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WillYourVoteBCounted Donating Member (1000+ posts) Send PM | Profile | Ignore Fri Aug-22-08 07:36 PM
Original message
"Aluminum/hpv coctail"

aluminum/hpv coctail

Friday, August 22, 2008

Phillip and Barbara Tetlock, both professors at the University of California at Berkeley, are asking whether Gardasil shots that their daughter, Jenny, received last year contributed to her illness, an extremely rare form of progressive paralysis that has left her bed bound and needing assistance to breathe at age 14.

The Tetlocks, who are not pursuing legal action, are appealing to the C.D.C. and Merck for more data and searching for other girls with similar conditions through their blog (www.jenjensfamily.blogspot.com). “Her parents are scientists — they know better than to assume Gardasil caused her disease,” said Terry Murray, a close friend speaking for the family. “But you have to explore the possibility.”

There is no desire to turn Jenny into a poster child for any of the many anti‐Gardasil campaigns, either on the extreme left or right, or to politicize Jenny’s case in any way. While there is concern on the part of some of her physicians that her Gardasil injections could have had a triggering‐effect, there is no medical or scientific evidence connecting her condition to Gardasil at this time.


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TZ Donating Member (1000+ posts) Send PM | Profile | Ignore Fri Aug-22-08 07:39 PM
Response to Original message
1. there is no medical or scientific evidence connecting her condition to Gardasil at this time.
Edited on Fri Aug-22-08 07:40 PM by turtlensue
D'uh! And there is no "aluminum" in Gardasil..Its aluminum hydroxide (which btw is in Hep A, Hep B, and all sorts of other vaccines)
and if you think this is the same as aluminum I suggest you look up the difference between deadly Chlorine and Sodium Chloride (salt)

And inactivated virus in a vaccine is harmless.
More wooshit.
btw..spelling might make you NOT look like a 5th grader...cocktail.
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flyingobject Donating Member (324 posts) Send PM | Profile | Ignore Fri Aug-22-08 07:46 PM
Response to Reply #1
2. I think that
Edited on Fri Aug-22-08 07:47 PM by flyingobject
you are bitching at the wrong person. The OP is just pasting someone's blog here,
that wasn't written by the OP.

Perhaps you should go to the original blog, which is linked, and put your attack
there.

To use your own words..Reading and checking the links "might make you NOT look like a 5th crader....cocktail."
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TZ Donating Member (1000+ posts) Send PM | Profile | Ignore Fri Aug-22-08 07:51 PM
Response to Reply #2
4. Oh no
I'm bitching at the right person..SPAMMING THE board with political and non-scientific crap.
But I forgot--this is the health forum..Science has NOTHING TO DO WITH IT.
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WillYourVoteBCounted Donating Member (1000+ posts) Send PM | Profile | Ignore Fri Aug-22-08 09:24 PM
Response to Reply #4
12. Science, unlike religion, allows for questioning even if critics viciously attack
And some people SPAM this board with attacks on those who question Merck's marketing strategy.

Yep, nothing scientific about smearing people who question the pharmaceutical line.
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varkam Donating Member (1000+ posts) Send PM | Profile | Ignore Fri Aug-22-08 07:56 PM
Response to Reply #2
7. The OP doesn't write anything that they post.
They mostly recycle stuff from the around the web about how evil gardasil is and then attacks anyone that disagrees with her.
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WillYourVoteBCounted Donating Member (1000+ posts) Send PM | Profile | Ignore Fri Aug-22-08 09:29 PM
Response to Reply #7
15. No, the OP GETS attacked by you and others who don't like criticism of this vaccine
its everywhere. of course the attackers and critics are careful to parse their
words.

Its always thinly veiled. I don't criticize you, I do find your attacks to
be quite nasty.
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varkam Donating Member (1000+ posts) Send PM | Profile | Ignore Sat Aug-23-08 05:45 AM
Response to Reply #15
40. Oh? You never called me a shill? You never called me a "sick puppy"? You never...
Edited on Sat Aug-23-08 05:45 AM by varkam
hypothesized that I lived in my mother's basement or that she took my video games away?

Please - find one thing that I ever called you.
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beam me up scottie Donating Member (1000+ posts) Send PM | Profile | Ignore Fri Aug-22-08 10:20 PM
Response to Reply #7
19. She doesn't read it either or she wouldn't have used Jenny to further her own agenda.
There is no desire to turn Jenny into a poster child for any of the many anti‐Gardasil campaign


So what does WYVBC run right out and do?

:puke:
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WillYourVoteBCounted Donating Member (1000+ posts) Send PM | Profile | Ignore Fri Aug-22-08 11:07 PM
Response to Reply #19
23. This came from the NY Times, think maybe some people read it?
maybe not. Maybe they were told it would be "unscientific" or "prudish" to read
criticism of Gardasil.

:rofl:
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beam me up scottie Donating Member (1000+ posts) Send PM | Profile | Ignore Fri Aug-22-08 11:18 PM
Response to Reply #23
27. Did you read the pdf that you linked to?
Did you?

If you republish Jenny’s case, or post any materials related to Jenny, we request that you follow the guidelines listed below.

1. Do not include Jenny’s full name in any public postings or
communications.

2. Jenny’s parents are both respected professors at a leading university.
Please do not refer to them by name, or identify the institution.

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WillYourVoteBCounted Donating Member (1000+ posts) Send PM | Profile | Ignore Fri Aug-22-08 07:50 PM
Response to Reply #1
3. Her parents are "asking whether Gardasil shots" contributed to their daughter's paralysis
and of course we don't have proof yet, we need data. We sure DO have a connection between
cause and event.
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TZ Donating Member (1000+ posts) Send PM | Profile | Ignore Fri Aug-22-08 07:54 PM
Response to Reply #3
6. Hmm.
So she got paralyzed within hours of the shot and she lived in a bubble with no exposure to something else?
Most people who react badly to a vaccine have underlying health conditions that likely would have appeared sooner or later.
Amazing how this vaccine is perceived differently from all other vaccines when its not..except its for an STD and that seems to be a trigger.
I wonder how much screeching about a harmful vaccine we will hear when an HIV vaccine hits the market.
Plenty I bet.
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varkam Donating Member (1000+ posts) Send PM | Profile | Ignore Fri Aug-22-08 07:57 PM
Response to Reply #3
8. A temporal connection. Not a causal connection. Big difference, there.
There's a temporal connection between the sun coming up and me eating cereal - that doesn't mean that the sun coming up causes me to eat cereal.
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WillYourVoteBCounted Donating Member (1000+ posts) Send PM | Profile | Ignore Fri Aug-22-08 09:25 PM
Response to Reply #8
13. and scientifically “But you have to explore the possibility.”
questions need to be asked and answered.

Or we could play blind faith and accept what the Gardasil commercials and the attackers say.
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varkam Donating Member (1000+ posts) Send PM | Profile | Ignore Sat Aug-23-08 05:46 AM
Response to Reply #13
41. And that's exactly what the CDC is doing.
What I and others object to, is the fact that some here are flat-out assuming that there is a connection.
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beam me up scottie Donating Member (1000+ posts) Send PM | Profile | Ignore Fri Aug-22-08 07:53 PM
Response to Reply #1
5. Did you check out the blog? "pricks@merck", "guard us all from gardasil"
And how desperate would you have to be to quote spell-check challenged blog entry to support your cause?
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Fire_Medic_Dave Donating Member (1000+ posts) Send PM | Profile | Ignore Fri Aug-22-08 08:08 PM
Response to Original message
9. The father thinks she was genetically predisposed.
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cosmik debris Donating Member (1000+ posts) Send PM | Profile | Ignore Fri Aug-22-08 08:18 PM
Response to Original message
10. This bears repeating. From your article:
"...there is no medical or scientific evidence connecting her condition to Gardasil at this time."

I couldn't have said it better myself.
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WillYourVoteBCounted Donating Member (1000+ posts) Send PM | Profile | Ignore Fri Aug-22-08 09:27 PM
Response to Reply #10
14. "AT THIS TIME" and Dr. Harper: “The Tetlocks are right to ask these questions,”
AND those who also ask questions are right to do so, in spite of the effort to
personally insult and attack those who do.

I can't help repeating it either, there isn't the kind of evidence needed
unless a real investigation is done.

By someone who doesn't benefit financially from the results.
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cosmik debris Donating Member (1000+ posts) Send PM | Profile | Ignore Fri Aug-22-08 09:44 PM
Response to Reply #14
16. It is a silly emotional appeal.
Edited on Fri Aug-22-08 09:57 PM by cosmik debris
There is no medical or scientific evidence connecting her condition to cotton or peas or bacon or nylon or power lines or cell phone towers or residual radiation from the first atomic bomb (That created Godzilla) or Gardasil or any of the other hundreds of dietary and environmental factors--at this time.

But they only want to ask questions about the big bad Gardasil.

Even though there is no medical or scientific evidence connecting her condition to Gardasil at this time, you and the others have singled out this unlikely culprit because you fear it, not because there are rational reasons to suspect it.

This is the perfect example of an emotional appeal based on anecdotal evidence with absolutely no scientific validity.

And it's pretty low when you drag a young girl through the mud just to satisfy your grudge against Merck.

If you have any shame, this would be a good time to exercise it.

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WillYourVoteBCounted Donating Member (1000+ posts) Send PM | Profile | Ignore Fri Aug-22-08 11:03 PM
Response to Reply #16
20. another personal attack "its silly" oh and "shame" blah blah blah
what a bunch of whining.
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cosmik debris Donating Member (1000+ posts) Send PM | Profile | Ignore Fri Aug-22-08 11:13 PM
Response to Reply #20
24. What's personal? I said nothing about you personally. But I can.
You are just puking up the same talking points over and over and over and over over and over and over and over over and over and over and over over and over and over and over over and over and over and over over and over and over and over over and over and over and over over and over and over and over

and over.

And that shame comment seems to have hit a nerve!

All you have is an intense hatred that is eating you up and making you behave badly. It is shameless and you would see that if you were not so consumed by your own hatred. You must be in real pain not to notice the humiliation you have brought upon yourself.
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WillYourVoteBCounted Donating Member (1000+ posts) Send PM | Profile | Ignore Fri Aug-22-08 11:32 PM
Response to Reply #24
28. "All you have is an intense hatred that is eating you up and making you behave badly"
Serious case of projection going on there, eh? Oh I'm sorry, I am not a medical
doctor and can't make that diagnosis.

VAERS VAERS and that Prudish New York Times, they have an agenda.

Those right wingers!

Anti science!!!
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cosmik debris Donating Member (1000+ posts) Send PM | Profile | Ignore Fri Aug-22-08 11:43 PM
Response to Reply #28
31. Yep, that's exactly the kind of post I'm talking about. n/t
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beam me up scottie Donating Member (1000+ posts) Send PM | Profile | Ignore Fri Aug-22-08 09:18 PM
Response to Original message
11. "There is no desire to turn Jenny into a poster child for any of the anti-Gardasil campaigns
Edited on Fri Aug-22-08 09:21 PM by beam me up scottie
So you have their permission to publicly crucify their daughter to support your agenda?


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trotsky Donating Member (1000+ posts) Send PM | Profile | Ignore Fri Aug-22-08 09:53 PM
Response to Reply #11
17. Isn't that just disgraceful?
WYV posts an exact quote that shows she is exploiting this child for her agenda.

That pretty much says it all.
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beam me up scottie Donating Member (1000+ posts) Send PM | Profile | Ignore Fri Aug-22-08 10:15 PM
Response to Reply #17
18. Yeah, no deed is too dirty when you're on a crusade.
It's obvious that it's too much trouble to read what she's copying before she posts it, why would she respect the people she nails on that cross?
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WillYourVoteBCounted Donating Member (1000+ posts) Send PM | Profile | Ignore Fri Aug-22-08 11:06 PM
Response to Reply #18
22. More personal attacks - what no facts available? Merck needs this vaccine more than we do
they need the money to pay the Vioxx victims.
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WillYourVoteBCounted Donating Member (1000+ posts) Send PM | Profile | Ignore Fri Aug-22-08 11:04 PM
Response to Reply #17
21. Yes, the New York Times is exploiting her
that is where the original quotes are found. Everyone knows how
puritanical the New York Times is. And unscientific too.

Oh and VAERS! VAERS! VAERS!
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Name removed Donating Member (0 posts) Send PM | Profile | Ignore Fri Aug-22-08 11:15 PM
Response to Reply #21
25. Deleted message
Message removed by moderator. Click here to review the message board rules.
 
trotsky Donating Member (1000+ posts) Send PM | Profile | Ignore Sat Aug-23-08 09:43 AM
Response to Reply #25
43. There is nothing good that can come of accusing DUers of being pharma reps.
That is an unwarranted insult and you should apologize for using it.
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psychmommy Donating Member (1000+ posts) Send PM | Profile | Ignore Sat Aug-23-08 11:16 AM
Response to Reply #43
50. i said it is like these people are pharmaceutical reps
defending their product. i didn't call anyone a rep. pharmaceutical rep is a job not an insult. remember the the pro-gun chick posing as an anti-gun chick. it is not unprecedented. i will not apologize. but again, he/she doth protest too much.
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trotsky Donating Member (1000+ posts) Send PM | Profile | Ignore Sat Aug-23-08 11:52 AM
Response to Reply #50
52. Very nice.
Glad to see you don't care if you insult, it's your target's fault if they don't like it. Just remember, you reap what you sow.
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psychmommy Donating Member (1000+ posts) Send PM | Profile | Ignore Sat Aug-23-08 01:05 PM
Response to Reply #52
54. i have seen you in action with others.
but i don't take kindly to threats. i never called you or anyone else a pharmaceutical rep. if you consider yourself a target then so be it. i just see you as a pro vax person attacking another skeptic. your threat is nasty and doesn't belong on a discussion board. i have never been threatened on du before. i have been insulted and cursed at but never threatened.
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trotsky Donating Member (1000+ posts) Send PM | Profile | Ignore Sat Aug-23-08 01:19 PM
Response to Reply #54
55. Hey, guess what?
Edited on Sat Aug-23-08 01:21 PM by trotsky
I never called anyone here a prude either, but your cohorts keep acting like I did! Welcome to the rules of the game - I have to play by them, but the anti-vax brigade gets to use whatever names they want.

You get what you give. You had a chance to start out civil but you chose otherwise.

Oh, and on edit: No one is "threatening" you. I said you reap what you sow - if you show disrespect, you will receive disrespect. So please, dispense with the 'how DARE you threaten me' nonsense.
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Name removed Donating Member (0 posts) Send PM | Profile | Ignore Fri Aug-22-08 11:16 PM
Response to Reply #21
26. Deleted message
Message removed by moderator. Click here to review the message board rules.
 
WillYourVoteBCounted Donating Member (1000+ posts) Send PM | Profile | Ignore Fri Aug-22-08 11:34 PM
Response to Reply #26
29. Oh that New York Times is an ASS you say
shame on those prudes at the New York Times! They are evil doers and
supporting the right wing movement against Gardasil.
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beam me up scottie Donating Member (1000+ posts) Send PM | Profile | Ignore Fri Aug-22-08 11:36 PM
Response to Reply #29
30. Read the goddamn pdf. They did NOT give you permission to exploit her on a public forum.

http://www.jentet.com/jenpubguide.pdf

************************************

If you republish Jenny’s case, or post any materials related to Jenny, we request that you follow the guidelines listed below.

1. Do not include Jenny’s full name in any public postings or
communications.

2. Jenny’s parents are both respected professors at a leading university.
Please do not refer to them by name, or identify the institution.

*********************************

Yes, the NYT covered this, but the family specifically asked that their privacy be respected when posting in public.
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cosmik debris Donating Member (1000+ posts) Send PM | Profile | Ignore Fri Aug-22-08 11:55 PM
Response to Reply #30
32. Blinded by hate
And the obsession to punish Merck.

The lack of civility is mind boggling.

Punishing an innocent victim for their own perverse spiteful motives.

How much more will it take to get a TS.
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beam me up scottie Donating Member (1000+ posts) Send PM | Profile | Ignore Sat Aug-23-08 12:03 AM
Response to Reply #32
34. The op links to the family's website yet ignores their requests for privacy on public forums.
I would ask the mods to delete it if I made that mistake.

Although I doubt this was a mistake.
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WillYourVoteBCounted Donating Member (1000+ posts) Send PM | Profile | Ignore Sat Aug-23-08 12:01 AM
Response to Reply #30
33. You are desperately attacking the wrong person. Attack the NY Times or other people.
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cosmik debris Donating Member (1000+ posts) Send PM | Profile | Ignore Sat Aug-23-08 12:04 AM
Response to Reply #33
35. You violated the wishes of the family for your own sick motives.
It is despicable.
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beam me up scottie Donating Member (1000+ posts) Send PM | Profile | Ignore Sat Aug-23-08 12:05 AM
Response to Reply #33
36. YOU posted this on DU. YOU ignored the family's wishes. YOU exploited Jenny.
You saw a pawn you could use in your crusade and ran with it.
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WillYourVoteBCounted Donating Member (1000+ posts) Send PM | Profile | Ignore Sat Aug-23-08 12:16 AM
Response to Reply #36
37. Bullshit. The New York Times — Circulation: 1,120,420 Daily 1,627,062 Sunday
http://en.wikipedia.org/wiki/The_New_York_Times

Go tell it to the New York Times.
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beam me up scottie Donating Member (1000+ posts) Send PM | Profile | Ignore Sat Aug-23-08 12:21 AM
Response to Reply #37
38. You're so blinded by your crusade you don't even care that you're exploiting her.
Revolting.
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cosmik debris Donating Member (1000+ posts) Send PM | Profile | Ignore Sat Aug-23-08 12:22 AM
Response to Reply #37
39. You won't even take responsibility for your own actions.
It is clear what you have done. It is a matter of record.

You can blame others for your own actions, but the truth is clear.

YOU exploited this young lady to exorcise your own hatred.

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agent99 Donating Member (11 posts) Send PM | Profile | Ignore Sat Aug-23-08 09:19 AM
Response to Original message
42. carl sagan
carl sagan pointed out that absence of evidence is not evidence of absence. while it is true that there is no double-blind, peer-reviewed, latin-square design pee less than point oh five study showing that exposure to Gardasil was a causal factor in the development of this illness, there is a ton of scientific evidence supporting the hypothesis. Dr. Tetlock's allegation that there is no scientific or medical evidence supporting the Gardisal - juvenile ALS link is just plain false. This guy is world-reknowned scientist and thus, his ignorance about Hypothesis Testing 101 is discouraging.

Gardasil is a combination of a sexually transmitted disease (HPV) and a neurotoxin (aluminum). The neurotoxin is part of a chemical compound designed to aggravate the immune system into responding to the virus. It is probably not a coincidence that someone comes down with an immunological neurological disorder shortly after being exposed to a neurotoxin that was chemically tweaked to activate the immune system.
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cosmik debris Donating Member (1000+ posts) Send PM | Profile | Ignore Sat Aug-23-08 09:48 AM
Response to Reply #42
44. Gardasil contains aluminum?
I'd like to see some evidence of that claim.

I'm sure anyone who invokes the memory of Dr. Sagan would not make such a claim without evidence.

Please show me where you got that information.
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agent99 Donating Member (11 posts) Send PM | Profile | Ignore Sat Aug-23-08 10:08 AM
Response to Reply #44
45. evidence for aluminum allegations
http://www.associatedcontent.com/article/921099/gardasil_vaccine_ingredients_roach.html
Manufactured by Merck, the proud maker of Vioxx, the Gardasil vaccine is perhaps one of the most controversial vaccines to date. The push to mandate this, which supersedes the individuals rights to choose how to care for their own health. Should the vaccine prove 10 to 15 years from now to be a sterilizing agent, we would lose and entire generation of child bearing girls, and do not think it cannot happen. Gardasil vaccine ingredients include amorphous aluminum hydroxyphosphate sulfate, sodium chloride, L-histidine, polysorbate 80, sodium borate, (roach killer), and water for injection.


http://www.vaproject.org/ayoub/what-is-wrong-with-hpv-20070305.htm
Gardasil contains an aluminum adjuvant that assists in development of a proper immune response but it is also a known neurotoxin with little safety testing. The concentration of aluminum in Gardasil is 25 mg/L or 18,000 times higher than what the FDA considers safe in injectable products.

Google aluminum Gardasil for more. Google aluminum adjuvants and learn more about the adverse effects of using a neurotoxin to aggravate (sorry, I mean stimulate) the immune system.
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SidDithers Donating Member (1000+ posts) Send PM | Profile | Ignore Sat Aug-23-08 10:20 AM
Response to Reply #45
46. Aluminum compounds are used as adjuvants...
not aluminum. You do know the difference, right?

Sid
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Liberal Veteran Donating Member (1000+ posts) Send PM | Profile | Ignore Sat Aug-23-08 11:06 AM
Response to Reply #46
49. Well, aluminum compound adjuvants have only been in use since 1923.
More testing is required to prove they are safe!

:sarcasm:
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cosmik debris Donating Member (1000+ posts) Send PM | Profile | Ignore Sat Aug-23-08 10:29 AM
Response to Reply #45
47. I see, internet blogs never lie.
That's why you believe what you read on internet blogs.

I was really looking for credible evidence. Do you have anything from a reliable source like the FDA, the CDC or the manufacturer? Or are you just relying on internet blogs?
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agent99 Donating Member (11 posts) Send PM | Profile | Ignore Sat Aug-23-08 10:53 AM
Response to Reply #47
48. neurotoxin+std=yum!
http://www.merck.com/product/usa/pi_circulars/g/gardasil/gardasil_pi.pdf
GARDASIL* is a non-infectious recombinant, quadrivalent vaccine prepared from the highly purified
virus-like particles (VLPs) of the major capsid (L1) protein of HPV Types 6, 11, 16, and 18. The L1
proteins are produced by separate fermentations in recombinant Saccharomyces cerevisiae and selfassembled into VLPs. The fermentation process involves growth of S. cerevisiae on chemically-defined
fermentation media which include vitamins, amino acids, mineral salts, and carbohydrates. The VLPs are
released from the yeast cells by cell disruption and purified by a series of chemical and physical methods. The purified VLPs are adsorbed on preformed aluminum-containing adjuvant (amorphous aluminum
hydroxyphosphate sulfate).
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cosmik debris Donating Member (1000+ posts) Send PM | Profile | Ignore Sat Aug-23-08 11:23 AM
Response to Reply #48
51. So it is a matter of lack of education.
Apparently you don't understand that when elements combine they change their chemical and physical properties.

For example, when sodium, and explosive metal, combines with a nerve gas, chlorine, they make table salt which is necessary for human life.

explosive metal + nerve gas = vital nutrient YUM!.

So when you say that amorphous aluminum hydroxyphosphate sulfate is the same as elemental aluminum, you demonstrate your woeful lack of education and understanding.

Perhaps you should start by investigating the properties of amorphous aluminum hydroxyphosphate sulfate to find out whether it is a poison or if it is as innocent as table salt.

And also, you might want to understand that "virus-like particles" are not an STD.

I appreciate your drama, but knowledge is more rewarding.
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trotsky Donating Member (1000+ posts) Send PM | Profile | Ignore Sat Aug-23-08 12:08 PM
Response to Reply #45
53. High school chemistry
Elements vs. compounds

Sodium is an explosive metal when exposed to water. Chlorine is a poisonous gas used as a chemical weapon in WWI.

Surely a combination of the two would be the most deadly substance known to humankind! AIEEEE!!!!
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Liberal Veteran Donating Member (1000+ posts) Send PM | Profile | Ignore Sat Aug-23-08 01:51 PM
Response to Reply #53
56. Good thing no one would try to put any of this dangerous stuff into our food supply.
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cosmik debris Donating Member (1000+ posts) Send PM | Profile | Ignore Sat Aug-23-08 02:18 PM
Response to Reply #56
57. Well, there was a poster here who advocated using
the combination of poison gas, explosive metal, and water as a placebo and injecting it into our poor little darling daughters. But I'm afraid it would make them run out had have sex with people I don't like. So I'm against it.
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Liberal Veteran Donating Member (1000+ posts) Send PM | Profile | Ignore Sat Aug-23-08 02:22 PM
Response to Reply #57
58. What kind of monster would try to do something like that!!!!
:grr:
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trotsky Donating Member (1000+ posts) Send PM | Profile | Ignore Sat Aug-23-08 03:44 PM
Response to Reply #56
60. I have it on good authority...
that this combination of two dangerous, deadly chemicals is found in ALMOST EVERY FOOD PRODUCT SOLD.

Did you need any further proof that BIG FOOD is trying to kill us all for a few bucks?
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LeftishBrit Donating Member (1000+ posts) Send PM | Profile | Ignore Sat Aug-23-08 03:13 PM
Response to Original message
59. According to Jenny's parents' blog
Over the past 6 weeks, we have found several more close comparables from all around the world, most of whom have been diagnosed as having a rare, rapidly progressing form of juvenile ALS (aka “Lou Gehrig’s disease”). ...

Other families are dealing with the fact that their daughters did not survive to see a cure: Emily (onset age 12: died 18 months later with her autopsy showing upper and lower motor neuron degeneration, consistent with ALS), Janine (onset spring 2000; died December 2001), Tanya (diagnosed at 18 in Feb 2002; died 5 months later on July 11, 2002) and Sarah Beth (diagnosed summer 2007; died April 10, 2008 at age 22)....


Clearly, there are more children out there who have suffered from, or are suffering from, this mysterious and aggressive neurological disease. Identifying them is key to finding a cure for Jenny, and preventing the disease in others.
...

Setting the Record Straight
This morning, the CBS Early Show ran a story about Gardasil, using Jenny as the example of a girl who may have experienced an “adverse reaction” to the vaccine. CBS contacted the family; we did not contact them. Family representatives emphasized to CBS’s producers Boxer and Bicknell that we do not want Jenny to become the poster child for the anti-Gardasil campaign and that it is by no means certain that Gardasil caused Jenny’s illness. Rather, our goal in making Jenny’s sad story public is to locate any possible “comparables” to Jenny – which could include girls (and even boys) who have not taken Gardasil, but who have experienced a rapid decline and paralysis that is resistant to the many kinds of treatment Jenny already has received. We are disappointed that the CBS on-air story did not mention the search for comparables and that the online version of the story merely suggests that “Jenny's father hopes a blog he started will prompt other teens with similar post-vaccination problems to come forward.” That is, at best, half the story: Jenny’s family needs to hear about any and all possible comparable cases, regardless of the apparent cause.
...

“The cause of Jenny’s illness remains a medical mystery. Finding relevant comparables could help to solve that mystery and thus provide a crucial clue to finding the treatment that could save Jenny’s life. Time is of the essence because Jenny is now a quadriplegic and is losing the struggle to breathe. Therefore, the family appeals to your viewers to bring any potential comparables to their notice by sending an e-mail to jenjensfamily@gmail.com.”


So Jenny's family seem to be concerned that the media are focussing on the one possibility of a Gardasil connection *to the detriment of their main need*: to find people with similar medical histories, in an attempt to discover *any* possible cause and therefore treatment. It also seems that some of the people who tragically contracted similar disorders did so *before* the wide use of Gardasil.

It is in any case a truly horrible and tragic situation, whatever the cause, and I hope they do very soon find a cause and treatment for this dreadful illness.
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