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Liberalynn

(7,549 posts)
Fri Aug 1, 2014, 04:37 PM Aug 2014

Shaking My Head Over Doctors [View all]

I have had daily hives since January. Went to primary care doc they gave me a course of prednisone and when they came back after dose sent me to an allergist. Allergist looked to be about 85, and still using type writer and carbon paper, I kid you not. First thing he does is hand me a stack of copied newspaper clippings saying they often don't find the cause. Ran some tests. My immunoglobulin levels for A E and M were low and my CH50 was high. He just sent me a copy of lab work with note saying he didn't know what to make of this because he expected high immunoglobulin levels and low CH50.

No advice for follow up nothing. So I googled. Turns out not only can my low immunoglobulin levels and high CH50 cause hives but can be signs of more serious things. I call back prime cares office. Got "well we aren't immunologist we don't know what they mean either. So I said so refer me to an immunologist then.

They took forever but finally did. I go on Tuesday. Well the Immunologist's office tells me to stop taking all antihistamines for a week before appointment. I do. This a.m. I wake up, hives all over the place and swollen lip, all of which has been going on all along when I don't take the antihistamines. Doctor knew it, allergist knew it. All acted like oh it's no big deal. That I should just keep talking Zantac ( has antihistamine qualities and it's working) and learn to live with it.

So I call Immunologist's office, got voice mail and I say the hives are all over me again my lips swollen, I know yo don't want me to take antihistamines because they may throw tests off. Is there something else I can take to stop this itching? That's all. Then I left for meeting and had my cellphone off.

I was riding with a friend. She pulls in my driveway and a Sheriff pulls in right behind me. The immunologist had called my doctors office, my emergency contacts and 911 because they were afraid I would go into anaphylactic shock.

Nice they care and now I feel guilty for panicking everyone but I didn't think anything serious was going on. I just wanted relief from the itching.I wasn't saying it was serious because the primary care knows I have been having these symptoms for months and acting like hey it's no big deal. The kicker is there's two calls from them saying to take the antihistamines right away and that I might want to go to the ER. I guess they don't want me to just live with it now a big city doc told them it might be serious.

33 replies = new reply since forum marked as read
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Shaking My Head Over Doctors [View all] Liberalynn Aug 2014 OP
Sorry to hear of your problems; good luck. But sometimes it seems like they don't ever read Shrike47 Aug 2014 #1
Thanks. Liberalynn Aug 2014 #2
Keep us posted, Liberalynn. Laffy Kat Aug 2014 #3
Thanks! I will. Liberalynn Aug 2014 #10
Best of luck and glad you followed up ... slipslidingaway Aug 2014 #4
Thank You. Liberalynn Aug 2014 #11
You're welcome ... slipslidingaway Aug 2014 #23
Any itching, tingling or swelling anywhere around the mouth is serious business Warpy Aug 2014 #5
Thank You! Liberalynn Aug 2014 #12
Most of the time doctors can't do much. MindPilot Aug 2014 #6
The stopping what I enjoy part is what I am most worried about. Liberalynn Aug 2014 #13
Typewriter and carbon paper? whew trof Aug 2014 #7
On the plus side, at least he didn't try to treat her with leeches. scarletwoman Aug 2014 #8
That made me laugh!Thanks! Liberalynn Aug 2014 #15
Oh, I'm glad! I do hope you'll get some useful information out of the immunologist! scarletwoman Aug 2014 #19
That was my concern and one of several reasons why I asked for referral to an immunologist/allergist Liberalynn Aug 2014 #14
I was very impressed by my first visit with an endocrinoligst a couple of years ago trof Aug 2014 #20
With your lips swollen, they probably thought your airway was compromised Lars39 Aug 2014 #9
That's what the primary care said when I got in touch with them after. Liberalynn Aug 2014 #16
here's a nice doctor horror story for you.... Punkingal Aug 2014 #17
That is scary! Liberalynn Aug 2014 #18
Best health care system in the world Tsiyu Aug 2014 #22
That allergist needs to retire. Aristus Aug 2014 #21
+1 Liberalynn Aug 2014 #24
Update Liberalynn Aug 2014 #25
that's BS! women in particular are prone to be dismissed with "anxiety" misdiagnosis zazen Aug 2014 #26
Thank you about the information on mast cell activation. Liberalynn Aug 2014 #30
Docs can't follow you around 24/7 unfortunately are you keeping on log of your own on flare ups? lunasun Aug 2014 #27
I am going to start keeping a journal. Liberalynn Aug 2014 #31
The E.R. doc knows what he's talking about and if he said you did the right thing, you did. kickitup Aug 2014 #28
That had to be very frightening for you and your husband. Liberalynn Aug 2014 #32
Liberalynn rwork Aug 2014 #29
That did have to be really scary especially with the Liberalynn Aug 2014 #33
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