.
Take such very good care of you.

(((((((((((liberalhistorian)))))))))))

:hug:
:grouphug:
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madrchsod Donating Member (1000+ posts) Send PM | Profile | Ignore Mon Oct-15-07 10:38 PM
Response to Original message
6. when it rains it pours
i remember the problems you have had over the years and i see you have found someone and now this....so if you need anything or just a shoulder you know we are here for you.
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DeposeTheBoyKing Donating Member (1000+ posts) Send PM | Profile | Ignore Mon Oct-15-07 10:41 PM
Response to Original message
7. I'm so sorry
My sympathies go out to you during this awful time. From one troubled heart to another...:hug:
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liberalhistorian Donating Member (1000+ posts) Send PM | Profile | Ignore Tue Oct-16-07 11:55 AM
Response to Reply #7
18. Thanks, hon, and my sympathies to you and
your family, too! :hug:

When it rains, it pours, eh?
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devilgrrl Donating Member (1000+ posts) Send PM | Profile | Ignore Mon Oct-15-07 10:44 PM
Response to Original message
8. I am so sorry :-(
:hug:
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liberalhistorian Donating Member (1000+ posts) Send PM | Profile | Ignore Mon Oct-15-07 10:54 PM
Response to Original message
9. Thanks, everyone, I really appreciate it!
You guys are the greatest here!
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Zoigal Donating Member (1000+ posts) Send PM | Profile | Ignore Mon Oct-15-07 10:55 PM
Response to Original message
10. My sympathy, liberal historian
Have visited Alzheimer wards many times with my therapy dogs. Most of the patients
didn't appear to be unhappy or depressed at least. Many still enjoyed petting the dogs
and some even responded to conversation. But it is so difficult for the folks who love them.
Sigh. Your mom is going to need a lot of support, as is your dad and son. And you, too.
Are there any support groups in their (and your) areas?

Hope your are able to contact your fiance soon...contact me if i can be of any help. p
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liberalhistorian Donating Member (1000+ posts) Send PM | Profile | Ignore Tue Oct-16-07 10:18 AM
Response to Reply #10
15. You're right, there does come a time in the progression
of it where it's much worse for the family and friends than the person himself. It's just so hard to see someone who was so mentally vital turn into a two-year-old child and to know that the person they once were is never coming back. My stepdad's at the end, now, but my stepmom is just beginning that terrible journey.
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texanwitch Donating Member (1000+ posts) Send PM | Profile | Ignore Mon Oct-15-07 11:00 PM
Response to Original message
11. My 83 year old father is very ill now, I know how you feel.
I am taking care of him at my house, that is when he isn't at the VA hospital.

You have to stay strong for your step father, it isn't easy.

Be sure to take care of yourself also, the stress of dealing with ill parent can take its toll.

Don't dwell to much on the illness and enjoy the time with your stepfather.

I was never close to my father, but I view the time now as a blessing.

:hug:
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Sugar Smack Donating Member (1000+ posts) Send PM | Profile | Ignore Tue Oct-16-07 02:27 AM
Response to Original message
12. My father has early-stage Altzheimer's.
I'm so sorry. :hug:
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liberalhistorian Donating Member (1000+ posts) Send PM | Profile | Ignore Tue Oct-16-07 10:16 AM
Response to Reply #12
14. I'm really sorry to hear that, especially
because I know what you are going to be dealing with as things progress. Enjoy as much time with him as possible while he's still in the more lucid stages.
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Sugar Smack Donating Member (1000+ posts) Send PM | Profile | Ignore Tue Oct-16-07 07:46 PM
Response to Reply #14
22. My God. I heard this at work and almost dissolved.
Edited on Tue Oct-16-07 07:47 PM by Sugar Smack
"Sailing down behind the sun,
Waiting for my prince to come.
Praying for the healing rain
To restore my soul again.

Just a toerag on the run.
How did I get here?
What have I done?
When will all my hopes arise?
How will I know him?
When I look in my father's eyes.
My father's eyes.
When I look in my father's eyes.
My father's eyes.

Then the light begins to shine
And I hear those ancient lullabies.
And as I watch this seedling grow,
Feel my heart start to overflow.

Where do I find the words to say?
How do I teach him?
What do we play?
Bit by bit, I've realized
That's when I need them,
That's when I need my father's eyes.
My father's eyes.
That's when I need my father's eyes.
My father's eyes.

Then the jagged edge appears
Through the distant clouds of tears.
I'm like a bridge that was washed away;
My foundations were made of clay.

As my soul slides down to die.
How could I lose him?
What did I try?
Bit by bit, I've realized
That he was here with me;
I looked into my father's eyes.
My father's eyes.
I looked into my father's eyes.
My father's eyes.

My father's eyes.
My father's eyes.
I looked into my father's eyes.
My father's eyes."

Eric Clapton


:cry: Oh, God.
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Eurobabe Donating Member (1000+ posts) Send PM | Profile | Ignore Tue Oct-16-07 05:11 AM
Response to Original message
13. Very sorry LH
Maybe a hug would help? :hug:
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lizziegrace Donating Member (1000+ posts) Send PM | Profile | Ignore Tue Oct-16-07 10:21 AM
Response to Original message
16. ...
:hug:

I can't even imagine watching someone you love become someone you can't recognize. That's so sad. Life can be so unfair. :(

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applegrove Donating Member (1000+ posts) Send PM | Profile | Ignore Tue Oct-16-07 06:05 PM
Response to Original message
19. Awe. You are getting it all at once. Sending vibes to your stepdad.
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cuke Donating Member (1000+ posts) Send PM | Profile | Ignore Tue Oct-16-07 07:36 PM
Response to Original message
20. I'm so sorry
My 76yo mom has Alz. She's in late stage 5 with a bit of Stage 6 symptoms. I can't imagine how hard it must be for you to have this with two parents.

"This is not real right now"

I remember the moment it hit me. I had brought my mom to a dr after bugging her for 2 years. Her behavior had me worried. After examining her for a few minutes, he came out and pulled me aside and said I should have my mom evaluated for Alz. And everything changed

Even though Alz was the reason why I had brought my mom in in the first place, hearing him say it sent me spinning. Or maybe it was the fact that it only took him a short time to come to that conclusion. Or maybe grief doesn't need to make sense. It sneaks in and waits for the right opportunity to pull the rug out from under you.

I eventually sought out counseling, as I felt as if I was about to have a nervous breakdown. It has helped a lot, and if you continue to feel "unreal" (and even if you don't) you should consider it for yourself. There's also the Alzheimer's Association website, which also has a disussion board, and other support groups. If you're not already aware of the resources out there, or if you just want to talk, feel free to PM me. I quit my job so I can watch my mom 24/7 so I have plenty of time to talk.

And take care of yourself. You can't help anyone if you're a wreck.
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KamaAina Donating Member (1000+ posts) Send PM | Profile | Ignore Tue Oct-16-07 07:40 PM
Response to Original message
21. Aaaaaugggh! And here I am throwing all this other stuff in your face.
Probably not what you need to be reading right now...
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Cabcere Donating Member (1000+ posts) Send PM | Profile | Ignore Tue Oct-16-07 07:48 PM
Response to Original message
23. I'm so sorry to hear that, liberalhistorian.
:( Alzheimer's is a terrible disease - my grandmother is in the last stages, so I can understand a little bit of what you must be going through. :hug: Your stepfather sounds like a wonderful man, and I'm really sorry to hear that this is happening to him - and at such a young age, too! I don't know what to tell you, except that I'm sending thoughts, prayers, and good vibes your way. :hug: Peace.
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