I was thinking of you all today
and have just gleaned over the new posts, Slip, I sincerely things go well for your husband, Karin, Tab, Ruby the rest of you, I think about you all alot. And please kick me for not mentioning you SollyMack
My heart and thoughts are with you even though I may not post as often as I should.
Today is our 45th wedding anniversary, This month we've celebrated my wifes birthday and Valentines Day.
All days that we thought we would not see together. From the roller coaster to the new normal of a sort. My wife is
currently on short term disability and seems to be healing, actually healing. We are scheduled for her next surgeons appt on the 9th of
March in the morning then an oncologist appointment that afternoon. They are discussing more chemo, whether to or not. The determination will be made then.
As the cholangiocarcinoma is rare in the states, they don't have a set treatment or followup plan. She is a guinea pig and a test case.
I know this is dis jointed as hell but I wanted you to know someone cares about all of you even if he doesn't know exactly what form of this disease you or yours has.
Thanks for all the kindness, OTC
= new reply since forum marked as read
This is a great group of people!
One that cares. Hope you know how many of us on DU care for you, and wish you and your wife good health and blessings. Will be thinking of you on the 9th, sending all good thoughts your way.
Double 
we are facing a similar challenge of another drug as an 'insurance policy' but it has possible negative effects and there are no clear paths after a second allogeneic transplant. Part of me is to 'first do no harm' but if it comes back I'll be questioning the decision, the docs are leaving it up to us as there are no stats to go on. We can be in limbo for a few more weeks, tough decision and trying to read, but the science still has not developed enough to sway one decision over another. Which is why they are leaving the decision up to us, they do not know what to do and the guinea pig analogy is quite appropriate.
Hope we make the correct choice!
almost afraid to ask what the outcome was with your stepdad, hope it was OK. Disturbing when there is no clear path, it will be challenging and maybe just clearing a path for others in the future. You just always hope to be one of the small percentage that lives a long time, but you also face the reality that you might not be one of the lucky ones.
Thanks for the support
