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Here's an article about my work on cystic fibrosis!

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Th1onein Donating Member (1000+ posts) Send PM | Profile | Ignore Wed Feb-07-07 09:41 AM
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Here's an article about my work on cystic fibrosis!
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Freedomofspeech Donating Member (622 posts) Send PM | Profile | Ignore Wed Feb-07-07 09:51 AM
Response to Original message
1. Congratulations....
that's awesome. Keep up the good work!
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Mnemosyne Donating Member (1000+ posts) Send PM | Profile | Ignore Wed Feb-07-07 10:37 AM
Response to Original message
2. needs kicked and rec'd. n/t
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EFerrari Donating Member (1000+ posts) Send PM | Profile | Ignore Wed Feb-07-07 10:39 AM
Response to Original message
3. Congratulations.
:)
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porphyrian Donating Member (1000+ posts) Send PM | Profile | Ignore Wed Feb-07-07 10:40 AM
Response to Original message
4. Good job, and an important issue. - n/t
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Richard Steele Donating Member (1000+ posts) Send PM | Profile | Ignore Wed Feb-07-07 10:40 AM
Response to Original message
5. Kicked and recommended, Th1onein!
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helderheid Donating Member (1000+ posts) Send PM | Profile | Ignore Wed Feb-07-07 10:47 AM
Response to Original message
6. rec 6!
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Horse with no Name Donating Member (1000+ posts) Send PM | Profile | Ignore Wed Feb-07-07 10:49 AM
Response to Original message
7. I hope this pans out.
A nurse colleague's son died from this devastating disease when he was 6.
Good luck.
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laundry_queen Donating Member (1000+ posts) Send PM | Profile | Ignore Wed Feb-07-07 10:52 AM
Response to Original message
8. That sounds very promising!
Great article. Good luck with your work, K&R'd.
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npincus Donating Member (1000+ posts) Send PM | Profile | Ignore Wed Feb-07-07 10:58 AM
Response to Original message
9. this is amazing!
Edited on Wed Feb-07-07 10:59 AM by npincus
So if the treatment works, that will extend the lifespan of CF sufferers?

A fellow in the (college) class behind mine had CF... he was a nice guy. I heard he had died... he must have been in his early twenties. What a horrible illness.

So many patients and their families rest their hopes on people like yourself. It's an honor to have you among us!

My cousin is a professor of organic chemistry at LeHigh University, his work is way over my head, but involves ways of penetrating cell membranes to treat various diseases- this article refers to what he's been doing: http://publications.nigms.nih.gov/medbydesign/molecules/dilemmas/

best of luck on alleviating the pain of CF!
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Th1onein Donating Member (1000+ posts) Send PM | Profile | Ignore Thu Feb-08-07 12:26 AM
Response to Reply #9
17. The hope is that it will STOP the disease.
STOP it, period. One small pill a day, and poof! It's like you don't have it anymore.
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fed-up Donating Member (1000+ posts) Send PM | Profile | Ignore Wed Feb-07-07 11:06 AM
Response to Original message
10. thnx-my BF's 3YO gson was belatedly diagnosed last year-I will watch this
http://www.sharktank.org/

Cystic Fibrosis Trial Information: Share International Foundation

Share International Foundation is currently seeking cystic fibrosis (CF) patients to participate in a study to determine the efficacy of a novel supplement to treat this condition. Share is a non-profit organization whose purpose is to research new therapies for cystic fibrosis.

Overview: After extensive research, Share has developed a supplement which may address the basic defect of cystic fibrosis. Research indicates that the basic defect of CF results from an intracellular imbalance of several compounds in the CF cell, due to faulty trafficking of a defective CFTR protein. The active compound of Share's supplement, benzyl-isothiocyanate, is a natural substance, derived from papaya seeds. Analysis of Share's research supports the idea that this compound will activate an alternate channel in the cell, the multi-drug resistance protein (MDR), and, in doing so, help restore cellular balance. (See Pubmed article 16934416 for more details).

Purpose: Because fatty acid levels are generally abnormal in CF patients, the purpose of the trial is to determine the effectiveness of the supplement, and to measure the extent of its effect in regulating fatty acid levels.

Process and Duration: After having passed the screening process, subjects will participate in the trial for approximately four weeks. At the outset, a blood test will determine the baseline level of fatty acid composition. For three consecutive weeks, blood tests will be conducted once a week to compare fatty acid levels with the baseline.

Inclusion Criteria:

- Male subjects, aged 18 years or older.
- Delta F508 homozygote.
- South Florida resident, or be able to travel to the South Florida area.
A $400.00 stipend will be paid to each subject who completes the trial.
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H2O Man Donating Member (1000+ posts) Send PM | Profile | Ignore Wed Feb-07-07 11:09 AM
Response to Original message
11. Great!
Very impressive! Thank you for this.
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GardeningGal Donating Member (1000+ posts) Send PM | Profile | Ignore Wed Feb-07-07 11:24 AM
Response to Original message
12. Good job - hope the trials are successful. n/t
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alofarabia Donating Member (65 posts) Send PM | Profile | Ignore Wed Feb-07-07 11:26 AM
Response to Original message
13. Thank you ...
My wife passed away from CF in 1990 - at 28. My in-laws lost their only two children to CF. They now (I am still close to them) introduce me to others as their son. I am remarried with an 8 year old boy who is lucky enough to have 3 sets of grandparents.
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DemReadingDU Donating Member (1000+ posts) Send PM | Profile | Ignore Wed Feb-07-07 10:12 PM
Response to Original message
14. Great work, thank you for your research!
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WiseButAngrySara Donating Member (1000+ posts) Send PM | Profile | Ignore Wed Feb-07-07 10:18 PM
Response to Original message
15. I scored it a 5 as a medical health professional! Don't
forget to rank this article DUers!

:kick: and R! and great article!!
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w8liftinglady Donating Member (1000+ posts) Send PM | Profile | Ignore Wed Feb-07-07 10:54 PM
Response to Original message
16. Great work!!!I worked with a ton of lung transplant patients...mostly CF
they -and their parents-go through sheer hell just trying to survive.My hats off to you for your much needed work.Kicked and recommended
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