PLEASE DON'T LET THIS POST DROP

[Th1onein]

Below is a post from a yahoo group called cfparents. CF is a genetic disease that causing the slow destruction of the lungs. The patient ends up literally suffocating to death. I wonder if some of you could figure out a way to blast this to the blogs, for this family?

[e-mail]
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Date: Mon, 7 Apr 2008 18:37:12 -0700 (PDT)
Subject: Lung Transplant
Hey group. My family is at the stage of needing to fund raise for a double lung transplant for my 26 year old brother. They have given him 6 mo. to live without one so we are racing the clock. Any ideas on where to raise $10,000 to get him even on the list then a remaining $40,000 to cover co-pays and expenses.

thank
Christine mother of 7yo with cf and sister of 26yo with cf

[proud2BlibKansan]

1. I had a student with CF many years ago

It is horrendous. She wasn't expected to live past age 20.

[fed-up]

12. my BF's 5 YO grandson has CF-life expectancy is now up to 35 years w/proper diet/enzymes

It is one of the most horrendous diagnosis a parent can get for their child.

At least pregress has been made with how to treat it.

[redwitch]

2. I know 2 wonderful young men with cf

I hope things work out for Christine's family.

[MethuenProgressive]

3. k&r

With painful memories of a lost friend.

[pompano]

5. I assume you are referring...

to cystic fibrosis? It is a bad disease. Growing up I had two friends lost to Cystic Fibrosis. If I am not mistaken, the Mayo Clinic has done alot of work regarding CF. Well, them and some other institutions of medicine.

I truly hope the best for all involved.

Most certainly a K&R.

[Window]

4. K/R.

:kick:

[bean fidhleir]

6. There's a gene-therapy trial starting up (I think)

http://www.cfgenetherapy.org.uk/Clinicalprogramme.htm

[Th1onein]

9. It's too late for gene therapy, in this case.

When they tell you six months, that means that the lungs are so damaged that they need to be, literally, replaced with new ones.

I'm surprised that ANY insurance covers this procedure. And, yes, these people are racing against the clock. This boy could die at any time. If he's got over 15% lung capacity, I'd be surprised.

[monmouth]

7. I'm a supporter of CF. Great organization and if you contribute there

are some nice gifts to you. Great organization.

[michreject]

8. My neighbor had CF

She got on the list awaiting a transplant. She didn't make it.:( Afterwards her husband sold everything and moved into the sticks.

[hootinholler]

10. $40K in Copay?

Jesus, we need single payer.

-Hoot

[Coexist]

11. mine went from $10 to $25 ($50 in certain cases)

[RB TexLa]

16. It says copays and expenses. I'm sure there is time off from work, they aren't going to put him

on a bus to go to treatment and say send us a postcard.

[Horse with no Name]

13. 26 is a long time for a CF'er to live

Bake sales, jars in local businesses, car washes, raffles, garage sales is generally the best way to raise money for this.
Unfortunately, with the country in such dire straits, I doubt that internet posting for money will be very successful.
However, never underestimate the generosity of neighbors. Stay local and I bet they can raise the needed funds.
Good luck to them in their battle.

[annabanana]

14. kickin. . . .n/t

[bonito]

15. My wife has had (has)life threatening lung infections

over and over although she doesn't have CF we have found a way to put those infections in check much like taking an aspirin for you and me, you can pm me for more info. Peace
edit cause I cant spell for shit.

[DeepModem Mom]

17. K&R

[sonias]

18. K&R

I hope they find a way to raise the money.

Sonia

[AzDar]

19. Kick ...

[myrna minx]

20. kick n/t

[donheld]

21. K & R