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Showing Original Post only (View all)When Illness Makes a Spouse a Stranger (can we talk?) [View all]
Last edited Fri May 8, 2015, 02:41 PM - Edit history (1)
First I want to thank the 40-50 DUers that knew about my condition and kept my deepest secret.
Why OS doesn't really exist anymore is in an old NYT article below.
I had it long before I was diagnosed with FTD (I prefer to call it brain atrophy from the article below) just before Christmas 2013. I guess I'm lucky, some victims get this in their 20's.
My new symptoms point to me having a second deadly disease (ALS) that will shorten even more the quality time I have left. Projected lifespan 2 years. I'm just waiting to see the specialist for a confirmation diagnosis. I'm in no hurry to get there.
I so desperately wanted wanted to stay on the DU through November of 2016. But I've overstayed my time, it is so obvious. All I have done is ruin what OS used to be on the DU. My own fault for wanting to stay.
On current events. I was asked to do something by a DU Hillary supporter earlier this week. I spent the time and effort. It was pointed out to me point blank this morning because of something I did a few weeks ago, a huge "stick it" was the way it was treated by many. I had already heard it through the grapevine. It still hurt. Since then I haven't been able to stop crying.
And this morning an OP brought this reply: "I think you should delete this thread, because it sounds demented."
On the money in my case.
"you don't have Nixon to kick around any more, because, gentlemen, this is my last press conference." (http://www.brainyquote.com/quotes/quotes/r/richardmn116455.html)
I've enjoyed being a part of the DU and all the friends I've made here.
As far as OS and life in the future. I won't go out violently. I won't go out on FTD's terms.
A glass to the good old days. To a win in November 2016...
OS AKA Algernon or Don Quixote
PS Make a copy before this gets locked.
http://www.theaftd.org/
http://www.theaftd.org/understandingftd/disorders/ftdal
When Illness Makes a Spouse a Stranger
http://www.nytimes.com/2012/05/06/health/a-rare-form-of-dementia-tests-a-vow-of-for-better-for-worse.html?_r=1&pagewanted=all
By DENISE GRADY MAY 5, 2012
He threw away tax documents, got a ticket for trying to pass an ambulance and bought stock in companies that were obviously in trouble. Once a good cook, he burned every pot in the house. He became withdrawn and silent, and no longer spoke to his wife over dinner. That same failure to communicate got him fired from his job at a consulting firm.
By 2006, Michael French a smart, good-natured, hardworking man had become someone his wife, Ruth, felt she hardly knew. Infuriated, she considered divorce.
But in 2007, she found out what was wrong.
I cried, Mrs. French said. I cant tell you how much I cried, and how much I apologized to him for every perceived wrong or misunderstanding.
FULL story at link. Video: http://nyti.ms/1jY2ew8 via @nytvideo
Looking back, Mrs. French thinks her husband's mind began to slip a decade earlier. Credit Béatrice de Géa for The New York Times
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My only caveat, calimary: stay in a Group and avoid GD like the plague it is after this post.
Hekate
May 2015
#81
Exactly. You are beloved. I always read your posts and treasure them. Stay as long
Nay
May 2015
#220
We haven't always agreed, but I have enjoyed reading your posts. Please stay as long as you can
corkhead
May 2015
#10
This /\ I have loved your history posts, the animal rescue stories that make me cry and laught,
jwirr
May 2015
#26
And friend stay out of the political fights over who is going to win the primary. That part here on
jwirr
May 2015
#114
I was just about to post the same thing. Fuck'em. Stay as long as you want Steve.
Lochloosa
May 2015
#24
Same here, please know you can always do your postings. We love & support you.
appalachiablue
May 2015
#134
OS, forget those other people. You are loved and valued here. please stay as long as you can,
niyad
May 2015
#35
I don't know you and I already love you.. You are so fearless and accepting... I am not sure
secondwind
May 2015
#38
I've enjoyed your posts & would prefer you to stay. If you go, I'll miss you but want you to know
Bossy Monkey
May 2015
#43
I don't know you but it is obvious You are loved here, and that love is unconditional
J_J_
May 2015
#48
you are important to this place. I am sorry for the dead headed behavior of others but please stay
roguevalley
May 2015
#61
Steve, stay as long as you are physically able. When you give up something you love
1monster
May 2015
#71
I hope you will post more photos of the birds in your feeder eating your grape jelly next to
Faryn Balyncd
May 2015
#75
As we all know the internet is a way for some to be mean to others with no consequence. It can
liberal_at_heart
May 2015
#80
I still read and enjoy your posts, I hope this doesn't mean you're leaving us.
haikugal
May 2015
#83
A glass to the good old days, Steve. You will be remembered with love and respect.
Hekate
May 2015
#86
I have truly enjoyed your posts and hope that you will come back from time to time
Gothmog
May 2015
#100
If this post is an example of some level of incoherence, let me say you're doing just fine
riderinthestorm
May 2015
#117
Look here Steve. This is a democracy and we will vote to decide if you leave or not and I'm
rhett o rick
May 2015
#133
Cannabis Takes on Alzheimer’s and Dementia Successfully: Story and Studies
Voice for Peace
May 2015
#137
Yes! Yes! Give cannabis a try! Consider moving to Colorado - CBD is proven an effective treatment
eloydude
May 2015
#171
Of course, doing as you feel is best is up to you, but if it is because of some other people
Jefferson23
May 2015
#148
"Always be kind, for everyone you meet is fighting a hard battle."
The Velveteen Ocelot
May 2015
#152
I just started posting myself but have long lurked and enjoyed your postings and wondered
Person 2713
May 2015
#186
Very sorry to read this heartbreaking news. I'll miss your posts, but you'll continue to inspire.
whereisjustice
May 2015
#190
I like yr posts and hope that you do visit and post when yr up to it...
Violet_Crumble
May 2015
#197
Of all of the great DUers, there have been a handful or so who honor us by their presence.
hedda_foil
May 2015
#201
You are in my meditations of Healing, Caring and Love. Know that you matter to myself and to
Dont call me Shirley
May 2015
#244