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Cancer Support

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KaryninMiami

(3,073 posts)
Wed Jul 23, 2014, 10:58 PM Jul 2014

Stem Cell Transplant - all systems go [View all]

Process started at UM Sylvester Cancer Center here in Miami. Begins with 2 weeks of outpatient procedures and tests pulmonary, heart (already done), blood work, psych evaluation, bone marrow biopsy (scares the crap out of me), 5 days of shots to stimulate the stem cells then 1-3 days to harvest the stem cells from my blood (sort of like dialysis they say). Then I wait until a room is available (they only have 14)- hopefully within the next week or so following the harvest (sooner the better as the risk of relapse is high with my type of Non Hodgkins Lymphoma (AITL T cell- very rare and very aggressive). Then, a 3-4 week hospital stay which starts with 5 days of massive doses of chemo (knocks out just about everything include my entire immune system), then transferring my stem cells back into my body (like a transfusion). Then we wait until my bone marrow starts producing healthy white blood cells. The process actually changes the DNA if it works correctly. But it's a long, arduous, rather risky (mostly because of the risk of infection) process. When released, I'll be recuperating at home mostly for 3-6 months while my immune system builds itself back up. As I write these words, I'm in awe of how far medical miracles have come and at the same time, how daunting and overwhelming this all is (not to mention terrifying). But two expert oncologists at two different well renowned cancer centers believe this is the wise choice as it will increase the possibility of a longer remission or even a cure by about 30-40% so I'm thinking it's worth the risk.

For the next few weeks until I'm admitted into the hospital, I plan to fill my days with as much fun, laughter, good food and wine as possible and surround myself with friends and family that I love being with. Not to mention celebrating how far I've come. And the fact that my Obamacare is going to take care of me all the way through this.

Wish me luck- it's going to be a long 6 months! And if any of you have personally experienced an autologous stem cell transplant, would love to hear from you either here or via PM.

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Stem Cell Transplant - all systems go [View all] KaryninMiami Jul 2014 OP
Wow! Wishing you the best! Solly Mack Jul 2014 #1
Thanks, Solly Mack. KaryninMiami Aug 2014 #6
Good luck. It is amazing what medical procedures we have now. I had a good sinkingfeeling Jul 2014 #2
Yes - it's amazing how science has evolved since then. KaryninMiami Aug 2014 #5
Best of luck ... slipslidingaway Jul 2014 #3
Thanks so much- muddling through day by day. KaryninMiami Aug 2014 #4
Neupogen shots ??? ... slipslidingaway Aug 2014 #7
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