Top 10 Mysterious Diseases

[seemslikeadream]

http://health.msn.com/health-topics/slideshow.aspx?cp-documentid=100234873&imageindex=2

Morgellons disease

This mysterious illness, which has cropped up again recently, displays almost sci-fi symptoms. Sufferers complain of intensely creepy-crawly skin and odd fibrous strands which protrude from open wounds. Some in the medical community blame the "disease" on psychotic delusion, but others say the symptoms are very real.


Chronic fatigue syndrome

Chronic fatigue is a classic MUPS (medically unexplained physical symptoms) disease, with a diagnosis based only on the ruling out of other possibilities. More than just feeling a little tired, CFS patients are often bed-ridden for days at a time.


Creutzfeldt-Jakob disease

One version of this rare brain disorder is better known "mad cow" and can be contracted by eating contaminated beef. "Regular" CJD is also always fatal, quick-acting and is the most common form, but develops in most patients for reasons doctors have yet to figure out and can not prevent.

Schizophrenia

Experts consider this the most puzzling of mental disorders, one which robs the sufferer of the ability to logically distinguish between reality and fantasy. Symptoms range wildly between patients and include delusions, hallucinations, disorganized speech, and lack of motivation or emotion, but the disease has no defining medical tests.

Autoimmune disorders

A catch-all term for a host of afflictions including lupus and MS, autoimmune disorders treat the body's organs and normal functions as enemy invaders. They're usually chronic, always debilitating, and doctors can do little except ease their symptoms.

[ogneopasno]

1. Morgellons made the rounds a couple years ago, and that was some weird shit.

[kimmerspixelated]

3. I certainly don't have any info, but

I thought it had to do with eating modified foods, and then possibly microwaving them. Don't know where I read that.

[ogneopasno]

4. And when I say "made the rounds," I actually meant "made the rounds in COVERAGE." Not an epidemic.

Sorry if there was any confusion.

[seemslikeadream]

5. and finally it's being taken seriously

It is real

[TreasonousBastard]

2. I thought Morgellons was debunked...

and there was only one doctor who actually saw it. Or claimed to. (And he made a bundle out of it.)

Two kinds of CJ? And the other kind has nothing to do with prions?

[HiFructosePronSyrup]

7. Yes, it was.

It's a poorly defined new name for already known conditions, such as delusional parasitosis.

"Two kinds of CJ? And the other kind has nothing to do with prions?"

No, they're both caused by prions. With one you get infected with prions, in the other prions are formed spontaneously via misfolding.

[Name removed]

9. Deleted sub-thread

Sub-thread removed by moderator. Click here to review the message board rules.

[seemslikeadream]

66. no it was not

[seemslikeadream]

8. nope, it's being studied at Mayo Brothers now

the poor people who are suffering are finally being taken seriously.

[northernlights]

59. both are prion diseases

Variant CJD is caused by eating contaminated beef.
Sporadic CJD has unknown cause, but shows some correlation to codon 129 of the PrNP gene on chromosome 20 being homozygous for methionine. You can still get it with heterozygous methionine and valine, but in that case the progression is much slower.

There are actually a number of prion diseases, including one, called Kuru, discovered in cannibals (in Papua New Guinea? I forget) that ate respected tribe members when they died. The brains and spinal tissues were eaten by the women and children. In one tribe, a respected member with prion disease died and was eaten. Then the women and children ate his brains, got prion disease, and eventually died. And were eaten, spreading it further through the tribe. I can't remember if it wiped out the whole tribe...

There's also a lovely prion disease called Fatal Familial Insomnia, in which you don't sleep at all for a couple years before you mercifully die.

[kimmerspixelated]

6. Some of these can be helped

by completely detoxing. I suspect that super foods that include spirulina and barley greens taken on a regular basis, can at least bring CFS under control. I know I'll be flamed but nutrition has EVERYTHING to do with health!

[rooney]

11. Don't mean to change the discussion, but I would like to ask

if anyone here has ever heard of burning tongue or burning mouth syndrome. I can find info on the internet, but nothing to help this crazy problem, I have had for 30 years at least and now as I am getting older and add it to other health p-roblems--it really does it's damage on how a person feels.

[Hekate]

64. There's a Chronic Health Conditions group here that might help...

http://www.democraticunderground.com/discuss/duboard.php?az=show_topics&forum=317

Good luck.

Hekate

[cpompilo]

67. Burning tongue and burning mouth are a symptom of B12 deficiency.

Look up symptoms of B12 deficiency and be amazed at how many varied symptoms are listed. I'm not saying that is your specific problem, but it is a very common deficiency. Especially if you have an auto-immune disorder like I do. I give myself intramuscular shots at home. It has made a world of difference for me.

[sakabatou]

68. I had autoimmune

Left me with scarring on my brain and seizures.

[shireen]

10. i'm in the autoimmune category

there are no words to describe how much i hate it, how depressed, angry and lonely i feel.
my heart goes out to others who live with chronic illness, i get it ....

[terisan]

13. Do you have a support group? -online or otherwise?

[FreeState]

14. My partner has one as well

its not easy - it effects everything from his ability to go to a movie to avoiding areas where he does not know if a restroom is close by to where he can eat. It takes planning and patients. And thats not even taking into account pain and physical issues.

My heart goes out to anyone that has to live with any debilitating illness.

[cpompilo]

69. I'm harping again about the Specific Carbohydrate Diet for people with

auto-immune disorders such as IBD, IBS, Celiac, Ulcerative Colitis, Crohn's and other bowel diseases. You must read 'Breaking The Vicious Cycle' by Elaine Gottschall. She explains the science behind the diet and you will be able to relate to what she describes. The diet eliminates all foods that break down into disaccharides or polysaccharides because people with bowel disease don't have the enzymes to break apart the sugar molecules, so they remain in the gut producing toxic waste and creating a vicious cycle. This diet saved my life. www.BreakingTheViciousCycle.info

[Individualist]

18. Me too

rheumatoid arthritis for 15 years.

[fight4my3sons]

74. .

:hug:

[ProdigalJunkMail]

12. i now have two people in my circle with CJD

one will likely die in the next few weeks...the other is just starting to present symptoms...

sP

[seemslikeadream]

15. It is a terrible thing to go through when you are not believed about suffering

[ProdigalJunkMail]

16. Scott, at last visit, was no longer able to sit up without help

he has lost most of his ability to communicate...i don't know what to think...

sP

[seemslikeadream]

17. Doctors did this with my dad

He died of lung cancer, they told him he was suffering from depression

[marybourg]

28. I thought this was a rare disease,

but I too, know someone with it. Terrible!

[HiFructosePronSyrup]

31. It's vanishingly rare.

Literally one in a million.

[ProdigalJunkMail]

72. and Scott just passed...

so while the odds may be incredibly against you or someone you know having it...it doesn't change the fact that a man with four young children just died from it. His first symptoms were in late JAN...he was diagnosed in the middle of FEB...originally told three to six months...then a week later one to three months...he didn't make it through March...

sP

[Avalux]

19. Morgellon's should not be on that list. Anectodal stories don't make it so.

Those odd fibrous strands are most likely placed there by the afflicted. I know a physician who has dealt with a few people claiming to have Morgellons and he has horror stories. There is no etiology.

[seemslikeadream]

20. whatever

your doctor friend should talk with Mayo or CDC

[Avalux]

21. Mayo and CDC are investigating reports of this mysterious dermopathy, that is all.

They have no explanation for it and there is no consensus among healthcare professionals as to whether it's a legitimate disease. Many believe it's a manifestation of mental illness; I am in that camp until evidence is produced.

[seemslikeadream]

24. well it appears your camp wouldn't even investigate it

mind made up before all facts were in

[Avalux]

35. Do you understand science? facts?

Of course you investigate, but when all roads lead to nowhere and there is no evidence (there isn't any with Morgellons) - you cannot call something a disease when it isn't.

[seemslikeadream]

37. Do YOU understand it might well take some time?

[seemslikeadream]

22. The situation is similar to an illness called Lyme disease

The situation is similar to an illness called Lyme disease. Patients would come to their doctor in the 1990’s claiming that they had disease called “Lyme Disease” which was spread by ticks and they had seen described on TV or in the popular press in such authoritative manuals as “Time magazine’ or Newsweek.

In many cases the physician was either devoid of any knowledge of “Lyme disease”. The patient had no symptoms, the doctor thought that the patient was crazy or a crank or all of the above.

It took a number of years. Now we have a biochemical lab test to diagnose the titers of Lyme disease. We know that Lyme disease is not a physical disease, it is rather quite common and is actually on the rise and increase in incidence

[HiFructosePronSyrup]

23. Lyme disease has been recognized since the 19th century.

You couldn't have picked a worse metaphor.

[seemslikeadream]

25. link please?

[HiFructosePronSyrup]

29. Here:

http://en.wikipedia.org/wiki/Lyme_disease#History

[seemslikeadream]

32. oh god again with the wiki LOL

[HiFructosePronSyrup]

33. You act like that's a bad thing.

[seemslikeadream]

26. you show your lack of knowledge again, mon amie

The full syndrome now known as Lyme disease, however, was not identified until a cluster of cases thought to be juvenile rheumatoid arthritis occurred in three towns in southeastern Connecticut, in the United States. Two of these towns, Lyme and Old Lyme, gave the disease its popular name.

[xocet]

65. Irony

Ami is a masculine noun, and the person to whom you are referring is a male according to his profile. Adding an 'e' makes the noun feminine.

It is ironic that you call someone down for a lack of knowledge while exhibiting the very same attribute.

EPIC FAIL!

Carry on! Keep listening to Art Bell!

:tinfoilhat:

[seemslikeadream]

80. bullshit I DON'T POST ART BELL SHIT HERE

[Duer 157099]

27. Good example.

People who claim something does not exist are awfully arrogant and usually ignorant, imho.

[Avalux]

30. No it is not.

As with all emergent diseases Lyme Disease was investigated; a vector and a bacteria were associated and the disease was legitimized. Nothing thus far has been found to cause Morgellons (7 years later); there is no etiology for the odd fibers people supposedly pull out of their lesions.

Dermatologists and Psychiatrists attribute the symptoms to delusional parasitosis. It is not a new disease.

[seemslikeadream]

34. It took almost a 100 years to name Lyme Disease

[Avalux]

36. Your comparison is absurd. n/t

[seemslikeadream]

38. no it is not, sorry

[Avalux]

39. Tell me why you believe Morgellons is a real disease.

I'd really like to know. From what I know and the professionals whom I've had discussions with - the experts - they have reviewed epidimiological data, examined patients - there's nothing there. The CDC is only investigating Morgellons because they are obligated to do so just in case it could be a public threat, not because they believe it's real. There is no belief in science.

[seemslikeadream]

43. For one thing my sister had Lupus and for years the drs had no idea what was wrong

they gave her uppers they gave her downers, they said she was crazy, the closed minded fuckers destroyed her and she died, so yes I believe it when people say there is something wrong with them. Do you know how long it took for the medical community to figure out what Lupus was?

[Avalux]

48. I am very sorry to hear about your sister.

I get an idea now of where you are coming from and yes, I know how long it took for Lupus to be recognized; autoimmune disorders are very hard to get a handle on and even now, Lupus is a very difficult disease to diagnose and treat.

Maybe I will be wrong about Morgellons; maybe they'll find something completely unknown that causes different colored fibers to be pulled from skin lesions. But for now, from what we know - all the data that's been collected, there is no explanation. In the context of evidence-based medicine, I cannot assume Morgellon's is real if there's no evidence.

It's been a lively discussion, maybe we can revisit it again in the future. :hi:

[HiFructosePronSyrup]

49. The question was about Morgellons.

Not your sister's Lupus/crazy, or your dad's cancer/depression, or you cousin's elephantitis/croup.

[seemslikeadream]

51. It is the treatment of people who say they are sick and are not being taken seriously

[unapatriciated]

63. I would have to agree with you.....

for almost a year my son's hmo doctors delayed proper diagnoses and treatment for various reasons such as it's just growing pains, he is lazy, he must be allergic to the detergent I was using that was causing his rash (only on his joints and around his eyes).
I had Lupus in the family, so the rash looked very familiar to me. I asked for a simple blood test and was told in no uncertain terms that I was not the doctor he was. Bottom line the doctors thought my son was faking and I was just using the wrong detergent.
Some autoimmune disorders start with a slow progression than bam overnight you find yourself or a loved one close to death. If his doctors had taken the time to listen and do the test I requested my son might have not been so ill for so many years, that left him disabled. He finally did test him diagnosed him with Lupus it was wrong but at least it got him to Children's Hospital. They did a muscle biopsy and diagnosed him with something most doctors have never heard of, Dermatomyositis.

before you say I should have gone to a different doctor, I went to four, the last was head of pediatrics.

[seemslikeadream]

40. Doctors are in denial about Lyme disease

http://sci.tech-archive.net/Archive/sci.med.diseases.lyme/2006-06/msg00197.html

The biggest problem I see with Lyme disease is not that the public is
uninformed; the biggest problem is that there are still so many doctors
in denial that Lyme exists in Vermont, or that it has been here for
many years. I personally was infected more than 20 years ago, at a time
when I never traveled outside of northern New England.

Doctors, all kinds and all specialties, need to be trained in how to
recognize and treat Lyme disease in all its many manifestations.

The rates of Lyme disease are staggering. And while the government is
wasting millions of dollars on preparing for the possibility of an
epidemic bird flu, they are ignoring the current epidemic of Lyme
disease. People are losing their lives as they know them, and even
dying from undiagnosed Lyme disease. Something has got to change

[HiFructosePronSyrup]

41. No, they're not.

Doctors are well-informed of Lyme Disease.

It may be difficult to diagnose in some asymptomatic patients.

That does not mean doctors are "in denial."

[Avalux]

42. Lyme disease is caused by the Borrelia family of bacteria.

That is not negotiable; it's a proven fact. What family practice doctors who haven't been reading up on their literature fail to do is diagnose properly; do the necessary tests. Many people are misdiagnosed for years or forever. It's a problem, yes, but so is family practice doctors giving people antibiotics for viral infections.

It's not the same as saying Lyme disease isn't real.

[seemslikeadream]

44. They had no name for Lupus either and if it was up to people like you we still wouldn't know

[HiFructosePronSyrup]

47. If it was up to people like you, there'd be a name for Lupus.

"Demon possession."

Easily cured with an exorcism, forty lashes, and a chaste lifestyle.

[seemslikeadream]

52. Thanks for showing us all your true colors, hopefully you will never go through the hell

of an mysterious disease

[seemslikeadream]

45. btw my sister's Lupus began in 1960 so YES it does take awhile to figure things out

and yea Lupus was around in the 1800's too, that did no good for her either

[seemslikeadream]

61. In a recent study of Morgellons patients, 43 out of 44 of them tested positive for Lyme Disease.

http://www.newsweek.com/id/108819/page/2

[Hanse]

71. The link you posted made no such claim.

It looks like you're getting all mixed up.

[seemslikeadream]

78. Here is the correct link sorry to confuse but you could have checked google, if inclinded for truth

instead of chastizing me, iy only took 2 seconds to find

http://www.ktnv.com/Global/story.asp?S=8287547

"What we have found is there is a plant bacteria that is often found in the lesions that these patients have and we think that this plant bacteria may be involved in the cause of the disease," said Dr. Stricker.

Dr. Stricker says his patients have one thing in common.

"These patients tend to have exposure to soil or dirt or some sort of plant life," said Dr. Stricker.

But exactly how is the plant bacteria getting into their systems?

Dr. Stricker believes it could be ticks.

"We know that ticks can carry something like 40 different bacteria and so it is possible the ticks are picking up the plant bacteria and transmitting it along with the Lyme Disease infecting people through their bite," said Dr. Stricker.

In a recent study of Morgellons patients, 43 out of 44 of them tested positive for Lyme Disease.

"Very often when patients get treated for the Lyme Disease the Morgellons also gets better. So it does suggest that antibiotic treatment is useful for this disease," said Dr. Stricker.

But an antibiotic treatment is not a miracle cure.

[seemslikeadream]

79. now who is the one that is mixed up?

[seemslikeadream]

81. San Francisco doctor who says the disease is very real, very serious

http://www.ktnv.com/Global/story.asp?S=8287547

[seemslikeadream]

82. Research Brings Hope To Morgellons Patients - CBS NEWS DALLAS

http://cbs11tv.com/health/Morgellons.Disease.Morgellons.2.689110.html

[Maine-ah]

76. it did take almost 100 years to give the current name Lyme Disease

http://www.brown.edu/Courses/Bio_160/Projects2005/lyme_disease/history.htm


1883 The first recorded case of Lyme Disease is described by Alfred Buchwald. He described it as a degenerative skin disorder now known as ACA (acrodermatitis chronica atorphicans).


1909 Arvid Afzelius presents his research on expanding ring like lesion (erythema migrans) associated with what would become known as Lyme Disease.


1921 Arvid Afzelius publishes his work and speculates on the origin of the disease as the Ixodes Scapularis tick and connects the disease with joint problems.


1922 The disease is found to be associated with neurological problems.


1930 The disease is found to also cause psychiatric problems.


1934 Appearance of EM or ACA is associated with benign lymphocytomas.
Arthritic symptoms are reported in connection with the disease.


1970 Rudolph Scrimenti, professor of dermatology publishes reports of the rash .


1975 Allen C. Steere, Yale, investigates a group of rashes and swollen joints in Lyme, Connecticut.
Scrimenti publishes about his treatment of the rash with penicillin.


1976 A clustering of cases of the disease is reported in a Naval Medical Hospital in Connecticut.


1977 Steere et. Al misdiagnoses Lyme Disease as juvenile rheumatoid arthritis and names the condition Lyme Arthritis.


1982 The etiological agent of the disease, Borrelia burgdorferi, is discovered by Dr. Willy Burgdorfer.


1983 Treatment of Lyme disease with oral and intravenous antibiotics begins and clinicians define the three stages of Lyme Disease.


1986 Skeptics denounce the existence of Lyme Disease.


1988 Lyme Disease Foundation (LDF) Founded.


1997 Borrelia burgdorferi genome sequenced by TIGR.


1999 Smith Kline Beecham receive FDA approval and place LYMErix vaccine on the market.


2002 LYMErix vaccine removed from market.

[AllieB]

46. Lyme Disease is an epidemic here in New England.

My Primary Care Physician has information in his waiting room because he's seen so many cases in the last decade. My sister has progressive encephalopathy as a result of untreated Lyme. She's under the care of a neurologist. I have known half a dozen people in my immediate circles who have contracted Lyme. The common denominator is that we're all from the North Shore of Mass. or Cape Cod, or have spent a lot of time there. Columbia University Medical Center has a center devoted to Lyme:

http://www.columbia-lyme.org/research/lymetbd_center.html

[Vinca]

73. I've had it and I know other people in the area who have had it.

Although I was treated with antibiotics the same day I discovered the rash, I haven't felt right since. If we ever get health coverage I want to get the full panel of tests done to be sure both Lyme and the companion bugs are gone.

[seemslikeadream]

50. MY SISTER HAD LUPUS THIS WAS IN 1960

SHE SUFFERED TREMENOUSLY FROM IT, GOING FROM DOCTOR TO DOCTOR, WHO GAVE HER UPPERS AND DOWNERS AND NOT KNOWING WHAT THEY WERE DOING. YES LUPUS HAS BEEN AROUND A VERY LONG TIME BUT THAT DOES NOT MEAN ANYTHING IF DOCTORS ARE NOT AWARE. THE CLOSED MINDED PEOPLE HERE MAKE ME ILL :puke:

[HiFructosePronSyrup]

53. That doesn't matter.

There's no valid comparison between diagnosis of an established, well-known disease in an asymptomatic individual, and the existence, or non-existence, of a hypothetical disease in a population.

[seemslikeadream]

54. IT WAS NOT A WELL KNOWN DISEASE IN 1960

[Mulehead]

55. Nice debate on Morgellons, but I'm now out of jiffypop, so I'll make a hat out of the tin foil...

One day a few years back I was walking down Fifth Avenue in NYC and a person who appeared to be schizophrenic (i.e. a crazy street person--if you've ever lived in a big city, you know who I mean) was yelling at passersby. At the time I was thinking about a canoe trip I had been on the week before, and as I passed this person, they suddenly lunged at me and yelled out, "No, I don't want to go canoeing!!!" Freaked me out at the time, but it made me think. Perhaps people with schizophrenia actually have the ability to perceive the thoughts of others within a certain distance, but cannot distinguish those thoughts as originating from others? One of the classic symptoms of schizophrenia is evidently "hearing voices". Any connection? I wonder if anyone has actually attempted to research this? Sorry, gotta go, the invisible super model I live with just make some more jiffy pop...

[seemslikeadream]

58. I hear stuffed mushrooms are excellent

[denem]

56. FIBROMYALGIA !!

Started off as a 'Syndrome', initially diagnosed by 21 "tender points", then chemical differences in spinal fluid were found, next came replicable cognitive degeneration and then of course FDA approval for a drug.

My wife suffers from fibro. It's a terrible disease.

[seemslikeadream]

57. So sorry to hear about your wife, the only thing worse than having a disease

is "experts" telling you it's all in your head

[seemslikeadream]

60. (He has since received more than a thousand fiber samples.)

http://www.newsweek.com/id/108819/page/2


" When he first heard of Morgellons, Wymore thought it would be simple to disprove its existence by examining the fibers. In 2005 he began asking patients, doctors and nurses to mail him samples. In the first week he got 10 packages from five states and was amazed by how similar the bundles of red, blue, back and translucent fibers looked. (He has since received more than a thousand fiber samples.) Over the next nine months he systematically compared them to all sorts of textile fibers, hair and dust from clothing, carpets, medical supplies and fishing and hunting supplies, but he could find nothing similar. He showed the samples to OSU colleagues, who also were baffled.

Intrigued and at loss for answers, he eventually took the samples to the Tulsa Police Department Forensics Lab, where fiber experts Mark Boese and Ron Pogue ran a series of tests on two red and two blue fibers. "In three minutes they decided it was like nothing they had seen before," Wymore says. Comparing the Morgellons fibers to a database of more than 900 known compounds used in textiles, they found no match. Next they heated a blue fiber to more than 700 degrees, which darkened but did not destroy it. They determined the fibers were not fiberglass and did not match anything in their database of 90,000 organic compounds. OSU researchers have found tangled fibers underneath even healthy, unbroken skin in Morgellons patients, which Wymore says rules out the kind of wound contamination Meffert describes.

Wymore acknowledges that some people who claim to have Morgellons may be delusional, but he says all but one of the nearly 30 patients he and his colleagues at OSU have examined do, in fact, have the disease. Like Odom and so many others, he welcomes the CDC study. "My hope is thousands of physicians will go, 'I still don't believe this Morgellons crap, but the CDC is looking into it. I'm willing to give them the benefit of the doubt'."

[Manifestor_of_Light]

62. Millions have autoimmune diseases.

There are a bunch of them. Lupus, sjogren's syndrome, RA, diabetes, etc.

The tendency to get them is inherited.

I have Hashimoto's thyroiditis, the most common cause of low thyroid. I got it as a pre-adolescent.
So did my mother. I take Armour Thyroid, NOT synthroid. Many people are untreated or undertreated. One idiot doctor took me OFF thyroid completely and I almost died after about five years.



There may be 20 or 30 million people in the U.S. who need thyroid supplementation.

I will never have as much energy as people are expected to have, and I need ten hours of sleep a night to be functional.

My mom's family also had rheumatoid arthritis.

More info about thyroid problems: www.stopthethyroidmadness.com

[dysfunctional press]

70. mine is ankylosing spondylitis- and they're right about only being able to treat symptoms...

it's a particularly insidious little disease that results in a slow fusion of the spine, or large portions of it. my major symptom is a hunched over appearance, and chronic severe pain. my condition went mis/un-diagnosed until i was 36, and had long since left the labor union that might have provided a much better disability income, had my condition been properly and timely detected- instead of having the symptoms dismissed as other problems.

my other condition is raynaud's disease, which is especially fun when you live in a climate that has winter weather for up to half the year. and it prevents me from taking the warranted medication for the migraines i get that are associated with the first condition.

some of the medicines, such as enbrel, that they use for some of the more severe autoimmune disorders- basically switch 'off' your immune system, or big parts of it- which is part of why they can have some pretty scary side-effects. i chose not to go that route- my treatment regimen consists of opiates for pain, steroids to keep things in check, muscle relaxers, condition-specific yoga/exercise, and a starch-free diet(through exhaustive online/offline research, i learned that the enzyme secreted by the bacterial gut flora that breaks down starch in the digestive system is responsible for a LARGE share of the problems that cause my immune system to turn on me.)
i also use pot to reduce inflammation and pain, as well as to help me breath easier- because of my A.S., my ribs are also fused at my spine, making them too rigid to allow my lungs to inflate fully. as a bronchial dilator pot helps balance out the equation. i find it interesting that MANY of those with my condition who i have met online, like me seemed to gravitate toward pot before they knew what was wrong with them, but did know that it helped them feel much better in a lot of ways.

[fight4my3sons]

75. I'm interested in what you said re: raynauds and your migraine meds

I have APS (antiphospholipid antibody syndrome also known as Hughes Syndrome) and was diagnosed with raynaud's this past winter. I take Topamax for migraines. Do migraine meds make the Raynaud's worse that you know of? I'm not asking for medical advice, just wondering why you stopped your migraine meds. I don't take any that have a clotting risk because APS is a blood clotting disorder.

[dysfunctional press]

77. i'm not familiar with topamax- i was referring to imitrex...

imitrex says that if you have raynaud's, nyou shouldn't take it, as it could cause flare-ups. i take vicoprofen for my migraines.

[fight4my3sons]

83. oh yes, I can't take imitrex

due to the clotting risk

thank you for the response :)