Any SSDI experts I need HELP!...

[Boxerfan]

I have been under "review" to see if my condition has improved. I filled out the long question form & mailed it in a timely fashion.

Over a month later I got a certified letter & another (identical) form to fill out. I called & was told they did not receive my original!.

In the course of the call I explained my condition-a major sleep disorder & fibromyalgia. I told him how hard it was to fill out these forms with my hands going numb & cramping. I also detailed my sleep problem that stems from a parotid gland surgery gone awry-it is fairly obvious and in both cases my disability is easily demonstrated.

I sent the other form-priority mail with delivery confirmation.

About 2 weeks later I got a call from SSDI. This time it was a lady apologizing my form had been misplaced. I said great you have 2 now & she confirmed they had received both. She said something about being gone 2 weeks unexpected & had 13 other people to call back. She didn't sound very competent to be honest.

Fast forward 2 more weeks & my SSDI auto pay did not come!. I have a family & of course bills.

3 messages & no return call yet. I am trying my best not to have a panic attack and posting as a stress reliever & possibly some advice may result.

In my online search I believe I can only be cut off without notice if I did not return my paperwork or cooperate. I have done everything I can & told them I'd be happy to be examined or whatever. My disability has not gotten better since a Judge declared me disabled. And my fibromyalgia is markedly worse.

So...

I am calling as soon as they open this AM and try to get a human on the line to get a Supervisor involved. I am hopefully certain this is all just a terrible mistake. But I am in limbo now & any advice or related stories will help...

Or just thanks for reading along. I needed to vent...

[Hoyt]

1. Don't have an answer for you, sorry. Calling is the best thing right now.

Last edited Thu Nov 20, 2014, 12:18 PM - Edit history (1)

Hope they just made a mistake. Please let us know what happens. Good luck.

[mysuzuki2]

2. I know not evryone lives close to an SSA office but if possible, go in.

If it is hard for you to fill out forms, they will do it for you. Get a photocopy of the completed form. Remember the name of the person you talked to and note the date and time. If your payment did not arrive, they can give you a special payment. It will work out in the end. The real problem at SSA is not incompetency or lack of caring. The problem is that resources and personnel have been cut so much that people are overwhelmed and no one knows what the hell is going on any more. I worked for SSA for almost 35 years. I saw our staff go from almost 50 to under 30. All while the workloads were increasing massively. In my opinion, it is part of a deliberate plan to decrease confidence in the program so they can privatize it. My blood pressure went down 20 points when I retired.

[Boxerfan]

3. Thanks-I found the last certified letter

And it stated they would contact me before payments were stopped. And that did not happen.

So it is a mistake more than likely. But my sleep disorder has me on edge emotionally. It has been over 6 years and the condition is not treatable & stable. I typically get 4 or less hours of sleep a night.. Daytime with coffee is Ok till about 1pm-after that I need to lie down due to fatigue.

And this is really stressful.

If I do have to drive there it is going to be difficult. I avoid heavy traffic areas as I'm prone to go nuts. Older vehicle with bad brakes doesn't help.

I'm sorry about the work situation. Just there has to be some safeguard -this is my family & we can not make it without my benefits.
And if the worker had my personal files out & about so they were missing?? WTF??

Thanks & I'm trying to stay calm-not working but I'm trying.

[Boxerfan]

4. One call to a human solved it...And It was my bad memory

I'm so sorry to drag Y'all into this-

And I gave my apologies to the poor people at SSDI.

My payment is due next week. I got the dates screwed up in what serves as a memory. I was sure it was every 3rd Thursday but they has been coming Wednesday so not seeing it yesterday I went nuts. And overboard. Etc...

It is a symptom I'm kinda familiar with but I need to cope with better. And this time I put a lot of unneeded stress on others & my family.

Because I can not trust my memory anymore. And I'm really not crazy but I guess I am not sane. Lack of sleep will do that to you...

I needs me some Harvey Danger.

[Hoyt]

6. Glad to hear it. I've done the same.

[magical thyme]

8. we've all made that mistake at one time or another, or have yet to make it but will.

happy and relieved that it all worked out...

[mentalsolstice]

5. Sounds like an error on their part.

I get SSDI, and have gone through the review process every 3 years. However, I've only had to fill out a short 2 page form each time. Usually, I receive a notice within 3-4 weeks that no further review will be required. This is probably due to the fact that my condition is considered permanent with no hope for improvement, and I was approved upon my initial application, with no appeals or hearings necessary. I did notice after this last review (this summer) it was about 2 months before I got my letter saying my benefits would continue. I started to sweat it a bit, as we depend on my SSDI, and because my spouse is retired, we really depend upon me being able to get Medicare benefits.

Hopefully, it's an oversight on their part. However, even if it wasn't, SSA is required to notify you that you've been deemed able to back to work. You would have 10 days to appeal and make a request for continuation of benefits during the appeals process. If after the appeals and hearings, it is determined you're able to work, you would have to pay back the benefits. I suspect you were flagged in the computer system when you're first form wasn't received. Once their oversight was discovered, someone probably forgot to unflag you in the system. I'm keeping my fingers crossed for you that it gets resolved quickly.

Edit: I see you got it resolved. Go celebrate!

[meow2u3]

7. I don't think calls from SSDI are legit

You should get a letter in the mail from Social Security stating whether or not your application was accepted.
AFAIK, if someone calls you claming to be from Social Security (SSDI), chances are they're trying to scam you, including spoofing Social Security's main number.