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Mountain Mule

(1,002 posts)
49. Great Post! You speak for many of us!
Wed Mar 8, 2017, 03:21 AM
Mar 2017

Once upon a time I was a professional with a job I loved and pay and benefits that put me firmly in the middle class. Then I came down with an illness that the doctors were unable to diagnose. As I grew sicker and sicker, I finally could no longer work and ran thru all my savings. Once my COBRA expired that was the final financial blow and I soon lost everything. It was sheer accident that I finally found out what was going on. My hot water heater was giving off the smell of gas, so I called public utilities. They tested the air in my home and all the alarm bells went off! Not only was the hot water heater malfunctioning, but the 50 year-old furnace in my house was also burning incorrectly and giving off high levels of carbon monoxide. The CO detector that I had thought was working was actually broken, so I had no way of knowing what was happening since you can't smell CO the way you can natural gas. This had been going on for at least two years and had become so bad the utilities worker told me that he was surprised I hadn't died in my sleep. Sometimes I wish I would have. By the end I had sustained permanent brain damage from lack of oxygen in my blood supply. My eyes and my heart were impacted as well. Thanks to the resulting loss of short term memory and executive function, I can no longer work. I tried and tried, but it now takes me forever to do the simplest thing and my employers had to let me go because I was too "slow." I'm just one of many Americans with an "invisible" disability. If you don't know me very well I seem fine when I'm anything but. It took me 5 years to be awarded SSDI because my damaged brain just couldn't cope with all that paperwork.

Now I depend on medicaid, a tiny SSDI check, and food stamps (SNAP) plus a housing voucher. Take any of those things away and my entire life falls apart. I've existed in a constant state of low level fear since that SOB and his death-dealing republican pals were elected. I am afraid that many disabled Americans will die early deaths thanks to them and their cruel policies. When I express my concerns to my roommate, he just blows me off and tells me I'm overly fond of "apocalyptic thinking." Yeah, right. What I'm doing is following the news about 45's plan to get rid of the social safety net, so he can build an even bigger army and enrich himself and his pals at the expense of the American people starting with the poor and disabled. I try not to give into my fears, but it can be very hard. God bless and good luck to us all. We're going to need it.

My brother is in a nursing home on medicaid/medicare. We can't care for him at home anymore. KittyWampus Mar 2017 #1
If they block grant Medicaid or repeal its expansion, a LOT of nursing homes will close their doors. roamer65 Mar 2017 #5
I have been trying to explain this to people but DURHAM D Mar 2017 #10
I am disabled in a few ways but you can not Doreen Mar 2017 #8
Looking at me, one wouldn't think that I'm considered 100% disabled by the SSA Kaleva Mar 2017 #13
I was told not to work also and tried to work for some years anyway Doreen Mar 2017 #16
I'm the same Alice11111 Mar 2017 #33
Wow, you have been through a lot and came through Doreen Mar 2017 #44
Im really sorry. Alice11111 Mar 2017 #46
Well, if I ever ran into you and saw you needed help I would help you. Doreen Mar 2017 #48
Good thing to walk away so they have to deal w her Alice11111 Mar 2017 #51
Yup, when we go to restaurants they ask me what she want. Doreen Mar 2017 #53
and the mean ones Alice11111 Mar 2017 #55
I just count them as the stupid ones to. Doreen Mar 2017 #56
I'll remember the stories you told, yours and your friend Alice11111 Mar 2017 #59
I have noticed that too often in my life as well! My blind friends reply "I may be blind but FailureToCommunicate Mar 2017 #66
I think the "weary" is the biggest one over polite. Doreen Mar 2017 #70
Great Post! You speak for many of us! Mountain Mule Mar 2017 #49
OMG! You are living on the edge. Thank you for sharing Alice11111 Mar 2017 #54
We with disabilities have to fight so hard Mountain Mule Mar 2017 #69
Good 4 you! You stood up, even on a pay phone. Alice11111 Mar 2017 #71
We are going to clean their clocks at the polls!! dubyadiprecession Mar 2017 #2
Dream on jodymarie aimee Mar 2017 #3
Glad my lease is up here in Sheboygan. Plotting my next State of mind. sarcasmo Mar 2017 #6
Understand, Wellstone ruled Mar 2017 #7
Only if we scream and raise hell through Nov. 2018. slumcamper Mar 2017 #22
I agree with the rolling over part. I hope that is done. Alice11111 Mar 2017 #34
They were grouped in re:medicaid...'poor, veterans, diabled' or something. jmg257 Mar 2017 #4
They're going to kill some people Jarqui Mar 2017 #9
Many people. Millions. Many others will be homeless. Alice11111 Mar 2017 #35
I think your concern GP6971 Mar 2017 #11
This is not normal. Snarkoleptic Mar 2017 #12
I like it. Doreen Mar 2017 #14
DC is full of monsters, at the moment. Snarkoleptic Mar 2017 #15
hmmm...... bdamomma Mar 2017 #23
And the dead-enders still think he's doing a great job and should be given a chance. Snarkoleptic Mar 2017 #24
I did, but he blew it immediately Alice11111 Mar 2017 #36
Perfect. Solly Mack Mar 2017 #29
Well we know what the Nazis did to the disabled and it sure as hell wasnt a tax credit. BannonsLiver Mar 2017 #17
Uh huh,...whimper. Doreen Mar 2017 #18
What good is a tax credit when you can't pay for meds? Alice11111 Mar 2017 #39
People living check to check...tax credits never work jeanmarc Mar 2017 #19
No, it's that their definition of 'working' is the opposite of those of decent human beings (n/t) mr_lebowski Mar 2017 #31
tax credits... they're pretty much just stupid rebates. A $10 rebate on $10,000 KittyWampus Mar 2017 #38
if bora13 Mar 2017 #20
We need a big march on this one. I'm sure aarp and AMA and other notdarkyet Mar 2017 #21
Disabled Vet Johnny2X2X Mar 2017 #25
Yup Metsie Casey Mar 2017 #32
Our vets gave their best to us and they deserve no less from us. Rhiannon12866 Mar 2017 #37
and the 9/11 First Responders...wouldn't even help them Alice11111 Mar 2017 #42
That sends me over the edge, too! Rhiannon12866 Mar 2017 #43
We pay the most for health care of civilized countries Alice11111 Mar 2017 #45
I really expected a Democratic victory in November Rhiannon12866 Mar 2017 #47
Yeah, that is the sad part, to think of what Obama could Alice11111 Mar 2017 #50
We certainly had the candidate this time who had more experience than anyone before in history Rhiannon12866 Mar 2017 #52
an Accidental President Alice11111 Mar 2017 #57
The more I hear, the more I believe it can't last Rhiannon12866 Mar 2017 #58
You made me laugh, but it is so true! Alice11111 Mar 2017 #60
I think about that kind of thing, these days... Rhiannon12866 Mar 2017 #61
.. Alice11111 Mar 2017 #62
... Rhiannon12866 Mar 2017 #63
Had Hillary won GWC58 Mar 2017 #64
If only they were just useless, but malicious, dangerous, Alice11111 Mar 2017 #68
I hear a lot of talk and planning about that option Alice11111 Mar 2017 #40
I am really scared too Doreen Kimchijeon Mar 2017 #26
Yes, I am pissed also very pissed. Doreen Mar 2017 #27
Republicans have chipped away at the ADA for years. Trump may finish it off. FailureToCommunicate Mar 2017 #28
I dont think they are smart enough to make the connection. Alice11111 Mar 2017 #41
Let's hope that is true. It's unfortunately been a theme for Repubs since the early days of FailureToCommunicate Mar 2017 #67
K&R Solly Mack Mar 2017 #30
Doreen, did you ever update what happened with your boyfriend who was forced to flee to Germany? cwydro Mar 2017 #65
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