Health
Related: About this forumMigrating Thrombophlebitis - Trousseau's Syndrome
Does anyone have this or know of someone who has it?
I was in hospital from the 4th - 15th of this month. 12 whole days. CT scan, MRI, EGD, Colonoscopy etc.
My hemoglobin had fallen to 5.1 and I received 6 units of blood. I had a GI bleed as a result of taking Xarelto for a pulmonary embolism.
Almost did me in.
The Dr said had my heart not been as strong as it is I might not have survived.
I couldn't stand and walk across the room without feeling faint or actually passing out.
So anyway . ..
I was just diagnosed and I'm in the early stages of finding out what all this means.
My MRI failed to show any pancreatic cancer and the pancreatic tail looked good (said the Dr)
I'm currently on anti-coagulant med. Lovenox 2x a day injected subcutaneously.
I have a Pulmonary Embolism, a DVT in my left arm and multiple superficial clots in both arms.
Swollen lymph nodes on the left side of my chest.
shenmue
(38,506 posts)NCarolinawoman
(2,825 posts)Is there a support group somewhere on line?
I don't know anything about it, although I seem to remember Richard Nixon had some kind of phlebitis. I think his wife, Pat, did as well.
Nay
(12,051 posts)looking after you, though. Hang in there.
MADem
(135,425 posts)I hope you get the answers you're looking for, and I hope you get better soon.
auntAgonist
(17,252 posts)more when I see the hemo again.
one day at a time.
aA
kesha
MADem
(135,425 posts)I hope you feel better soon.
auntAgonist
(17,252 posts)information available.
My platelets are way too high and of course my iron is horrible. I've always been iron deficient anaemic so that's nothing new. I'll be getting iron infusions in the coming weeks.
I see my haematologist on the 2nd Dec. Hopefully some answers.
On a good note, my hemoglobin is higher thanks to a 'top up' last night. 1 unit of blood helped.
Hope you all had a good Thanksgiving.
auntAgonist
(17,252 posts)lots of testing.
My platelet level is starting to fall a little bit which is a good thing.
It had gotten dangerously high for a while.
I now have pain in my left side chest. I also have developed bronchitis. Yay me.
Another clot has shown up in my left leg. Not terribly worried about that as I'm already taking blood thinners and that should take care of it.
The question still remains though, how does a clot even form when I'm on a thinner. Lovenox 120 1x a day subcutaneous injection.
Ah well, just a bit of an update. Nothing really new to report.
Still hoping someone has known somebody with Trusseau Syndrome. It would be nice to know I'm not alone.
thanks.
k.
auntAgonist
(17,252 posts)Since my OP I've received another unit of blood.
aA