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In reply to the discussion: Long-term Caregiving May Shorten Life Up To Eight Years [View all]Meowmee
(5,164 posts)And it would be a pittance compared to what you really need for someone you are caring for who became a complete invalid like my father after the hospital infected him with covid eventually leading to his murder. Here you will be bankrupted by these scam artists if you need to go on medicaid to get care and it can not be at home. If you have not set up a protected trust in advance.
Unfortunately every agency we dealt with were scams and or incompetent/ negligent and many also were criminals. The first hospital and supposed sub acute care gave him stage 3 pressure sores which turned into stage 4 under their supposed home care. Neglect and abuse is rampant, and that was one of the lesser things that happened if you can believe it.
I was trying to set up hospice at one point and found out they would be paid huge sums of money per week by medicare but would do absolutely pretty much nothing to help. No guarantee they would be available when you really needed them or at all. The only care provided would be someone to give a bath once per week. Basically they were just dropping off opiates, if they did that, and other than that you are on your own. Many bad reviews and the coordinator said that happened to her cousin as well.
I am sorry you went through all of that at such a young age.