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live love laugh

(12,833 posts)
Fri Apr 17, 2020, 09:23 AM Apr 2020

Update on BFFs Covid case

It’s a week ago that my best friend’s only child—her son—was admitted to Chicago’s VA hospital. He’s on life support/a ventilator because doctors said his lungs kept filling up with fluid (cytokinesis?).

THREE Covid tests had to be taken. The first two came back negative even though he has textbook symptoms. Only today is his diagnosis confirmed.

He’s been given Trump’s drug—hydroxychloroquine. His kidneys became affected and it was discontinued so are steroids being discontinued. The ventilator has been modulated or adjusted to varied settings which I think is a good thing.

His mom who drove him to the hospital is self quarantined and speaks to doctors multiple times a day. All prayers, positive energy are appreciated.

My intent for sharing is to also warn. Not only don’t we have enough tests, but the tests aren’t reliable. If it’s taken three tests to diagnose him, who knows whether or when reentry is safe.


26 replies = new reply since forum marked as read
Highlight: NoneDon't highlight anything 5 newestHighlight 5 most recent replies
Update on BFFs Covid case (Original Post) live love laugh Apr 2020 OP
What a nightmare backtoblue Apr 2020 #1
Testing, testing, testing... Wounded Bear Apr 2020 #2
Healing vibes on the way! SheltieLover Apr 2020 #13
Well we want to keep the numbers down, remember? superpatriotman Apr 2020 #18
Sending positive vibes malaise Apr 2020 #3
Chump's drug equals death FakeNoose Apr 2020 #4
Can his mom apply for the antiviral, remdesivir, under compassionate rules? It's in trials in Nay Apr 2020 #5
I've been sending her info about it and Atemvir? live love laugh Apr 2020 #7
She may want to apply to the actual trials admin to see if they can get him in. I'm not exactly Nay Apr 2020 #10
Thank you so very much 🙏🏽 live love laugh Apr 2020 #11
OMG, I reread your OP and saw that he is in Chicago! Oh, please, please, angels, get Nay Apr 2020 #12
I just called University of Chicago where the trials live love laugh Apr 2020 #14
May it happen. May it happen. Make sure to ask for "compassionate use" -- that may Nay Apr 2020 #15
Gilead is the company that makes it. LisaL Apr 2020 #20
I just found Gileads contact info to apply for compassionate use live love laugh Apr 2020 #25
The drug is called remdesivir. LisaL Apr 2020 #17
Viral tests often have a significant margin for error Amishman Apr 2020 #6
Please let your BBF know that we care. Boomerproud Apr 2020 #8
I wonder if stats adjust for the 30% false negative results of these tests. nt LAS14 Apr 2020 #9
Sent up a prayer for him. BTW, there is new drug with some promise. It's called Remdesivir and is iluvtennis Apr 2020 #16
So sorry for your friend and their son marlakay Apr 2020 #19
I'd would Love to know who made those tests. I suspect Most of are faulty. flying_wahini Apr 2020 #21
Prayers to your friend's son. It took my friend 3 tests to find out he was positive as well. woodsprite Apr 2020 #22
This gives me so much hope thanks 🙏🏽 live love laugh Apr 2020 #24
I am sorry to hear this pandr32 Apr 2020 #23
There was a report in medical news yesterday or the day before that these types of patient should JudyM Apr 2020 #26

Wounded Bear

(58,209 posts)
2. Testing, testing, testing...
Fri Apr 17, 2020, 10:11 AM
Apr 2020

but too much testing makes the Presidump look bad because numbers, you know.

Best wishes for the young man.

FakeNoose

(32,039 posts)
4. Chump's drug equals death
Fri Apr 17, 2020, 10:19 AM
Apr 2020

Prayers for your friend's son. I really hope he makes it. If he's otherwise young and healthy then he has a good chance. Your friend (the boy's mother) needs to take care of herself, because she has most likely contracted Covid herself.

Hydroxychloroquine is a lie and a sham to make money off of dying, desperate people. Chump has earned his place in hell and I hope he goes quickly.



Nay

(12,051 posts)
5. Can his mom apply for the antiviral, remdesivir, under compassionate rules? It's in trials in
Fri Apr 17, 2020, 10:21 AM
Apr 2020

the US right now, and has saved a hundred or so very sick people.

live love laugh

(12,833 posts)
7. I've been sending her info about it and Atemvir?
Fri Apr 17, 2020, 10:28 AM
Apr 2020

I may be referring to the same drug as you... She’s asked and been told they have their own protocol. I’m gonna call her right now though about compassionate usage. Thanks!

Nay

(12,051 posts)
10. She may want to apply to the actual trials admin to see if they can get him in. I'm not exactly
Fri Apr 17, 2020, 10:39 AM
Apr 2020

sure how you would do that, but here's the link to the Chicago trial. Of 113 very sick people, 2 died and the rest have recovered.

https://www.statnews.com/2020/04/16/early-peek-at-data-on-gilead-coronavirus-drug-suggests-patients-are-responding-to-treatment/

I don't know where the son is hospitalized, but if it's close to Chicago, I'd think he would have a chance. Your poor friend. I cry for her.

Nay

(12,051 posts)
12. OMG, I reread your OP and saw that he is in Chicago! Oh, please, please, angels, get
Fri Apr 17, 2020, 11:03 AM
Apr 2020

that son into the trial. I'm holding my breath over here.

live love laugh

(12,833 posts)
14. I just called University of Chicago where the trials
Fri Apr 17, 2020, 11:06 AM
Apr 2020

Are taking place. I could only leave a message with a general phone number but hopefully they will call back soon. His Mom’s going to be talking to his doctors in a few minutes.

Nay

(12,051 posts)
15. May it happen. May it happen. Make sure to ask for "compassionate use" -- that may
Fri Apr 17, 2020, 11:10 AM
Apr 2020

help, even if he can't get into a trial.

live love laugh

(12,833 posts)
25. I just found Gileads contact info to apply for compassionate use
Fri Apr 17, 2020, 11:58 AM
Apr 2020

the physician has to call. I gave the info to his mom.


“Treating physicians may request information about Expanded Access for cell therapy by contacting 1-844-454-KITE”

Amishman

(5,523 posts)
6. Viral tests often have a significant margin for error
Fri Apr 17, 2020, 10:24 AM
Apr 2020

I know flu tests (especially with 'B' strains) have a moderately high false negative rate.

Wouldn't be surprised that there are parallels

marlakay

(11,305 posts)
19. So sorry for your friend and their son
Fri Apr 17, 2020, 11:24 AM
Apr 2020

This is why we need to be careful. My neighbor a teacher had pneumonia few weeks ago now his wife is sick he told us across our court his test for Covid was negative but I don’t believe it.

woodsprite

(11,803 posts)
22. Prayers to your friend's son. It took my friend 3 tests to find out he was positive as well.
Fri Apr 17, 2020, 11:34 AM
Apr 2020

He had been on a vent (5 days, hospitalized 11 days) and is now home recuperating. I'm sending best wishes and prayers that your friend's son can experience the same recovery.

pandr32

(11,340 posts)
23. I am sorry to hear this
Fri Apr 17, 2020, 11:38 AM
Apr 2020

How awful for your friend to have her only child in such a dire situation. I want to believe that there is some form of comfort for people who are in hospital and unable to have their loved ones with them.
Thanks for posting the testing information. I hope we have better tests soon.

JudyM

(28,966 posts)
26. There was a report in medical news yesterday or the day before that these types of patient should
Fri Apr 17, 2020, 10:01 PM
Apr 2020

be rolled onto their sides, that that has helped a number of them improve. Looked quickly for it just now but didn’t spot it. But it’s out there. Don’t want to g8 e false hope but the article was saying little else seems to work. Maybe it’s worth a try, especially if you can find that writeup.

Serious wishes for him to improve soon 🙏

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