so glad you have friends and family around to make you more comfortable 
If you are up for it we stayed with two different people at Hope Lodge in NYC for a few months. One from Florida, about an hour from Miami, who just went home after fourteen months and saw docs at Columbia, Sloan and Cornell and is doing well. Another patient from the UK who was in hospice back in December and is also doing well. They both had a rare type of lymphoma, B cell or T cell.
I will send you the names of the doctors, their situation is still tenuous, but they are moving in the right direction. The person close to Miami has been out walking quite a bit since she returned home. Think she has the T cell lymphoma, had her spleen and part of her pancreas removed in a seven hour surgery and then had a cord plus haplo transplant a week or so later. Sometimes you have to move forward when the window is open, even though it might not be ideal. Columbia got her into remission and Cornell did the transplant. Send me a PM if you are up to it and you can always delegate this to a family member or friend as you have other concerns. Sorry you are getting tired and thanks for checking in.
Check your PM, I will give you my email and phone number and you can pass this along to a family member or friend.
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