my world since my meltdown [View all]

[kozar]

Firstly,,ty for the support. Since then, here has what happened,

I am still going to sing my song in the church,in fact, every time the choir practiced with me, they were rehearsing their Christmas Cantata. And I managed to learn that music and words and will join them Jan 15 for their Cantata.

I have been working even harder, on state rules for HCP individuals. Specifically, mentally challenged. Because of My Daughter. Here are the abridged rules I know, because of my work and I am able to look at these rules as a Dad. I can hire whoever I want for "respite "care at rate I choose. We chose 15 an hour here in Tn,, most care workers get about 8-10 an hour.
But,the big but, My daughter has 40 hours per month during the week approved for personal and hygiene care. But that has to be though an agency that state supplies. We have adhered to that for years. Agency sends a care giver,, my daughter learns to trust them, and caregiver quits through the agency and my daughter suffers and another care giver comes in ,Mom and I train the new one and rinse repeat x 10,20 whatever. Bottom Line, adhering to state rules. Mom and I will not EVER leave Daughter for anything until we know she is comfortable.

So today I made progress, I have been fighting for and saying,,you will pay anyone for respite that I hire. But Hygiene and personal hours have to be agencies. Why can't I hire who I know is comfortable with Daughter? and will answer to me.not state when they decide to leave.

Today out of nowhere, Rep called me,Senator called me,,Gov called me,but I sent him to VM. they are listening. I knew the rules because of what I did as a profession. I am ,and have brought up THEIR rules as to why this will save them dollars and give my Daughter better care. I am waiting on 1 more call to confirm, per all the other calls I had today, that I can do this.

I woke this morn feeling defeated,,thought of a drink upon waking. Resisted that urge and these good things happened. Point is, there are times we need to fight, our addictive urges first, and then our beliefs with our addictive safety net.. at end,, This was a good fecking day.

Koz